[Diabetes-talk] Diabetes-talk Digest, Vol 79, Issue 1
Dawn
dlanting at bex.net
Sun Feb 2 03:58:16 UTC 2014
I am a totally blind diabetic I test four to five times a day I take six
shots a day long lasting insulin and fast acting insulin but I really
tought yur question was odd being blind or with sight it shouldn't mater
if you should test you do what our doctor tells you to do there are
machines for the blind so that is my experience
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
diabetes-talk-request at nfbnet.org
Sent: Saturday, February 01, 2014 7:00 AM
To: diabetes-talk at nfbnet.org
Subject: Diabetes-talk Digest, Vol 79, Issue 1
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Today's Topics:
1. A quick question about testing (Tom And Eileen Rivera Ley)
2. Re: A quick question about testing (Star Gazer)
3. Re: A quick question about testing (Dean Masters)
4. Re: A quick question about testing (d m gina)
5. Re: A quick question about testing (Mike Freeman)
6. Re: iBGStar (eileen scrivani)
7. Re: iBGStar (Star Gazer)
8. Re: iBGStar (eileen scrivani)
9. Re: A quick question about testing (Joy Stigile)
10. Re: A quick question about testing (Veronica Elsea)
11. Re: A quick question about testing (Dorothea Martin)
----------------------------------------------------------------------
Message: 1
Date: Fri, 31 Jan 2014 08:01:14 -0500
From: Tom And Eileen Rivera Ley <riveraley at verizon.net>
To: "diabetes-talk at nfbnet.org" <diabetes-talk at nfbnet.org>
Subject: [Diabetes-talk] A quick question about testing
Message-ID: <7AB272CF-5E9C-4207-BCA1-A30B234A970E at verizon.net>
Content-Type: text/plain; charset=us-ascii
Question: how often do blind and visually disabled people with diabetes test
glucose each day? More, less, or as often as our sighted peers? I'd love
to know your experience.
Eileen Rivera Ley
Baltimore, MD
> On Jan 31, 2014, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
>
> Send Diabetes-talk mailing list submissions to
> diabetes-talk at nfbnet.org
>
> To subscribe or unsubscribe via the World Wide Web, visit
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
> diabetes-talk-request at nfbnet.org
>
> You can reach the person managing the list at
> diabetes-talk-owner at nfbnet.org
>
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of Diabetes-talk digest..."
>
>
> Today's Topics:
>
> 1. Re: iBGStar (Star Gazer)
> 2. {Disarmed} Fw: DrMirkin's eZine: Exercise's effect on blood
> sugar, fish oil, more . . . (Dean Masters)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Thu, 30 Jan 2014 09:18:39 -0500
> From: "Star Gazer" <pickrellrebecca at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-talk] iBGStar
> Message-ID: <00ab01cf1dc6$2cb08610$86119230$@gmail.com>
> Content-Type: text/plain; charset="us-ascii"
>
> Eileen, your post interests me.
> I use Prodigy Voice, and I always thought when it said "blood glucose
level
> low" that the glucose was indeed low. Am I incorrect in this? I've gotten
> the "not enough blood" error, and I always took that to mean a different
> error.
> When it says "blood glucose low" I normally have other symptoms.
>
>
------------------------------
Message: 2
Date: Fri, 31 Jan 2014 08:23:16 -0500
From: "Star Gazer" <pickrellrebecca at gmail.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-talk] A quick question about testing
Message-ID: <025c01cf1e87$99deafc0$cd9c0f40$@gmail.com>
Content-Type: text/plain; charset="us-ascii"
Wouldn't it depend way more on other factors, the type of diabetes, and how
you're feeling?
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Tom And Eileen Rivera Ley
Sent: Friday, January 31, 2014 8:01 AM
To: diabetes-talk at nfbnet.org
Subject: [Diabetes-talk] A quick question about testing
Question: how often do blind and visually disabled people with diabetes test
glucose each day? More, less, or as often as our sighted peers? I'd love
to know your experience.
Eileen Rivera Ley
Baltimore, MD
> On Jan 31, 2014, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
>
> Send Diabetes-talk mailing list submissions to
> diabetes-talk at nfbnet.org
>
> To subscribe or unsubscribe via the World Wide Web, visit
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
> diabetes-talk-request at nfbnet.org
>
> You can reach the person managing the list at
> diabetes-talk-owner at nfbnet.org
>
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of Diabetes-talk digest..."
>
>
> Today's Topics:
>
> 1. Re: iBGStar (Star Gazer)
> 2. {Disarmed} Fw: DrMirkin's eZine: Exercise's effect on blood
> sugar, fish oil, more . . . (Dean Masters)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Thu, 30 Jan 2014 09:18:39 -0500
> From: "Star Gazer" <pickrellrebecca at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-talk] iBGStar
> Message-ID: <00ab01cf1dc6$2cb08610$86119230$@gmail.com>
> Content-Type: text/plain; charset="us-ascii"
>
> Eileen, your post interests me.
