[Diabetes-talk] Pumps
Bridgit Pollpeter
bpollpeter at hotmail.com
Thu Feb 21 20:13:38 UTC 2013
Yeah. I sound like an old salty sailor when that happens, LOL! I've
learned to keep an arm in front of me when moving about the house or a
hand in front of my face when out and about if I know obstacles are
around that could hit me especially with the kids.
Bridgit
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
Of Mike Freeman
Sent: Wednesday, February 20, 2013 10:05 PM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] Pumps
Yeah -- those damned walls and corners can be malevolent!
Mike
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
Of Robert Shelton
Sent: Wednesday, February 20, 2013 7:49 PM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] Pumps
Good -- I'm glad.
To be honest, I'm not really sure what you do about a concussion other
than not hitting your head again until you're better. From my own
experience, I find that I need to be a little careful after cracking my
noodle. I'm always a little off for a few days and therefore a bit
accident prone.
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
Of d m gina
Sent: Wednesday, February 20, 2013 9:41 PM
To: diabetes-talk at nfbnet.org
Subject: Re: [Diabetes-talk] Pumps
yes I am doing fine.
I hit the area where I had 42 stitches put in falling down a flight of
stairs. When I hit that area, it is very tender even years later. Thanks
for asking. The lady will do just fine.
Original message:
> Dar. Are you sure you're OK? I've banged the old coconut more times
> than I can remember, and some of those were undiagnosed concussions.
> Here's a link.
> http://www.mayoclinic.com/health/concussion/DS00320/DSECTION=symptoms
> There is nothing I hate any more than banging my head, and that is
> just part of being a blind person. I try to be a lot more careful
now.
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
> Behalf Of d m gina
> Sent: Wednesday, February 20, 2013 8:29 PM
> To: diabetes-talk at nfbnet.org
> Subject: Re: [Diabetes-talk] Pumps
> No what upset me is the wall is still standing. loll.
> I am not worried about it.
> Was just asking a question.
> Original message:
>> I think it would take a bigger hit than this to affect glucose
>> levels. Unless the bump is causing you undue stress, you probably
>> have nothing to worry about. Stress over health and health affecting
>> us internally is usually what will affect BG's and not bumps and
>> bruises.
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of d m gina
>> Sent: Wednesday, February 20, 2013 7:40 PM
>> To: diabetes-talk at nfbnet.org
>> Subject: Re: [Diabetes-talk] Pumps
>> Ha
>> take good care of yourself?
>> Well now, I don't know if the sugars went up or down when I hit the
>> corner of a wall with my forehead.
>> it hurt so bad even the dog cried.
>> He didn't know what to do.
>> I sure have a goose over that one just above the eye.
>> Has anyone ever taken their sugar after a bump like that?
>> I know it has happened to all of us from time to time.
>> Good heavens.
>> Original message:
>>> Wow! A good time for all of us to stop and appreciate the people and
>>> things we have. And of course, don't forget to take good care of
>>> yourself during this time too. That's the diabetes connection here.
>>> <hug.> Veronica
>>> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes!
>>> Yes! http://youtu.be/JvakJ5lk6Us Then find more music from Veronica
>>> Elsea and The Guide Dog Glee Club at:
>>> http://www.laurelcreekmusic.com
>>> Veronica Elsea, Owner Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bernadette Jacobs
>>> Sent: Wednesday, February 20, 2013 6:38 AM
>>> To: Diabetes Talk for the Blind
>>> Subject: Re: [Diabetes-talk] Pumps
>>> Thanks for your condolences Veronica! I'm so glad the worst is all
>>> behind us now. Bill has truly greatly improved since the radiation
>>> was finished. He's got a little way to go, but he'll get there
>>> soon, I hope. Doc seems to believe he'll have full recovery in six
>>> months or so, which would put it about Juneish. We're hoping he'll
>>> be up to our annual trip back to WI in August. But, if he's not...
Oh
well...
