[Diabetes-talk] Pumps
limestone lady
limestonelady at samobile.net
Fri Feb 22 07:48:44 UTC 2013
Having grown up blind, I have a problem with people who take the
attitude that blindness is a minor inconvenience, and not a disability.
To me, that's either a head in the sand attitude, or shame.
Blindness is no more of an inconvenience then is beeing black in the
segrigated south, or having to constantly go out of your way to find
something as necessary as a bathroom, because you're in a wheelchair.
Well, maybe the two of us just took the lid off of a boiling pot, but
in today's world, this isn't said often enough.
I'm sure
I could think of more to say, but I'll leave it at that.
Linda.
Original message:
> I'm a little reluctant to reply to this thread, but let's just put it this
> way. Some of us grew up in a time when common sense safety was not
> practiced. My worst "bump" was due to a P.E> coach insisting that I run
> cross countries (nothing wrong with that) without any guidance from someone
> who could see (a whole lot wrong with that). In 1962 in a little school
> district in W. Texas, they had no idea how to deal with a kid who just
> wanted an education better than the "broom academy" which was the Texas
> School for the Blind in those days. So, I ran those cross countries, but
> one day I was a bit late getting out the door and couldn't catch up to the
> rest of the crowd. So I wandered off the track and blew out my front teeth
> and a good chunk of my brain on a baseball backstop I ran into at full
> speed.
> So, while I fully support NFB's position that blindness is no excuse, I
> humbly submit that there are real world circumstances which put blind folks
> in positions which compromise our bodies. Concussions are a real risk, and
> we need to be aware of that.
> So, end of sermon. Everybody have a great evening and weekend.
> --Bob
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea
> Sent: Thursday, February 21, 2013 5:24 PM
> To: 'Diabetes Talk for the Blind'
> Subject: Re: [Diabetes-talk] Pumps
> Ah, sometimes there's a head smack that is nothing more than being blind and
> that's just the way it is. My best one was when I was out once using my
> cane. I smacked my head really hard on a corner of a sign that stuck out. No
> way I could have found that one with the cane. And by the way, you know what
> the sign said? No kidding! It said, stop ahead!
> But seriously I'm finding that as I'm getting older, the old sound location
> just isn't what it was when I was 20. So sometimes it is easier to think I'm
> clear of something only to discover that that half opened door or whatever
> was just waiting for me!
> And I've not seen any affect on my BG numbers from a short-term pain
> incident, but boy I have seen it from something that was more prolonged.
> So, have fun everyone and stay ahead of that diabetes! Hahahaha!
> Veronica
> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes! Yes!
> http://youtu.be/JvakJ5lk6Us
> Then find more music from Veronica Elsea and The Guide Dog Glee Club at:
> http://www.laurelcreekmusic.com
> Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Sandi Ryan
> Sent: Thursday, February 21, 2013 2:20 PM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] Pumps
> I've been blind all my life--totally blind. When I was a kid, I hit my head
> all the time! It's a good thing kids are resilient! But as I grew older, I
> learned to slow down just a touch, pay attention, and protect my head when I
> could. I agree that hitting our heads isn't a blind thing. It's more a
> lack of attention to our environment, I think.
> Sandi
> ----- Original Message -----
> From: "Bridgit Pollpeter" <bpollpeter at hotmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Sent: Thursday, February 21, 2013 2:08 PM
> Subject: Re: [Diabetes-talk] Pumps
> Ummm... I don't find that I hit my head more frequently now that I'm
> blind. I mean, everyone has an accident every-now-and-then, and
> certainly the lack of sight has put many of us in an annoying situation,
> but I still don't think blindness is truly the cause if we are careful
> and taking precautions like caning properly, or at home, keeping a hand
> in front of you or something while moving around.
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
> Of Robert Shelton
> Sent: Wednesday, February 20, 2013 9:20 PM
> To: 'Diabetes Talk for the Blind'
> Subject: Re: [Diabetes-talk] Pumps
> Dar. Are you sure you're OK? I've banged the old coconut more times
> than I can remember, and some of those were undiagnosed concussions.
> Here's a link.
> http://www.mayoclinic.com/health/concussion/DS00320/DSECTION=symptoms
> There is nothing I hate any more than banging my head, and that is just
> part of being a blind person. I try to be a lot more careful now.
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
> Of d m gina
> Sent: Wednesday, February 20, 2013 8:29 PM
> To: diabetes-talk at nfbnet.org
> Subject: Re: [Diabetes-talk] Pumps
> No what upset me is the wall is still standing. loll.