> I use Prodigy Voice, and I always thought when it said "blood glucose
> level low" that the glucose was indeed low. Am I incorrect in this?
> I've gotten the "not enough blood" error, and I always took that to
> mean a different error.
> When it says "blood glucose low" I normally have other symptoms.
>
>
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0gmail.com
------------------------------
Message: 3
Date: Fri, 31 Jan 2014 09:33:16 -0500
From: "Dean Masters" <dwmasters15 at gmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-talk] A quick question about testing
Message-ID: <58F0C1B02E614D9BBDD9CEC8B7600976 at MastersPC>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=original
I would guess it depends on if you take insulin or not and also what your
doctor tells you to do.
Dean
-----Original Message-----
From: Tom And Eileen Rivera Ley
Sent: Friday, January 31, 2014 8:01 AM
To: diabetes-talk at nfbnet.org
Subject: [Diabetes-talk] A quick question about testing
Question: how often do blind and visually disabled people with diabetes test
glucose each day? More, less, or as often as our sighted peers? I'd love
to know your experience.
Eileen Rivera Ley
Baltimore, MD
> On Jan 31, 2014, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
>
> Send Diabetes-talk mailing list submissions to
> diabetes-talk at nfbnet.org
>
> To subscribe or unsubscribe via the World Wide Web, visit
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
> diabetes-talk-request at nfbnet.org
>
> You can reach the person managing the list at
> diabetes-talk-owner at nfbnet.org
>
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of Diabetes-talk digest..."
>
>
> Today's Topics:
>
> 1. Re: iBGStar (Star Gazer)
> 2. {Disarmed} Fw: DrMirkin's eZine: Exercise's effect on blood
> sugar, fish oil, more . . . (Dean Masters)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Thu, 30 Jan 2014 09:18:39 -0500
> From: "Star Gazer" <pickrellrebecca at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-talk] iBGStar
> Message-ID: <00ab01cf1dc6$2cb08610$86119230$@gmail.com>
> Content-Type: text/plain; charset="us-ascii"
>
> Eileen, your post interests me.
> I use Prodigy Voice, and I always thought when it said "blood glucose
> level
> low" that the glucose was indeed low. Am I incorrect in this? I've gotten
> the "not enough blood" error, and I always took that to mean a different
> error.
> When it says "blood glucose low" I normally have other symptoms.
>
>
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il.com
------------------------------
Message: 4
Date: Fri, 31 Jan 2014 10:21:20 -0500
From: d m gina <dmgina at samobile.net>
To: diabetes-talk at nfbnet.org
Subject: Re: [Diabetes-talk] A quick question about testing
Message-ID: a00fb245-eb6a-4d26-9e9d-900af1c821ba at samobile.net
Content-Type: text/plain; charset="us-ascii"; format="flowed"
I never thought of it against sighted piers.
I try to test three times a day more if needed
Original message:
> Question: how often do blind and visually disabled people with diabetes
> test glucose each day? More, less, or as often as our sighted peers?
> I'd love to know your experience.
> Eileen Rivera Ley
> Baltimore, MD
>> On Jan 31, 2014, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
>> Send Diabetes-talk mailing list submissions to
>> diabetes-talk at nfbnet.org
>> To subscribe or unsubscribe via the World Wide Web, visit
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>> diabetes-talk-request at nfbnet.org
>> You can reach the person managing the list at
>> diabetes-talk-owner at nfbnet.org
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of Diabetes-talk digest..."
>> Today's Topics:
>> 1. Re: iBGStar (Star Gazer)
>> 2. {Disarmed} Fw: DrMirkin's eZine: Exercise's effect on blood
>> sugar, fish oil, more . . . (Dean Masters)
>> ----------------------------------------------------------------------
>> Message: 1
>> Date: Thu, 30 Jan 2014 09:18:39 -0500
>> From: "Star Gazer" <pickrellrebecca at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-talk] iBGStar
>> Message-ID: <00ab01cf1dc6$2cb08610$86119230$@gmail.com>
>> Content-Type: text/plain; charset="us-ascii"
>> Eileen, your post interests me.
>> I use Prodigy Voice, and I always thought when it said "blood glucose
level
>> low" that the glucose was indeed low. Am I incorrect in this? I've
gotten
>> the "not enough blood" error, and I always took that to mean a different
>> error.
>> When it says "blood glucose low" I normally have other symptoms.
> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40samobile
.net
--
--Dar
skype: dmgina23
FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
------------------------------
Message: 5
Date: Fri, 31 Jan 2014 11:12:12 -0500
From: Mike Freeman <k7uij at panix.com>
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-talk] A quick question about testing
Message-ID: <A21E2952-BB86-40E1-B088-811C9FC449FA at panix.com>
Content-Type: text/plain; charset=us-ascii
Hi, Eileen!
I test four times per day with an occasional test two hours after a meal.