>>> I'm just glad to have him back, if you know what I mean.
>>> Bern
>>> On 2/19/13, Veronica Elsea <veronica at laurelcreekmusic.com> wrote:
>>>> Yeah, most of the time I really love my iPhone, except for those
>>> occasional
>>>> moments when I want to toss the thing in the bay. <grin.> But given
>>>> my previous experiences with Prismo, man I'd hate to mess with that
>>>> app every time I wanted to read a number from a meter. I did have
>>>> some success getting the KNFB reader on my Nokia phone to read the
>>>> Animas Ping. But to make it
>>> a
>>>> reasonable process, one would really need to build a stand that
>>>> would
>>>> line things up just perfectly. The other issue is that with many of
>>>> these apps, they can get pretty fussy about the light being just
>>>> right. But this week, I started using a mobile credit card reader
>>>> for
>>>> my business on my phone. So come FDA and companies! Hand over tha
>>>> pump remote app!
>>> Now!
>>>> <laughing!>
>>>> Thanks everyone for these great discussions. And just for the
>>>> record,
>>>> I'm not perfect either! Hahahaha! All of us are doing the best we
>>>> can
>>>> with
>>> what
>>>> we've got. Sorry about that scare, Bern. Oh I just can't imagine
>>>> the
>>> horror
>>>> of a night like that myself. Hugs to everyone!
>>>> Veronica
>>>> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes!
>>>> Yes! http://youtu.be/JvakJ5lk6Us Then find more music from Veronica
>>>> Elsea and The Guide Dog Glee Club at:
http://www.laurelcreekmusic.com
>>>> Veronica Elsea, Owner Laurel Creek Music Designs
>>>> Santa Cruz, California
>>>> Phone: 831-429-6407
>>>> -----Original Message-----
>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of
>>>> Bridgit Pollpeter
>>>> Sent: Tuesday, February 19, 2013 7:47 AM
>>>> To: 'Diabetes Talk for the Blind'
>>>> Subject: Re: [Diabetes-talk] Pumps
>>>> My hubby and I just upgraded to IPhones, and we really like them.
>> Truth
>>>> be told, I don't use half of what one can with it, but it is nice
>> just
>>>> the same, and it's pretty much fully accessible now. So I can do
>> pretty
>>>> much whatever my sighted friends and family do.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf
>>>> Of Bernadette Jacobs
>>>> Sent: Tuesday, February 19, 2013 9:01 AM
>>>> To: Diabetes Talk for the Blind
>>>> Subject: Re: [Diabetes-talk] Pumps
>>>> Hi Bridgit!!!
>>>> I do hope you can forgive me for steeling your phraseology here!!
>>>> "Funny, look at how many blind people use this fundamentally,
>> visually
>>>> orientated device, grin." They not only use it, but it is widely
>>>> recommended and praised for being the most widely used and most
>>>> accessible phone out there by the blind themselves. And, those
>>>> blind folks who don't have one, (including me), are salivating over
>> it--GOTTA
>>>> HAVE IT!!! And, I will!! Come June when I'm up for my upgrade!!!
>> Good
>>>> thing I don't have to worry about BG's salivating!!! LOL!!!
>>>> Bern
>>>> On 2/17/13, Bridgit Pollpeter <bpollpeter at hotmail.com> wrote:
>>>>> Yeah, I did a presentation on the IPhone when it first came out.
>> Apple
>>>>> initially refused to make it accessible stating it was,
>> "Fundamentally
>>>>> a visually orientated product," and essentially visually impaired
>>>>> people had no reason to want such a device. Funny, look at how
>>>>> many blind people use this fundamentally, visually orientated
>>>>> device,
>> grin.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf Of Mike Freeman
>>>>> Sent: Sunday, February 17, 2013 4:33 PM
>>>>> To: 'Diabetes Talk for the Blind'
>>>>> Subject: Re: [Diabetes-talk] Pumps
>>>>> Bridgit:
>>>>> The reason Apple introduced VoiceOver (ask Dr. Maurer if you doubt
>> me)
>>>>> was that it was made pretty clear that Apple would no longer be
>>>>> able to market to schools in Massachusetts unless they implemented
>>>>> accessibility. Since Macs in schools are a cash cow, Apple sort of
>>>>> woke up PDQ and began to pay attention to what we (NFB) were
saying.
