[Diabetes-talk] Pumps

Wed Feb 20 23:00:40 UTC 2013

Wow! A good time for all of us to stop and appreciate the people and things
we have. And of course, don't forget to take good care of yourself during
this time too. That's the diabetes connection here. <hug.>
Veronica

Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes! Yes!
http://youtu.be/JvakJ5lk6Us
Then find more music from Veronica Elsea and The Guide Dog Glee Club at:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bernadette Jacobs
Sent: Wednesday, February 20, 2013 6:38 AM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] Pumps

Thanks for your condolences Veronica!  I'm so glad the worst is all
behind us now.  Bill has truly greatly improved since the radiation
was finished.  He's got a little way to go, but he'll get there soon,
I hope.  Doc seems to believe he'll have full recovery in six months
or so, which would put it about Juneish.  We're hoping he'll be up to
our annual trip back to WI in August.  But, if he's not... Oh well...
I'm just glad to have him back, if you know what I mean.

Bern

On 2/19/13, Veronica Elsea <veronica at laurelcreekmusic.com> wrote:
> Yeah, most of the time I really love my iPhone, except for those
occasional
> moments when I want to toss the thing in the bay. <grin.> But given my
> previous experiences with Prismo, man I'd hate to mess with that app every
> time I wanted to read a number from a meter. I did have some success
> getting
> the KNFB reader on my Nokia phone to read the Animas Ping. But to make it
a
> reasonable process, one would really need to build a stand that would line
> things up just perfectly. The other issue is that with many of these apps,
> they can get pretty fussy about the light being just right.
> But this week, I started using a mobile credit card reader for my business
> on my phone. So come FDA and companies! Hand over tha pump remote app!
Now!
> <laughing!>
> Thanks everyone for these great discussions. And just for the record, I'm
> not perfect either! Hahahaha! All of us are doing the best we can with
what
> we've got. Sorry about that scare, Bern. Oh I just can't imagine the
horror
> of a night like that myself. Hugs to everyone!
>
> Veronica
>
>
> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes! Yes!
> http://youtu.be/JvakJ5lk6Us
> Then find more music from Veronica Elsea and The Guide Dog Glee Club at:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Pollpeter
> Sent: Tuesday, February 19, 2013 7:47 AM
> To: 'Diabetes Talk for the Blind'
> Subject: Re: [Diabetes-talk] Pumps
>
> My hubby and I just upgraded to IPhones, and we really like them. Truth
> be told, I don't use half of what one can with it, but it is nice just
> the same, and it's pretty much fully accessible now. So I can do pretty
> much whatever my sighted friends and family do.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
> Of Bernadette Jacobs
> Sent: Tuesday, February 19, 2013 9:01 AM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] Pumps
>
>
> Hi Bridgit!!!
>
> I do hope you can forgive me for steeling your phraseology here!!
> "Funny, look at how many blind people use this fundamentally, visually
> orientated device, grin."  They not only use it, but it is widely
> recommended and praised for being the most widely used and most
> accessible phone out there by the blind themselves.  And, those blind
> folks who don't have one, (including me), are salivating over it--GOTTA
> HAVE IT!!!  And, I will!!  Come June when I'm up for my upgrade!!!  Good
> thing I don't have to worry about BG's salivating!!! LOL!!!
>
> Bern
>
>
>
> On 2/17/13, Bridgit Pollpeter <bpollpeter at hotmail.com> wrote:
>> Yeah, I did a presentation on the IPhone when it first came out. Apple
>
>> initially refused to make it accessible stating it was, "Fundamentally
>
>> a visually orientated product," and essentially visually impaired
>> people had no reason to want such a device. Funny, look at how many
>> blind people use this fundamentally, visually orientated device, grin.
>>
>> Bridgit
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Mike Freeman
>> Sent: Sunday, February 17, 2013 4:33 PM
>> To: 'Diabetes Talk for the Blind'
>> Subject: Re: [Diabetes-talk] Pumps
>>
>>
>> Bridgit:
>>
>> The reason Apple introduced VoiceOver (ask Dr. Maurer if you doubt me)
>
>> was that it was made pretty clear that Apple would no longer be able
>> to market to schools in Massachusetts unless they implemented
>> accessibility. Since Macs in schools are a cash cow, Apple sort of
>> woke up PDQ and began to pay attention to what we (NFB) were saying.
>> Before that, it was like punching a pillow -- plenty of good talk but
>> no action.
>>
>> In other words, the market rules all.
>>
>> Mike Freeman
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Bridgit Pollpeter
>> Sent: Sunday, February 17, 2013 2:22 PM
>> To: 'Diabetes Talk for the Blind'
>> Subject: Re: [Diabetes-talk] Pumps
>>
>> Agree. And I'm already crying about the loss of my Cosmo, sigh.
>>
>> Why can't the IPhone voice-over be a template for other companies
>> including pumps? I mean, obviously they can't use the Apple voice-over
>
>> at least without paying a hefty price, but I'm sure some programmer
>> can figure out a similar feature to be placed on a pump.
>>
>> And like I said, it can be a feature you turn on and off so no
>> special, separate pump is necessary. It an be a regular pump anyone
>> can use with the option to turn on a voice-over like the IPhone and
>> other Apple products.
>>
>> Bridgit