Mike Freeman
sent from my iPhone
> On Jan 31, 2014, at 8:01, Tom And Eileen Rivera Ley
<riveraley at verizon.net> wrote:
>
> Question: how often do blind and visually disabled people with diabetes
test glucose each day? More, less, or as often as our sighted peers? I'd
love to know your experience.
>
> Eileen Rivera Ley
> Baltimore, MD
>
>
>> On Jan 31, 2014, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
>>
>> Send Diabetes-talk mailing list submissions to
>> diabetes-talk at nfbnet.org
>>
>> To subscribe or unsubscribe via the World Wide Web, visit
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>> diabetes-talk-request at nfbnet.org
>>
>> You can reach the person managing the list at
>> diabetes-talk-owner at nfbnet.org
>>
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of Diabetes-talk digest..."
>>
>>
>> Today's Topics:
>>
>> 1. Re: iBGStar (Star Gazer)
>> 2. {Disarmed} Fw: DrMirkin's eZine: Exercise's effect on blood
>> sugar, fish oil, more . . . (Dean Masters)
>>
>>
>> ----------------------------------------------------------------------
>>
>> Message: 1
>> Date: Thu, 30 Jan 2014 09:18:39 -0500
>> From: "Star Gazer" <pickrellrebecca at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-talk] iBGStar
>> Message-ID: <00ab01cf1dc6$2cb08610$86119230$@gmail.com>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> Eileen, your post interests me.
>> I use Prodigy Voice, and I always thought when it said "blood glucose
level
>> low" that the glucose was indeed low. Am I incorrect in this? I've
gotten
>> the "not enough blood" error, and I always took that to mean a different
>> error.
>> When it says "blood glucose low" I normally have other symptoms.
>
> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
Diabetes-talk:
>
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------------------------------
Message: 6
Date: Fri, 31 Jan 2014 16:28:45 -0500
From: "eileen scrivani" <etscrivani at verizon.net>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-talk] iBGStar
Message-ID: <BD74CC67437045DD858747B4F8E12474 at eileen>
Content-Type: text/plain; format=flowed; charset=iso-8859-1;
reply-type=original
When a meter tells you "to low" that's a really low number like 20 or less.
I forget what the "to low" value is, but we understand that 20 is a
dangerous place to be in. And when a meter indicates we're "to low" we
should if we feel like we are running low go and instantly get juice or the
glucose tabs. So if you feel that you are to low with symptoms then I would
believe the meter.
My issue is that I feel totally fine with not a single symptom, no shaking,
no heart racing, no sweating, no disorientation of thoughts. In my case, I
question the meter when it tells me "to low" when I feel completely fine.
If I felt like I was running low with symptoms, then I would believe what
the meter is telling me.
-----Original Message-----
From: Star Gazer
Sent: Thursday, January 30, 2014 9:18 AM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] iBGStar
Eileen, your post interests me.
I use Prodigy Voice, and I always thought when it said "blood glucose level
low" that the glucose was indeed low. Am I incorrect in this? I've gotten
the "not enough blood" error, and I always took that to mean a different
error.
When it says "blood glucose low" I normally have other symptoms.
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
eileen scrivani
Sent: Thursday, January 23, 2014 4:16 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
I am unhappy with either the number of finger sticks or the number of strips
I have to use in one testing to get a result that;
A. I believe, or.
B. Is an actual number other than "no sufficient blood" or "result to low".
I think I've been doing this long enough to know how to get a "good" sample
for a test (not usually poor bleeder except for freezing cold) and I think
it is the strips. Not that the strips are a bad lot, it is only my
suspicion that it has become an issue with the manufacturing process that
the companies of these things are going for too little blood in too short a
time and the end result is what I think are inaccurate results. Sorry, I
don't care what they have to say or argue their point of how good their
products are I no longer believe it because I'm doing many multiple times a
day and for a poor, no nothing blind person, I think I have a pretty good
idea of what the problem is, but no one is listening or even getting the
wheels in their heads turning thinking, "hmm, maybe the people who are using
our product on a daily basis know something and we should look into our
product."
I have had people watch me do the testing and know I'm going about the
correct way. I do warm water washing prior to finger sticks, go through the
shaking/rubbing of the hand/fingers, get a good droplet for a test and still
get crazy numbers. And, yes, I've was sticking on the sides of my fingers,
and holding the meter to my finger so the strip touches where the blood is.
I moisturize hands to prevent tough skin, I change the batteries regularly
too. I am made to feel like I am the one held up under a microscope that it
"has" to be my fault because I'm blind, but if I ask questions about the
strips or a meter it seems to always turn into its something wrong I'm
doing. But from my diabetic team who has observed me, I'm not doing it
incorrectly.
For me, the proof in something not being on target is when I get my A1C
(average done) but what I anticipate the average to be around is usually not
in any line with majority of test results from home meter. Last year when I
still had the Solo have to say things were good and I was very happy with
home testing and A1C's. Not the case with the Solus V2.
I used to use the Prodigey and while I did not have to run multiple tests,
it gave me numbers that led me to think my control was fine and dandy.