>>>>> Before that, it was like punching a pillow -- plenty of good talk
>> but
>>>>> no action.
>>>>> In other words, the market rules all.
>>>>> Mike Freeman
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf Of Bridgit Pollpeter
>>>>> Sent: Sunday, February 17, 2013 2:22 PM
>>>>> To: 'Diabetes Talk for the Blind'
>>>>> Subject: Re: [Diabetes-talk] Pumps
>>>>> Agree. And I'm already crying about the loss of my Cosmo, sigh.
>>>>> Why can't the IPhone voice-over be a template for other companies
>>>>> including pumps? I mean, obviously they can't use the Apple
>> voice-over
>>>>> at least without paying a hefty price, but I'm sure some
>>>>> programmer can figure out a similar feature to be placed on a
pump.
>>>>> And like I said, it can be a feature you turn on and off so no
>>>>> special, separate pump is necessary. It an be a regular pump
>>>>> anyone can use with the option to turn on a voice-over like the
>>>>> IPhone and other Apple products.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf Of Veronica Elsea
>>>>> Sent: Sunday, February 17, 2013 3:39 PM
>>>>> To: 'Diabetes Talk for the Blind'
>>>>> Subject: Re: [Diabetes-talk] Pumps
>>>>> Kelly, I too am totally blind and am currently using a Cozmo. My
>>>>> warranty is just about to run out as well. Ummm, a bit of
>>>>> quivering going on here on the west coast! If I were sighted, I'd
>>>>> go for the T-slim, without a doubt because it actually does have
>>>>> many of the features my Cozmo has, like being able to set
>>>>> temporary basal rates
>> up
>>>>> to 72 hours. Yep! Doing that right now to accommodate a short
>>>>> stint with Prednisone. You are right that the Accuchek Spirit has
>>>>> the
>> beeps
>>>>> when something happens, the most audible feedback. Problem is that
>> we
>>>>> don't have access to the bells and whistles that modern pumps
have.
>>>>> Everything like storing insulin to carb ratios, and the things
>>>>> that today's smart pumps figure out for us used to reside on a PDA
>>>>> which isn't accessible to us. Now they do have a remote, but the
>>>>> one I looked at a couple of years ago didn't work because
>>>>> everything was wizards. And for me, the 20 questions approach to
>>>>> just munching a scone and coffee just doesn't cut it, not to
>>>>> mention isn't
>> accessible
>>>>> anyway. At this moment I definitely feel like I'm going to give up
>>>>> something when I change pumps and it has the feel of not getting
>> much
>>>>> extra in terms of things happening automatically. That was okay
>>>>> back in 1991 because that's how it was for everyone else too. But
>>>>> over these next two months, I'm going to revisit all the pumps,
>>>>> yes, even the touch-screen T-slim, just to see what it is like.
>>>>> And of course, what we're running into with things like iPhone
>>>>> connections is that any software has to be approved by the FDA and
>>>>> even now there is software that's been sitting on a shelf
>>>>> somewhere for years because they can't get through the backlog.
>>>>> And liability is not our friend here. Nobody wants to take on the
>>>>> possibility of being sued because their app read something wrong.
>>>>> It's a real shame in my personal opinion. Having said all of that,
>>>>> I do wish the Accuchek Spirit were as small and light-weight as
>>>>> the others. But I sure do intend to set up sessions with all of
>>>>> the different reps, likely shedding some
>> tears
>>>>> over the loss of my Cozmo, but ultimately arriving at some sort of
>>>>> solution that works for me. I'll be happy to share my experiences
>> with
>>>>> all of you along the way. And I haven't heard of anything coming
>> from
>>>>> J and J either. But hey, let the snooping begin. These companies
>>>>> all have offices out here so no harm in trying! Stay tuned!