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Veronica Elsea
>> Sent: Sunday, February 17, 2013 3:39 PM
>> To: 'Diabetes Talk for the Blind'
>> Subject: Re: [Diabetes-talk] Pumps
>>
>>
>> Kelly, I too am totally blind and am currently using a Cozmo. My
>> warranty is just about to run out as well. Ummm, a bit of quivering
>> going on here on the west coast! If I were sighted, I'd go for the
>> T-slim, without a doubt because it actually does have many of the
>> features my Cozmo has, like being able to set temporary basal rates up
>
>> to 72 hours. Yep! Doing that right now to accommodate a short stint
>> with Prednisone. You are right that the Accuchek Spirit has the beeps
>> when something happens, the most audible feedback. Problem is that we
>> don't have access to the bells and whistles that modern pumps have.
>> Everything like storing insulin to carb ratios, and the things that
>> today's smart pumps figure out for us used to reside on a PDA which
>> isn't accessible to us. Now they do have a remote, but the one I
>> looked at a couple of years ago didn't work because everything was
>> wizards. And for me, the 20 questions approach to just munching a
>> scone and coffee just doesn't cut it, not to mention isn't accessible
>> anyway. At this moment I definitely feel like I'm going to give up
>> something when I change pumps and it has the feel of not getting much
>> extra in terms of things happening automatically. That was okay back
>> in 1991 because that's how it was for everyone else too. But over
>> these next two months, I'm going to revisit all the pumps, yes, even
>> the touch-screen T-slim, just to see what it is like. And of course,
>> what we're running into with things like iPhone connections is that
>> any software has to be approved by the FDA and even now there is
>> software that's been sitting on a shelf somewhere for years because
>> they can't get through the backlog. And liability is not our friend
>> here. Nobody wants to take on the possibility of being sued because
>> their app read something wrong. It's a real shame in my personal
>> opinion. Having said all of that, I do wish the Accuchek Spirit were
>> as small and light-weight as the others. But I sure do intend to set
>> up sessions with all of the different reps, likely shedding some tears
>
>> over the loss of my Cozmo, but ultimately arriving at some sort of
>> solution that works for me. I'll be happy to share my experiences with
>
>> all of you along the way. And I haven't heard of anything coming from
>> J and J either. But hey, let the snooping begin. These companies all
>> have offices out here so no harm in trying! Stay tuned!
>>
>> Veronica
>>
>>
>> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes!
>> Yes! http://youtu.be/JvakJ5lk6Us Then find more music from Veronica
>> Elsea and The Guide Dog Glee Club at: http://www.laurelcreekmusic.com
>>                 Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Bridgit Pollpeter
>> Sent: Sunday, February 17, 2013 12:56 PM
>> To: 'Diabetes Talk for the Blind'
>> Subject: Re: [Diabetes-talk] Pumps
>>
>> Kelly,
>>
>> I'm totally blind and use a Cosmo, but this brand is no longer
>> available. I've played with the MedTronic and Animas Ping, and both
>> are fairly simple to use. No pump on the market currrently will beep
>> for every single function like the Cosmo, which is one of the reasons
>> I love it, but I have found the Animas to be the most similar to my
>> Cosmo and plan to use this once my warrantee is up, which is now.
>>
>> My advice is to get your hands on any pump your endo has available and
>
>> play around with it.
>>
>> Bridgit
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Kelly Thornbury
>> Sent: Sunday, February 17, 2013 2:06 PM
>> To: diabetes-talk at nfbnet.org
>> Subject: Re: [Diabetes-talk] Pumps
>>
>>
>> I was on a pump back in the mid/late 90s when you could still buy
>> pre-filled cartridges, and it was sight loss and blindness that sent
>> me back to the pens.
>>
>> So, it looks like there are several pump users here, and I'm curious
>> as to the models you use, and your vision level if you choose to share
>
>> as I'm now shopping for a new pump.
>>
>> So far, in talking to company reps, the Accu-Trend Spirit seems to be
>> the most "accessible," as it is one of the few pumps I've found where
>> every time you enter a menu the selector starts at the top of the
>> menu. It also has the beeps and vibrations as you navigate menus and
>> make selections.
>>
>> I looked at another, which I've forgotten the name of, which
>> automatically primes and inserts the needle, and the "unit" is
>> controlled entirely by a remote. I asked their tech support about the
>> possibility of a smartphone app to program and control the unit, but
>> never heard anything back.
>>
>> Then, my doctor has been talking about a Johnson and Johnson pump
>> supposedly up for FDA evaluation with speech capabilities. My doctor
>> has seen pictures of the pump, but I lack the credentials to find any
>> information on it or it's progress. I know J&J was recently in trouble
>
>> with quality control, but I'm betting that now that the FDA has come
>> down on them their quality control will be significantly
>> improved...hopefully.
>>
>> So, any ideas on pumps and accessible features would be appreciated.
>>
>> Thanks,
>> Kelly
>>
>>
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>>
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>> urel
>> creekmusic.com
>>
>>
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>
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