Again, when I'd get my
A1C done it was not fine and dandy. So, where could the problem have een?
-- at that time and I'm not sure if its changed the prodigey did not say if
there was not enough of a blood sample, it just threw out a number.
So I'm turned off to it as well and don't want to go back.
I'm not looking for explanations of the manufacturing of strips or meters, I
am disgusted and just hope to find something newer, and accurate that will
be covered by my insurance.
Eileen
-----Original Message-----
From: Mike Freeman
Sent: Thursday, January 23, 2014 2:24 PM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] iBGStar
Eileen:
What has caused you to become disillusioned with the Solus V2?Just curious.
And you speak truth re the medical device companies (even if no one here
wants to admit it). What we need IMO is legislation. Wonder how far we'd get
at the state level?
Mike
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
eileen scrivani
Sent: Thursday, January 23, 2014 10:58 AM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
Hi Gregory,
Just wondering if you are using the IBG meter as a totally blind person or
with some level of vision? I am tempted to give it a try since I'm getting
a bit fed up with the Solus and had in the past used Prodigey and not
terribly impressed with that one either.
I believe it is the way of all these medical/pharmaceuticle type companies
not to respond to any input or suggestions on improvements. I have been
pump shopping and with all the companies I have talked with, none can tell
me why they don't, can't, won't build in any level of better accessibility
for those diabetics who have lost vision. When I ask the reps if they have
any input with higher ups in their companies the standard response to that
runs along the lines of "I don't get paid enough," or "I'm the low man on
the ...." It is a very discouraging situation.
Eileen
-----Original Message-----
From: Gregory D. Rosenberg
Sent: Thursday, January 23, 2014 12:54 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
Good morning everyone,
I bought an iBGStar shortly after it came to market. It works OK and is
fairly accessible. They have some room for improvement. I have big hands and
their strips are smaller than most. So when I drop on on the kitchen table
it is a bit harder to pick up. As a software developer I have higher
expectations than many other users since I know in my mind how would would
have coded their app. It is a little better than good. I have sent them
feedback, but have not received any reply to my emails showing interest on
their part.
On Jan 22, 2014, at 22:24 CST, Mike Freeman <k7uij at panix.com> wrote:
> An update:
>
>
>
> I hadn't looked at the iBGStar app from Sanofi-Aventis since early
> this fall. An update was released in December, 2013, which resolved a
> bunch of problems such that the app would work with iOS versions from
> 3 on and iPhones from the 3GS to the iPhone 5C and 5S. Although I
> haven't read clear through the documentation yet and won't get a
> chance to do so until after Washington Seminar, it appears that this
> version of the app, though awkward (one must double-tap buttons
> labeled with numbers to enter values), is accessible using VoiceOver.
> This is a vast improvement on the version of the app Veronica Elsea
> and I tested early this past fall. So when I get back from DC, I may
> purchase the meter and some test strips and give the app a go.
>
>
>
> One can enter bg readings, insulin and carbs into the app's database
> using these number buttons, as I say, though exactly how it all fits
> together won't be clear to me until I read through the documentation.
>
>
>
> Some cautions: it is not clear to me that a blind person can set up
> the meter that talks to the iBGStar app independently, i.e., set its
> date/time, pair up the Bluetooth connection with the iPhone, etc. I do
> not immediately see a way to do any of this from the iPhone app and
> this makes sense; the app only works with the meter once the iPhone is
> paired with it.
>
>
>
> This isn't exactly an accessible insulin pump but it has some
> possibilities for Alan although, as I say, I'd bet the meter itself
> could not be set up by a blind person which would negate the
> usefulness of the system unless one wished to use the iBGStar app only
> to record one's log.
>
>
>
> Mike Freeman
>
>
>
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P.S. Text the word BLIND to 85944 to donate $10 to the NFB Imagination Fund
via your phone bill.
--
73' & 75'
Gregory D. Rosenberg AB9MZ
gregg at ricis.com
RICIS, Inc.
7849 Bristol Park Drive
Tinley Park, IL 60477-4594
http://www.ricis.com
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------------------------------
Message: 7
Date: Fri, 31 Jan 2014 17:58:10 -0500
From: "Star Gazer" <pickrellrebecca at gmail.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-talk] iBGStar
Message-ID: <020b01cf1ed7$e9ed7910$bdc86b30$@gmail.com>
Content-Type: text/plain; charset="us-ascii"
Thank you. This is very helpful. In my case, I deffinately feel symptoms
when the meter says "blood glucose level low".
I feel these symptoms before I test so I don't think I'm cooking the data.
Does anybody know what number Prodigy Voice bottoms out at? Mine seems to
bottom out at 30.
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
eileen scrivani
Sent: Friday, January 31, 2014 4:29 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
When a meter tells you "to low" that's a really low number like 20 or less.
I forget what the "to low" value is, but we understand that 20 is a
dangerous place to be in. And when a meter indicates we're "to low" we
should if we feel like we are running low go and instantly get juice or the
glucose tabs. So if you feel that you are to low with symptoms then I would
believe the meter.