>>>>> Veronica
>>>>> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes!
Yes!
>>>>> Yes! http://youtu.be/JvakJ5lk6Us Then find more music from
>>>>> Veronica Elsea and The Guide Dog Glee Club at:
>> http://www.laurelcreekmusic.com
>>>>> Veronica Elsea, Owner Laurel Creek Music Designs
>>>>> Santa Cruz, California
>>>>> Phone: 831-429-6407
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf Of Bridgit Pollpeter
>>>>> Sent: Sunday, February 17, 2013 12:56 PM
>>>>> To: 'Diabetes Talk for the Blind'
>>>>> Subject: Re: [Diabetes-talk] Pumps
>>>>> Kelly,
>>>>> I'm totally blind and use a Cosmo, but this brand is no longer
>>>>> available. I've played with the MedTronic and Animas Ping, and
>>>>> both are fairly simple to use. No pump on the market currrently
>>>>> will beep for every single function like the Cosmo, which is one
>>>>> of the
>> reasons
>>>>> I love it, but I have found the Animas to be the most similar to
>>>>> my Cosmo and plan to use this once my warrantee is up, which is
now.
>>>>> My advice is to get your hands on any pump your endo has available
>> and
>>>>> play around with it.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf Of Kelly Thornbury
>>>>> Sent: Sunday, February 17, 2013 2:06 PM
>>>>> To: diabetes-talk at nfbnet.org
>>>>> Subject: Re: [Diabetes-talk] Pumps
>>>>> I was on a pump back in the mid/late 90s when you could still buy
>>>>> pre-filled cartridges, and it was sight loss and blindness that
>>>>> sent me back to the pens.
>>>>> So, it looks like there are several pump users here, and I'm
>>>>> curious as to the models you use, and your vision level if you
>>>>> choose to
>> share
>>>>> as I'm now shopping for a new pump.
>>>>> So far, in talking to company reps, the Accu-Trend Spirit seems to
>> be
>>>>> the most "accessible," as it is one of the few pumps I've found
>> where
>>>>> every time you enter a menu the selector starts at the top of the
>>>>> menu. It also has the beeps and vibrations as you navigate menus
>>>>> and make selections.
>>>>> I looked at another, which I've forgotten the name of, which
>>>>> automatically primes and inserts the needle, and the "unit" is
>>>>> controlled entirely by a remote. I asked their tech support about
>> the
>>>>> possibility of a smartphone app to program and control the unit,
>>>>> but never heard anything back.
>>>>> Then, my doctor has been talking about a Johnson and Johnson pump
>>>>> supposedly up for FDA evaluation with speech capabilities. My
>>>>> doctor has seen pictures of the pump, but I lack the credentials
>>>>> to find
>> any
>>>>> information on it or it's progress. I know J&J was recently in
>> trouble
>>>>> with quality control, but I'm betting that now that the FDA has
>>>>> come down on them their quality control will be significantly
>>>>> improved...hopefully.
>>>>> So, any ideas on pumps and accessible features would be
appreciated.
>>>>> Thanks,
>>>>> Kelly
>>>>> _______________________________________________
>>>>> Diabetes-talk mailing list
>>>>> Diabetes-talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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>>>>> Diabetes-talk:
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>>>>> 40
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>>>>> Diabetes-talk:
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>> 0
>>>>> la
>>>>> urel
>>>>> creekmusic.com
>>>>> _______________________________________________
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>> 0la
>> urel
>>>> creekmusic.com
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>> --
>> --Dar
>> skype: dmgina23
>> FB: dmgina
>> www.twitter.com/dmgina
>> every saint has a past
>> every sinner has a future
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