> I am not worried about it.
> Was just asking a question.
> Original message:
>> I think it would take a bigger hit than this to affect glucose levels.
>> Unless the bump is causing you undue stress, you probably have nothing
>> to worry about. Stress over health and health affecting us internally
>> is usually what will affect BG's and not bumps and bruises.
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of d m gina
>> Sent: Wednesday, February 20, 2013 7:40 PM
>> To: diabetes-talk at nfbnet.org
>> Subject: Re: [Diabetes-talk] Pumps
>> Ha
>> take good care of yourself?
>> Well now, I don't know if the sugars went up or down when I hit the
>> corner of a wall with my forehead.
>> it hurt so bad even the dog cried.
>> He didn't know what to do.
>> I sure have a goose over that one just above the eye.
>> Has anyone ever taken their sugar after a bump like that?
>> I know it has happened to all of us from time to time.
>> Good heavens.
>> Original message:
>>> Wow! A good time for all of us to stop and appreciate the people and
>>> things we have. And of course, don't forget to take good care of
>>> yourself during this time too. That's the diabetes connection here.
>>> <hug.> Veronica
>>> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes!
>>> Yes! http://youtu.be/JvakJ5lk6Us Then find more music from Veronica
>>> Elsea and The Guide Dog Glee Club at: http://www.laurelcreekmusic.com
>>> Veronica Elsea, Owner Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bernadette Jacobs
>>> Sent: Wednesday, February 20, 2013 6:38 AM
>>> To: Diabetes Talk for the Blind
>>> Subject: Re: [Diabetes-talk] Pumps
>>> Thanks for your condolences Veronica! I'm so glad the worst is all
>>> behind us now. Bill has truly greatly improved since the radiation
>>> was finished. He's got a little way to go, but he'll get there soon,
>>> I hope. Doc seems to believe he'll have full recovery in six months
>>> or so, which would put it about Juneish. We're hoping he'll be up to
>>> our annual trip back to WI in August. But, if he's not... Oh well...
>>> I'm just glad to have him back, if you know what I mean.
>>> Bern
>>> On 2/19/13, Veronica Elsea <veronica at laurelcreekmusic.com> wrote:
>>>> Yeah, most of the time I really love my iPhone, except for those
>>> occasional
>>>> moments when I want to toss the thing in the bay. <grin.> But given
>>>> my previous experiences with Prismo, man I'd hate to mess with that
>>>> app every time I wanted to read a number from a meter. I did have
>>>> some success getting the KNFB reader on my Nokia phone to read the
>>>> Animas Ping. But to make it
>>> a
>>>> reasonable process, one would really need to build a stand that
> would
>>>> line things up just perfectly. The other issue is that with many of
>>>> these apps, they can get pretty fussy about the light being just
>>>> right. But this week, I started using a mobile credit card reader
> for
>>>> my business on my phone. So come FDA and companies! Hand over tha
>>>> pump remote app!
>>> Now!
>>>> <laughing!>
>>>> Thanks everyone for these great discussions. And just for the
> record,
>>>> I'm not perfect either! Hahahaha! All of us are doing the best we
> can
>>>> with
>>> what
>>>> we've got. Sorry about that scare, Bern. Oh I just can't imagine the
>>> horror
>>>> of a night like that myself. Hugs to everyone!
>>>> Veronica
>>>> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes!
>>>> Yes! http://youtu.be/JvakJ5lk6Us Then find more music from Veronica
>>>> Elsea and The Guide Dog Glee Club at:
> http://www.laurelcreekmusic.com
>>>> Veronica Elsea, Owner
>>>> Laurel Creek Music Designs
>>>> Santa Cruz, California
>>>> Phone: 831-429-6407
>>>> -----Original Message-----
>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of
>>>> Bridgit Pollpeter
>>>> Sent: Tuesday, February 19, 2013 7:47 AM
>>>> To: 'Diabetes Talk for the Blind'
>>>> Subject: Re: [Diabetes-talk] Pumps
>>>> My hubby and I just upgraded to IPhones, and we really like them.
>> Truth
>>>> be told, I don't use half of what one can with it, but it is nice
>> just
>>>> the same, and it's pretty much fully accessible now. So I can do
>> pretty
>>>> much whatever my sighted friends and family do.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf
>>>> Of Bernadette Jacobs
>>>> Sent: Tuesday, February 19, 2013 9:01 AM
>>>> To: Diabetes Talk for the Blind
>>>> Subject: Re: [Diabetes-talk] Pumps
>>>> Hi Bridgit!!!