My issue is that I feel totally fine with not a single symptom, no shaking,
no heart racing, no sweating, no disorientation of thoughts. In my case, I
question the meter when it tells me "to low" when I feel completely fine.
If I felt like I was running low with symptoms, then I would believe what
the meter is telling me.
-----Original Message-----
From: Star Gazer
Sent: Thursday, January 30, 2014 9:18 AM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] iBGStar
Eileen, your post interests me.
I use Prodigy Voice, and I always thought when it said "blood glucose level
low" that the glucose was indeed low. Am I incorrect in this? I've gotten
the "not enough blood" error, and I always took that to mean a different
error.
When it says "blood glucose low" I normally have other symptoms.
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
eileen scrivani
Sent: Thursday, January 23, 2014 4:16 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
I am unhappy with either the number of finger sticks or the number of strips
I have to use in one testing to get a result that;
A. I believe, or.
B. Is an actual number other than "no sufficient blood" or "result to low".
I think I've been doing this long enough to know how to get a "good" sample
for a test (not usually poor bleeder except for freezing cold) and I think
it is the strips. Not that the strips are a bad lot, it is only my
suspicion that it has become an issue with the manufacturing process that
the companies of these things are going for too little blood in too short a
time and the end result is what I think are inaccurate results. Sorry, I
don't care what they have to say or argue their point of how good their
products are I no longer believe it because I'm doing many multiple times a
day and for a poor, no nothing blind person, I think I have a pretty good
idea of what the problem is, but no one is listening or even getting the
wheels in their heads turning thinking, "hmm, maybe the people who are using
our product on a daily basis know something and we should look into our
product."
I have had people watch me do the testing and know I'm going about the
correct way. I do warm water washing prior to finger sticks, go through the
shaking/rubbing of the hand/fingers, get a good droplet for a test and still
get crazy numbers. And, yes, I've was sticking on the sides of my fingers,
and holding the meter to my finger so the strip touches where the blood is.
I moisturize hands to prevent tough skin, I change the batteries regularly
too. I am made to feel like I am the one held up under a microscope that it
"has" to be my fault because I'm blind, but if I ask questions about the
strips or a meter it seems to always turn into its something wrong I'm
doing. But from my diabetic team who has observed me, I'm not doing it
incorrectly.
For me, the proof in something not being on target is when I get my A1C
(average done) but what I anticipate the average to be around is usually not
in any line with majority of test results from home meter. Last year when I
still had the Solo have to say things were good and I was very happy with
home testing and A1C's. Not the case with the Solus V2.
I used to use the Prodigey and while I did not have to run multiple tests,
it gave me numbers that led me to think my control was fine and dandy.
Again, when I'd get my
A1C done it was not fine and dandy. So, where could the problem have een?
-- at that time and I'm not sure if its changed the prodigey did not say if
there was not enough of a blood sample, it just threw out a number.
So I'm turned off to it as well and don't want to go back.
I'm not looking for explanations of the manufacturing of strips or meters, I
am disgusted and just hope to find something newer, and accurate that will
be covered by my insurance.
Eileen
-----Original Message-----
From: Mike Freeman
Sent: Thursday, January 23, 2014 2:24 PM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] iBGStar
Eileen:
What has caused you to become disillusioned with the Solus V2?Just curious.
And you speak truth re the medical device companies (even if no one here
wants to admit it). What we need IMO is legislation. Wonder how far we'd get
at the state level?
Mike
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
eileen scrivani
Sent: Thursday, January 23, 2014 10:58 AM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
Hi Gregory,
Just wondering if you are using the IBG meter as a totally blind person or
with some level of vision? I am tempted to give it a try since I'm getting
a bit fed up with the Solus and had in the past used Prodigey and not
terribly impressed with that one either.
I believe it is the way of all these medical/pharmaceuticle type companies
not to respond to any input or suggestions on improvements. I have been
pump shopping and with all the companies I have talked with, none can tell
me why they don't, can't, won't build in any level of better accessibility
for those diabetics who have lost vision. When I ask the reps if they have
any input with higher ups in their companies the standard response to that
runs along the lines of "I don't get paid enough," or "I'm the low man on
the ...." It is a very discouraging situation.
Eileen
-----Original Message-----
From: Gregory D. Rosenberg
Sent: Thursday, January 23, 2014 12:54 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
Good morning everyone,
I bought an iBGStar shortly after it came to market. It works OK and is
fairly accessible. They have some room for improvement. I have big hands and
their strips are smaller than most. So when I drop on on the kitchen table
it is a bit harder to pick up. As a software developer I have higher
expectations than many other users since I know in my mind how would would
have coded their app. It is a little better than good. I have sent them
feedback, but have not received any reply to my emails showing interest on
their part.
