[Diabetes-talk] Pumps
Mike Freeman
k7uij at panix.com
Thu Feb 21 03:26:41 UTC 2013
Naw; I was too busy cussing.
Mike
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of d
m gina
Sent: Wednesday, February 20, 2013 5:40 PM
To: diabetes-talk at nfbnet.org
Subject: Re: [Diabetes-talk] Pumps
Ha
take good care of yourself?
Well now, I don't know if the sugars went up or down when I hit the
corner of a wall with my forehead.
it hurt so bad even the dog cried.
He didn't know what to do.
I sure have a goose over that one just above the eye.
Has anyone ever taken their sugar after a bump like that?
I know it has happened to all of us from time to time.
Good heavens.
Original message:
> Wow! A good time for all of us to stop and appreciate the people and
things
> we have. And of course, don't forget to take good care of yourself during
> this time too. That's the diabetes connection here. <hug.>
> Veronica
> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes! Yes!
> http://youtu.be/JvakJ5lk6Us
> Then find more music from Veronica Elsea and The Guide Dog Glee Club at:
> http://www.laurelcreekmusic.com
> Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bernadette Jacobs
> Sent: Wednesday, February 20, 2013 6:38 AM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] Pumps
> Thanks for your condolences Veronica! I'm so glad the worst is all
> behind us now. Bill has truly greatly improved since the radiation
> was finished. He's got a little way to go, but he'll get there soon,
> I hope. Doc seems to believe he'll have full recovery in six months
> or so, which would put it about Juneish. We're hoping he'll be up to
> our annual trip back to WI in August. But, if he's not... Oh well...
> I'm just glad to have him back, if you know what I mean.
> Bern
> On 2/19/13, Veronica Elsea <veronica at laurelcreekmusic.com> wrote:
>> Yeah, most of the time I really love my iPhone, except for those
> occasional
>> moments when I want to toss the thing in the bay. <grin.> But given my
>> previous experiences with Prismo, man I'd hate to mess with that app
every
>> time I wanted to read a number from a meter. I did have some success
>> getting
>> the KNFB reader on my Nokia phone to read the Animas Ping. But to make it
> a
>> reasonable process, one would really need to build a stand that would
line
>> things up just perfectly. The other issue is that with many of these
apps,
>> they can get pretty fussy about the light being just right.
>> But this week, I started using a mobile credit card reader for my
business
>> on my phone. So come FDA and companies! Hand over tha pump remote app!
> Now!
>> <laughing!>
>> Thanks everyone for these great discussions. And just for the record, I'm
>> not perfect either! Hahahaha! All of us are doing the best we can with
> what
>> we've got. Sorry about that scare, Bern. Oh I just can't imagine the
> horror
>> of a night like that myself. Hugs to everyone!
>> Veronica
>> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes! Yes!
>> http://youtu.be/JvakJ5lk6Us
>> Then find more music from Veronica Elsea and The Guide Dog Glee Club at:
>> http://www.laurelcreekmusic.com
>> Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
Of
>> Bridgit Pollpeter
>> Sent: Tuesday, February 19, 2013 7:47 AM
>> To: 'Diabetes Talk for the Blind'
>> Subject: Re: [Diabetes-talk] Pumps
>> My hubby and I just upgraded to IPhones, and we really like them. Truth
>> be told, I don't use half of what one can with it, but it is nice just
>> the same, and it's pretty much fully accessible now. So I can do pretty
>> much whatever my sighted friends and family do.
>> Bridgit
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Bernadette Jacobs
>> Sent: Tuesday, February 19, 2013 9:01 AM
>> To: Diabetes Talk for the Blind
>> Subject: Re: [Diabetes-talk] Pumps
>> Hi Bridgit!!!
>> I do hope you can forgive me for steeling your phraseology here!!
>> "Funny, look at how many blind people use this fundamentally, visually
>> orientated device, grin." They not only use it, but it is widely
>> recommended and praised for being the most widely used and most
>> accessible phone out there by the blind themselves. And, those blind
>> folks who don't have one, (including me), are salivating over it--GOTTA
>> HAVE IT!!! And, I will!! Come June when I'm up for my upgrade!!! Good
>> thing I don't have to worry about BG's salivating!!! LOL!!!
>> Bern
>> On 2/17/13, Bridgit Pollpeter <bpollpeter at hotmail.com> wrote:
>>> Yeah, I did a presentation on the IPhone when it first came out. Apple
>>> initially refused to make it accessible stating it was, "Fundamentally
>>> a visually orientated product," and essentially visually impaired
>>> people had no reason to want such a device. Funny, look at how many
>>> blind people use this fundamentally, visually orientated device, grin.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Mike Freeman
>>> Sent: Sunday, February 17, 2013 4:33 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Subject: Re: [Diabetes-talk] Pumps
>>> Bridgit:
>>> The reason Apple introduced VoiceOver (ask Dr. Maurer if you doubt me)
>>> was that it was made pretty clear that Apple would no longer be able
>>> to market to schools in Massachusetts unless they implemented
>>> accessibility. Since Macs in schools are a cash cow, Apple sort of
>>> woke up PDQ and began to pay attention to what we (NFB) were saying.
>>> Before that, it was like punching a pillow -- plenty of good talk but
>>> no action.
>>> In other words, the market rules all.
>>> Mike Freeman
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bridgit Pollpeter
>>> Sent: Sunday, February 17, 2013 2:22 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Subject: Re: [Diabetes-talk] Pumps
>>> Agree. And I'm already crying about the loss of my Cosmo, sigh.
