[Diabetes-talk] Diabetes resolution

Tue Nov 19 22:00:07 UTC 2013

Hi Veronica,

As Dr. Maurer said it to us at the Iowa convention, passing the resolutions 
in the states is a good start toward getting one passed at the national 
convention.  Then he can step into the fray and meet with pharmaceutical 
companies and the others mentioned in the resolutions, along with us, to try 
to get them to do what the resolution says.  So states passing the 
resolutions is the beginning.

Sandi

----- Original Message ----- 
From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Sent: Tuesday, November 19, 2013 3:15 PM
Subject: Re: [Diabetes-talk] Diabetes resolution

Please forgive my question but maybe it's just because I'm having a really
difficult time of it right now. I agree these resolutions are great in a
way. Now the rest of the affiliate knows what we need. But then what? If the
world jumped every time we passed some resolution at a convention, we'd have
all sorts of cool things by now. So what happens with the resolutions? How
does this turn into pressure on someone to do something? Just wondering lest
we start congratulating ourselves too soon.
Like I said, don't mean to be a downer, really I don't. Just wondering,
that's all. Thanks.
Veronica

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-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Cindy Ray
Sent: Tuesday, November 19, 2013 12:26 PM
To: Jerry Hathaway; Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] Diabetes resolution

Wow, that is truly awesome. Good work on that resolution and
congratulations.

Cindy Lou

On Nov 19, 2013, at 1:55 PM, Jerry Hathaway <jerry.hathaway2 at frontier.com>
wrote:

> The NFB of Oregon passed a resolution
> at our state convention on November 3, 2013 Regarding Advocacy to Make
Diabetes Tools and Technology Accessible to the Blind. The resolution is
listed below.
>
>
>
> Resolution 2013-01  Regarding Diabetes
>
>
>
> Regarding Advocacy to Make Diabetes Tools and Technology Accessible to the
Blind
>
>
>
> WHEREAS, The National Federation of the Blind has, since 1940, championed
the independence of the blind and worked to make the world accessible to and
safe for the blind; and
>
>
>
> WHEREAS, to help increase the independence of blind people, the National
Federation of the Blind has fought to make technology, readily available to
the sighted, accessible for the blind; and
>
>
>
> WHEREAS, according to the National Eye Institute (NEI) of the National
Institutes of Health (NIH), diabetic retinopathy is the most common cause of
blindness, affecting 4.1 million American adults over age 40, and
>
>
>
> WHEREAS, very little technology currently on the market for constantly or
periodically monitoring blood glucose, accurately delivering insulin, or
performing other tasks to control diabetes is accessible to the blind, and
insulin pens carry a disclaimer that they should not be used by the blind
without supervision; and
>
>
>
> WHEREAS, technology has been demonstrated to increase diabetes control in
the sighted, and the same technology, made accessible to the blind would
improve diabetes control among blind and visually impaired diabetics, and
increase independence in maintaining such control; and
>
>
>
> WHEREAS, the need for improved accessibility of lifesaving diabetes
technology has been largely overlooked: Now, therefore,
>
>
>
> BE IT RESOLVED by the National Federation of the Blind of Oregon in
convention assembled this 3rd day of November, 2013, in the city of Salem,
Oregon, that the National Federation of the Blind of Oregon and its Diabetes
Action Network division work closely with companies developing pens, pumps,
glucometers, and other lifesaving diabetes control tools and technology to
integrate accessibility for the blind and deaf-blind into the design and
manufacture of such items; and
>
>
>
> BE IT FURTHER RESOLVED that the National Federation of the Blind of Oregon
enlist the support of the American Diabetes Association, the American
Association of Retired Persons, the American Association of Clinical
Endocrinologists, and the Center for Medicare and Medicaid Services to
establish and implement accessibility standards for diabetes technology; and
>
>
>
> BE IT FURTHER RESOLVED that the National Federation of the Blind of Oregon
urge manufacturers of technology that provides information to the blind and
deaf-blind about diabetes management to recognize that creating technology
useful only to the sighted creates a circumstance that discriminates against
the blind and deaf-blind, and urge such manufacturers further to recognize
that the blind and deaf-blind of Oregon will join with other blind and
deaf-blind people throughout the nation to take such action as may be
necessary to end this discrimination; and
>
>
>
> BE IT FURTHER RESOLVED that the Diabetes Action Network of the National
Federation of the blind of Oregon publicize widely the inaccessibility of
diabetes tools and technology as they are currently marketed, and the
unnecessary hardship their inaccessibility creates in the lives of blind and
deaf-blind diabetics.
>
>
>
> Jerry
>
>
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