On Jan 22, 2014, at 22:24 CST, Mike Freeman <k7uij at panix.com> wrote:
> An update:
>
>
>
> I hadn't looked at the iBGStar app from Sanofi-Aventis since early
> this fall. An update was released in December, 2013, which resolved a
> bunch of problems such that the app would work with iOS versions from
> 3 on and iPhones from the 3GS to the iPhone 5C and 5S. Although I
> haven't read clear through the documentation yet and won't get a
> chance to do so until after Washington Seminar, it appears that this
> version of the app, though awkward (one must double-tap buttons
> labeled with numbers to enter values), is accessible using VoiceOver.
> This is a vast improvement on the version of the app Veronica Elsea
> and I tested early this past fall. So when I get back from DC, I may
> purchase the meter and some test strips and give the app a go.
>
>
>
> One can enter bg readings, insulin and carbs into the app's database
> using these number buttons, as I say, though exactly how it all fits
> together won't be clear to me until I read through the documentation.
>
>
>
> Some cautions: it is not clear to me that a blind person can set up
> the meter that talks to the iBGStar app independently, i.e., set its
> date/time, pair up the Bluetooth connection with the iPhone, etc. I do
> not immediately see a way to do any of this from the iPhone app and
> this makes sense; the app only works with the meter once the iPhone is
> paired with it.
>
>
>
> This isn't exactly an accessible insulin pump but it has some
> possibilities for Alan although, as I say, I'd bet the meter itself
> could not be set up by a blind person which would negate the
> usefulness of the system unless one wished to use the iBGStar app only
> to record one's log.
>
>
>
> Mike Freeman
>
>
>
> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gregg%40ricis.com
P.S. Text the word BLIND to 85944 to donate $10 to the NFB Imagination Fund
via your phone bill.
--
73' & 75'
Gregory D. Rosenberg AB9MZ
gregg at ricis.com
RICIS, Inc.
7849 Bristol Park Drive
Tinley Park, IL 60477-4594
http://www.ricis.com
708-267-6664 Cell
708-444-2690 Office
708-444-1115 Fax (Call First)
We are tired of SPAM faxes.
NOTICE: This e-mail message and all attachments transmitted with it are
intended solely for the use of the addressee and may contain legally
privileged and confidential information. If the reader of this message is
not the intended recipient, or an employee or agent responsible for
delivering this message to the intended recipient, you are hereby notified
that any dissemination, distribution, copying, or other use of this message
or its attachments is strictly prohibited. If you have received this message
in error, please notify the sender immediately by replying to this message
and please delete it from your computer.
_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-talk:
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0gmail.com
------------------------------
Message: 8
Date: Fri, 31 Jan 2014 18:31:42 -0500
From: "eileen scrivani" <etscrivani at verizon.net>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-talk] iBGStar
Message-ID: <772C9EE53C564AFB9526D689064745B1 at eileen>
Content-Type: text/plain; format=flowed; charset=iso-8859-1;
reply-type=original
I had time for this to come to mind and the "to low" means your bg is so low
the meter can't get a reading on your value. I do think those to low
numbers are when someone runs 20 or lower but not sure on the exact number
that is the cut-off.
-----Original Message-----
From: Star Gazer
Sent: Friday, January 31, 2014 5:58 PM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] iBGStar
Thank you. This is very helpful. In my case, I deffinately feel symptoms
when the meter says "blood glucose level low".
I feel these symptoms before I test so I don't think I'm cooking the data.
Does anybody know what number Prodigy Voice bottoms out at? Mine seems to
bottom out at 30.
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
eileen scrivani
Sent: Friday, January 31, 2014 4:29 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
When a meter tells you "to low" that's a really low number like 20 or less.
I forget what the "to low" value is, but we understand that 20 is a
dangerous place to be in. And when a meter indicates we're "to low" we
should if we feel like we are running low go and instantly get juice or the
glucose tabs. So if you feel that you are to low with symptoms then I would
believe the meter.
My issue is that I feel totally fine with not a single symptom, no shaking,
no heart racing, no sweating, no disorientation of thoughts. In my case, I
question the meter when it tells me "to low" when I feel completely fine.
If I felt like I was running low with symptoms, then I would believe what
the meter is telling me.
-----Original Message-----
From: Star Gazer
Sent: Thursday, January 30, 2014 9:18 AM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] iBGStar
Eileen, your post interests me.
I use Prodigy Voice, and I always thought when it said "blood glucose level
low" that the glucose was indeed low. Am I incorrect in this? I've gotten
the "not enough blood" error, and I always took that to mean a different
error.
When it says "blood glucose low" I normally have other symptoms.