>>>> I do hope you can forgive me for steeling your phraseology here!!
>>>> "Funny, look at how many blind people use this fundamentally,
>> visually
>>>> orientated device, grin." They not only use it, but it is widely
>>>> recommended and praised for being the most widely used and most
>>>> accessible phone out there by the blind themselves. And, those
> blind
>>>> folks who don't have one, (including me), are salivating over
>> it--GOTTA
>>>> HAVE IT!!! And, I will!! Come June when I'm up for my upgrade!!!
>> Good
>>>> thing I don't have to worry about BG's salivating!!! LOL!!!
>>>> Bern
>>>> On 2/17/13, Bridgit Pollpeter <bpollpeter at hotmail.com> wrote:
>>>>> Yeah, I did a presentation on the IPhone when it first came out.
>> Apple
>>>>> initially refused to make it accessible stating it was,
>> "Fundamentally
>>>>> a visually orientated product," and essentially visually impaired
>>>>> people had no reason to want such a device. Funny, look at how many
>>>>> blind people use this fundamentally, visually orientated device,
>> grin.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf Of Mike Freeman
>>>>> Sent: Sunday, February 17, 2013 4:33 PM
>>>>> To: 'Diabetes Talk for the Blind'
>>>>> Subject: Re: [Diabetes-talk] Pumps
>>>>> Bridgit:
>>>>> The reason Apple introduced VoiceOver (ask Dr. Maurer if you doubt
>> me)
>>>>> was that it was made pretty clear that Apple would no longer be
> able
>>>>> to market to schools in Massachusetts unless they implemented
>>>>> accessibility. Since Macs in schools are a cash cow, Apple sort of
>>>>> woke up PDQ and began to pay attention to what we (NFB) were
> saying.
>>>>> Before that, it was like punching a pillow -- plenty of good talk
>> but
>>>>> no action.
>>>>> In other words, the market rules all.
>>>>> Mike Freeman
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf Of Bridgit Pollpeter
>>>>> Sent: Sunday, February 17, 2013 2:22 PM
>>>>> To: 'Diabetes Talk for the Blind'
>>>>> Subject: Re: [Diabetes-talk] Pumps
>>>>> Agree. And I'm already crying about the loss of my Cosmo, sigh.
>>>>> Why can't the IPhone voice-over be a template for other companies
>>>>> including pumps? I mean, obviously they can't use the Apple
>> voice-over
>>>>> at least without paying a hefty price, but I'm sure some programmer
>>>>> can figure out a similar feature to be placed on a pump.
>>>>> And like I said, it can be a feature you turn on and off so no
>>>>> special, separate pump is necessary. It an be a regular pump anyone
>>>>> can use with the option to turn on a voice-over like the IPhone and
>>>>> other Apple products.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf Of Veronica Elsea
>>>>> Sent: Sunday, February 17, 2013 3:39 PM
>>>>> To: 'Diabetes Talk for the Blind'
>>>>> Subject: Re: [Diabetes-talk] Pumps
>>>>> Kelly, I too am totally blind and am currently using a Cozmo. My
>>>>> warranty is just about to run out as well. Ummm, a bit of quivering
>>>>> going on here on the west coast! If I were sighted, I'd go for the
>>>>> T-slim, without a doubt because it actually does have many of the
>>>>> features my Cozmo has, like being able to set temporary basal rates
>> up
>>>>> to 72 hours. Yep! Doing that right now to accommodate a short stint
>>>>> with Prednisone. You are right that the Accuchek Spirit has the
>> beeps
>>>>> when something happens, the most audible feedback. Problem is that
>> we
>>>>> don't have access to the bells and whistles that modern pumps have.
>>>>> Everything like storing insulin to carb ratios, and the things that
>>>>> today's smart pumps figure out for us used to reside on a PDA which
>>>>> isn't accessible to us. Now they do have a remote, but the one I
>>>>> looked at a couple of years ago didn't work because everything was
>>>>> wizards. And for me, the 20 questions approach to just munching a
>>>>> scone and coffee just doesn't cut it, not to mention isn't
>> accessible
>>>>> anyway. At this moment I definitely feel like I'm going to give up
>>>>> something when I change pumps and it has the feel of not getting
>> much
>>>>> extra in terms of things happening automatically. That was okay
> back
>>>>> in 1991 because that's how it was for everyone else too. But over
>>>>> these next two months, I'm going to revisit all the pumps, yes,
> even
>>>>> the touch-screen T-slim, just to see what it is like. And of
> course,
>>>>> what we're running into with things like iPhone connections is that
>>>>> any software has to be approved by the FDA and even now there is
>>>>> software that's been sitting on a shelf somewhere for years because
>>>>> they can't get through the backlog. And liability is not our friend
>>>>> here. Nobody wants to take on the possibility of being sued because
>>>>> their app read something wrong. It's a real shame in my personal
>>>>> opinion. Having said all of that, I do wish the Accuchek Spirit
> were
>>>>> as small and light-weight as the others. But I sure do intend to
> set
>>>>> up sessions with all of the different reps, likely shedding some
>> tears
>>>>> over the loss of my Cozmo, but ultimately arriving at some sort of
>>>>> solution that works for me. I'll be happy to share my experiences
>> with
>>>>> all of you along the way. And I haven't heard of anything coming
>> from
>>>>> J and J either. But hey, let the snooping begin. These companies
> all
>>>>> have offices out here so no harm in trying! Stay tuned!