>>> Why can't the IPhone voice-over be a template for other companies
>>> including pumps? I mean, obviously they can't use the Apple voice-over
>>> at least without paying a hefty price, but I'm sure some programmer
>>> can figure out a similar feature to be placed on a pump.
>>> And like I said, it can be a feature you turn on and off so no
>>> special, separate pump is necessary. It an be a regular pump anyone
>>> can use with the option to turn on a voice-over like the IPhone and
>>> other Apple products.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Veronica Elsea
>>> Sent: Sunday, February 17, 2013 3:39 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Subject: Re: [Diabetes-talk] Pumps
>>> Kelly, I too am totally blind and am currently using a Cozmo. My
>>> warranty is just about to run out as well. Ummm, a bit of quivering
>>> going on here on the west coast! If I were sighted, I'd go for the
>>> T-slim, without a doubt because it actually does have many of the
>>> features my Cozmo has, like being able to set temporary basal rates up
>>> to 72 hours. Yep! Doing that right now to accommodate a short stint
>>> with Prednisone. You are right that the Accuchek Spirit has the beeps
>>> when something happens, the most audible feedback. Problem is that we
>>> don't have access to the bells and whistles that modern pumps have.
>>> Everything like storing insulin to carb ratios, and the things that
>>> today's smart pumps figure out for us used to reside on a PDA which
>>> isn't accessible to us. Now they do have a remote, but the one I
>>> looked at a couple of years ago didn't work because everything was
>>> wizards. And for me, the 20 questions approach to just munching a
>>> scone and coffee just doesn't cut it, not to mention isn't accessible
>>> anyway. At this moment I definitely feel like I'm going to give up
>>> something when I change pumps and it has the feel of not getting much
>>> extra in terms of things happening automatically. That was okay back
>>> in 1991 because that's how it was for everyone else too. But over
>>> these next two months, I'm going to revisit all the pumps, yes, even
>>> the touch-screen T-slim, just to see what it is like. And of course,
>>> what we're running into with things like iPhone connections is that
>>> any software has to be approved by the FDA and even now there is
>>> software that's been sitting on a shelf somewhere for years because
>>> they can't get through the backlog. And liability is not our friend
>>> here. Nobody wants to take on the possibility of being sued because
>>> their app read something wrong. It's a real shame in my personal
>>> opinion. Having said all of that, I do wish the Accuchek Spirit were
>>> as small and light-weight as the others. But I sure do intend to set
>>> up sessions with all of the different reps, likely shedding some tears
>>> over the loss of my Cozmo, but ultimately arriving at some sort of
>>> solution that works for me. I'll be happy to share my experiences with
>>> all of you along the way. And I haven't heard of anything coming from
>>> J and J either. But hey, let the snooping begin. These companies all
>>> have offices out here so no harm in trying! Stay tuned!
>>> Veronica
>>> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes!
>>> Yes! http://youtu.be/JvakJ5lk6Us Then find more music from Veronica
>>> Elsea and The Guide Dog Glee Club at: http://www.laurelcreekmusic.com
>>> Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bridgit Pollpeter
>>> Sent: Sunday, February 17, 2013 12:56 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Subject: Re: [Diabetes-talk] Pumps
>>> Kelly,
>>> I'm totally blind and use a Cosmo, but this brand is no longer
>>> available. I've played with the MedTronic and Animas Ping, and both
>>> are fairly simple to use. No pump on the market currrently will beep
>>> for every single function like the Cosmo, which is one of the reasons
>>> I love it, but I have found the Animas to be the most similar to my
>>> Cosmo and plan to use this once my warrantee is up, which is now.
>>> My advice is to get your hands on any pump your endo has available and
>>> play around with it.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Kelly Thornbury
>>> Sent: Sunday, February 17, 2013 2:06 PM
>>> To: diabetes-talk at nfbnet.org
>>> Subject: Re: [Diabetes-talk] Pumps
>>> I was on a pump back in the mid/late 90s when you could still buy
>>> pre-filled cartridges, and it was sight loss and blindness that sent
>>> me back to the pens.
>>> So, it looks like there are several pump users here, and I'm curious
>>> as to the models you use, and your vision level if you choose to share
>>> as I'm now shopping for a new pump.
>>> So far, in talking to company reps, the Accu-Trend Spirit seems to be
>>> the most "accessible," as it is one of the few pumps I've found where
>>> every time you enter a menu the selector starts at the top of the
>>> menu. It also has the beeps and vibrations as you navigate menus and
>>> make selections.
>>> I looked at another, which I've forgotten the name of, which
>>> automatically primes and inserts the needle, and the "unit" is
>>> controlled entirely by a remote. I asked their tech support about the
>>> possibility of a smartphone app to program and control the unit, but
>>> never heard anything back.
>>> Then, my doctor has been talking about a Johnson and Johnson pump
>>> supposedly up for FDA evaluation with speech capabilities. My doctor
>>> has seen pictures of the pump, but I lack the credentials to find any
>>> information on it or it's progress. I know J&J was recently in trouble
>>> with quality control, but I'm betting that now that the FDA has come
>>> down on them their quality control will be significantly
>>> improved...hopefully.
>>> So, any ideas on pumps and accessible features would be appreciated.
>>> Thanks,
>>> Kelly
>>> _______________________________________________
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>>> urel
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--
--Dar
skype: dmgina23
FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
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