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
eileen scrivani
Sent: Thursday, January 23, 2014 4:16 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
I am unhappy with either the number of finger sticks or the number of strips
I have to use in one testing to get a result that;
A. I believe, or.
B. Is an actual number other than "no sufficient blood" or "result to low".
I think I've been doing this long enough to know how to get a "good" sample
for a test (not usually poor bleeder except for freezing cold) and I think
it is the strips. Not that the strips are a bad lot, it is only my
suspicion that it has become an issue with the manufacturing process that
the companies of these things are going for too little blood in too short a
time and the end result is what I think are inaccurate results. Sorry, I
don't care what they have to say or argue their point of how good their
products are I no longer believe it because I'm doing many multiple times a
day and for a poor, no nothing blind person, I think I have a pretty good
idea of what the problem is, but no one is listening or even getting the
wheels in their heads turning thinking, "hmm, maybe the people who are using
our product on a daily basis know something and we should look into our
product."
I have had people watch me do the testing and know I'm going about the
correct way. I do warm water washing prior to finger sticks, go through the
shaking/rubbing of the hand/fingers, get a good droplet for a test and still
get crazy numbers. And, yes, I've was sticking on the sides of my fingers,
and holding the meter to my finger so the strip touches where the blood is.
I moisturize hands to prevent tough skin, I change the batteries regularly
too. I am made to feel like I am the one held up under a microscope that it
"has" to be my fault because I'm blind, but if I ask questions about the
strips or a meter it seems to always turn into its something wrong I'm
doing. But from my diabetic team who has observed me, I'm not doing it
incorrectly.
For me, the proof in something not being on target is when I get my A1C
(average done) but what I anticipate the average to be around is usually not
in any line with majority of test results from home meter. Last year when I
still had the Solo have to say things were good and I was very happy with
home testing and A1C's. Not the case with the Solus V2.
I used to use the Prodigey and while I did not have to run multiple tests,
it gave me numbers that led me to think my control was fine and dandy.
Again, when I'd get my
A1C done it was not fine and dandy. So, where could the problem have een?
-- at that time and I'm not sure if its changed the prodigey did not say if
there was not enough of a blood sample, it just threw out a number.
So I'm turned off to it as well and don't want to go back.
I'm not looking for explanations of the manufacturing of strips or meters, I
am disgusted and just hope to find something newer, and accurate that will
be covered by my insurance.
Eileen
-----Original Message-----
From: Mike Freeman
Sent: Thursday, January 23, 2014 2:24 PM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] iBGStar
Eileen:
What has caused you to become disillusioned with the Solus V2?Just curious.
And you speak truth re the medical device companies (even if no one here
wants to admit it). What we need IMO is legislation. Wonder how far we'd get
at the state level?
Mike
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
eileen scrivani
Sent: Thursday, January 23, 2014 10:58 AM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
Hi Gregory,
Just wondering if you are using the IBG meter as a totally blind person or
with some level of vision? I am tempted to give it a try since I'm getting
a bit fed up with the Solus and had in the past used Prodigey and not
terribly impressed with that one either.
I believe it is the way of all these medical/pharmaceuticle type companies
not to respond to any input or suggestions on improvements. I have been
pump shopping and with all the companies I have talked with, none can tell
me why they don't, can't, won't build in any level of better accessibility
for those diabetics who have lost vision. When I ask the reps if they have
any input with higher ups in their companies the standard response to that
runs along the lines of "I don't get paid enough," or "I'm the low man on
the ...." It is a very discouraging situation.
Eileen
-----Original Message-----
From: Gregory D. Rosenberg
Sent: Thursday, January 23, 2014 12:54 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] iBGStar
Good morning everyone,
I bought an iBGStar shortly after it came to market. It works OK and is
fairly accessible. They have some room for improvement. I have big hands and
their strips are smaller than most. So when I drop on on the kitchen table
it is a bit harder to pick up. As a software developer I have higher
expectations than many other users since I know in my mind how would would
have coded their app. It is a little better than good. I have sent them
feedback, but have not received any reply to my emails showing interest on
their part.
On Jan 22, 2014, at 22:24 CST, Mike Freeman <k7uij at panix.com> wrote:
> An update:
>
>
>
> I hadn't looked at the iBGStar app from Sanofi-Aventis since early
> this fall. An update was released in December, 2013, which resolved a
> bunch of problems such that the app would work with iOS versions from
> 3 on and iPhones from the 3GS to the iPhone 5C and 5S. Although I
> haven't read clear through the documentation yet and won't get a
> chance to do so until after Washington Seminar, it appears that this
> version of the app, though awkward (one must double-tap buttons
> labeled with numbers to enter values), is accessible using VoiceOver.
> This is a vast improvement on the version of the app Veronica Elsea
> and I tested early this past fall. So when I get back from DC, I may
> purchase the meter and some test strips and give the app a go.
>
>
>
> One can enter bg readings, insulin and carbs into the app's database
> using these number buttons, as I say, though exactly how it all fits
> together won't be clear to me until I read through the documentation.
>
>
>
> Some cautions: it is not clear to me that a blind person can set up
> the meter that talks to the iBGStar app independently, i.e., set its
> date/time, pair up the Bluetooth connection with the iPhone, etc. I do
> not immediately see a way to do any of this from the iPhone app and
> this makes sense; the app only works with the meter once the iPhone is
> paired with it.