>>>>> Veronica
>>>>> Watch the video as The Guide Dog Glee Club sings "Rehab!" Yes! Yes!
>>>>> Yes! http://youtu.be/JvakJ5lk6Us Then find more music from Veronica
>>>>> Elsea and The Guide Dog Glee Club at:
>> http://www.laurelcreekmusic.com
>>>>> Veronica Elsea, Owner
>>>>> Laurel Creek Music Designs
>>>>> Santa Cruz, California
>>>>> Phone: 831-429-6407
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf Of Bridgit Pollpeter
>>>>> Sent: Sunday, February 17, 2013 12:56 PM
>>>>> To: 'Diabetes Talk for the Blind'
>>>>> Subject: Re: [Diabetes-talk] Pumps
>>>>> Kelly,
>>>>> I'm totally blind and use a Cosmo, but this brand is no longer
>>>>> available. I've played with the MedTronic and Animas Ping, and both
>>>>> are fairly simple to use. No pump on the market currrently will
> beep
>>>>> for every single function like the Cosmo, which is one of the
>> reasons
>>>>> I love it, but I have found the Animas to be the most similar to my
>>>>> Cosmo and plan to use this once my warrantee is up, which is now.
>>>>> My advice is to get your hands on any pump your endo has available
>> and
>>>>> play around with it.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf Of Kelly Thornbury
>>>>> Sent: Sunday, February 17, 2013 2:06 PM
>>>>> To: diabetes-talk at nfbnet.org
>>>>> Subject: Re: [Diabetes-talk] Pumps
>>>>> I was on a pump back in the mid/late 90s when you could still buy
>>>>> pre-filled cartridges, and it was sight loss and blindness that
> sent
>>>>> me back to the pens.
>>>>> So, it looks like there are several pump users here, and I'm
> curious
>>>>> as to the models you use, and your vision level if you choose to
>> share
>>>>> as I'm now shopping for a new pump.
>>>>> So far, in talking to company reps, the Accu-Trend Spirit seems to
>> be
>>>>> the most "accessible," as it is one of the few pumps I've found
>> where
>>>>> every time you enter a menu the selector starts at the top of the
>>>>> menu. It also has the beeps and vibrations as you navigate menus
> and
>>>>> make selections.
>>>>> I looked at another, which I've forgotten the name of, which
>>>>> automatically primes and inserts the needle, and the "unit" is
>>>>> controlled entirely by a remote. I asked their tech support about
>> the
>>>>> possibility of a smartphone app to program and control the unit,
> but
>>>>> never heard anything back.
>>>>> Then, my doctor has been talking about a Johnson and Johnson pump
>>>>> supposedly up for FDA evaluation with speech capabilities. My
> doctor
>>>>> has seen pictures of the pump, but I lack the credentials to find
>> any
>>>>> information on it or it's progress. I know J&J was recently in
>> trouble
>>>>> with quality control, but I'm betting that now that the FDA has
> come
>>>>> down on them their quality control will be significantly
>>>>> improved...hopefully.
>>>>> So, any ideas on pumps and accessible features would be
> appreciated.
>>>>> Thanks,
>>>>> Kelly
>>>>> _______________________________________________
>>>>> Diabetes-talk mailing list
>>>>> Diabetes-talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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>>>>> Diabetes-talk:
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>>>>> Diabetes-talk:
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>>>>> la
>>>>> urel
>>>>> creekmusic.com
>>>>> _______________________________________________
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>> urel
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>> 0gma
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>> --
>> --Dar
>> skype: dmgina23
>> FB: dmgina
>> www.twitter.com/dmgina
>> every saint has a past
>> every sinner has a future
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> skype: dmgina23
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