>
>
>
> This isn't exactly an accessible insulin pump but it has some
> possibilities for Alan although, as I say, I'd bet the meter itself
> could not be set up by a blind person which would negate the
> usefulness of the system unless one wished to use the iBGStar app only
> to record one's log.
>
>
>
> Mike Freeman
>
>
>
> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gregg%40ricis.com
P.S. Text the word BLIND to 85944 to donate $10 to the NFB Imagination Fund
via your phone bill.
--
73' & 75'
Gregory D. Rosenberg AB9MZ
gregg at ricis.com
RICIS, Inc.
7849 Bristol Park Drive
Tinley Park, IL 60477-4594
http://www.ricis.com
708-267-6664 Cell
708-444-2690 Office
708-444-1115 Fax (Call First)
We are tired of SPAM faxes.
NOTICE: This e-mail message and all attachments transmitted with it are
intended solely for the use of the addressee and may contain legally
privileged and confidential information. If the reader of this message is
not the intended recipient, or an employee or agent responsible for
delivering this message to the intended recipient, you are hereby notified
that any dissemination, distribution, copying, or other use of this message
or its attachments is strictly prohibited. If you have received this message
in error, please notify the sender immediately by replying to this message
and please delete it from your computer.
_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40veri
zon.net
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Diabetes-talk:
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------------------------------
Message: 9
Date: Fri, 31 Jan 2014 16:07:07 -0800
From: "Joy Stigile" <joystigile at gmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-talk] A quick question about testing
Message-ID: <3CE5037691A3488C96957D50AE4CD2DD at DBTOA000>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=original
Dear Eileen,
I test 3 - 5 times a day.
Yours, Joy Stigile
------------------------------
Message: 10
Date: Fri, 31 Jan 2014 20:55:07 -0800
From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-talk] A quick question about testing
Message-ID: <000001cf1f09$c9612f70$5c238e50$@laurelcreekmusic.com>
Content-Type: text/plain; charset="iso-8859-1"
Well, many of you already raised some of the flaws in this question. But who
says sighted people don't vary. I know some who test 12 times per day and
some who don't do it at all. I would imagine the range is as wide for blind
people as well. I usually have a phase where I test six to eight times and
then when my fingers get to cranky I drop back to four. But there are times
when I have to do five or six sticks per test and sometimes give up before I
get a number.
In a way, a part of me thinks that the question should be phrased, how often
do blind people attempt to test? <grin>
But in truth, some of us are motivated; some of us are lazy; some of us need
more intense management; some of us are right at the edge of needing
anything; some of us are new and curious; some of us are fighting burn-out.
It might be an interesting survey to find out whether any of us, blind or
sighted would test more often if the process were easier or if the meters
were more user-friendly. Says she as she is about to go warm up her fingers.
<grin>
Veronica
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Phone: 831-429-6407
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Mike Freeman
Sent: Friday, January 31, 2014 8:12 AM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] A quick question about testing
Hi, Eileen!
I test four times per day with an occasional test two hours after a meal.
Mike Freeman
sent from my iPhone
> On Jan 31, 2014, at 8:01, Tom And Eileen Rivera Ley
<riveraley at verizon.net> wrote:
>
> Question: how often do blind and visually disabled people with diabetes
test glucose each day? More, less, or as often as our sighted peers? I'd
love to know your experience.
>
> Eileen Rivera Ley
> Baltimore, MD
>
>
>> On Jan 31, 2014, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
>>
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>> Today's Topics:
>>
>> 1. Re: iBGStar (Star Gazer)
>> 2. {Disarmed} Fw: DrMirkin's eZine: Exercise's effect on blood
>> sugar, fish oil, more . . . (Dean Masters)
>>
>>
>> ----------------------------------------------------------------------
>>
>> Message: 1
>> Date: Thu, 30 Jan 2014 09:18:39 -0500
>> From: "Star Gazer" <pickrellrebecca at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-talk] iBGStar
>> Message-ID: <00ab01cf1dc6$2cb08610$86119230$@gmail.com>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> Eileen, your post interests me.
>> I use Prodigy Voice, and I always thought when it said "blood glucose
level
>> low" that the glucose was indeed low. Am I incorrect in this? I've
gotten
>> the "not enough blood" error, and I always took that to mean a different
>> error.
>> When it says "blood glucose low" I normally have other symptoms.
>
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------------------------------
Message: 11
Date: Sat, 01 Feb 2014 01:22:02 -0500
From: Dorothea Martin <bestsinger at samobile.net>
To: diabetes-talk at nfbnet.org
Subject: Re: [Diabetes-talk] A quick question about testing
Message-ID: 25bfb6eb-fb27-48db-929a-b0b929be5a8c at samobile.net
Content-Type: text/plain; charset="us-ascii"; format="flowed"
Hello, Veronica,
Your post is about the best thing I've read in a long time about the
frequency of testing. Then we have to add a guilty conscience: "Oh,
what I ate!" into the mix, also the availability of test strips.
Dotty Martin
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