[Diabetes-talk] What About Prodigy Working with Insulin Pumps?

Wed Jan 22 20:26:09 UTC 2014

Bridgit:

We do occasionally attend other conferences. I'm thinking about attending
the A A D E conference this year.

But you're forgetting one thing: money is prime! All the good will in the
world doesn't matter a tick compared to the bottom line. This is one
instance when I believe that only legislation will make a difference and
that's not going to happen as long as there are sufficient votes to crush
any attempt at business mandates.

In any event, the sort of work you advocate is the essence of sandi's Iowa
resolution. But re really need a compelling case that will entice people to
want to market to us.

But I've said my piece on this before so won't waste the bandwidth.

Morally, you're absolutely right. But companies don't profit on morals.

Mike

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Pollpeter
Sent: Wednesday, January 22, 2014 11:58 AM
To: 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] What About Prodigy Working with Insulin Pumps?

But what also are we doing about it? I mean, as far as I know, there's
no real initiative, no organized group of us going out there and giving
a voice to this problem. I'm not so naïve to think that if we act more
as a collective on this issue medical devices, including pumps, will
magically be developed with accessibility in mind, but it puts a face
and a voice to the issue. I understand this is not the most important
issue blind people face, so groups like the NFB don't take it up as an
individual cause or action, but when we face similar issues, often task
forces are developed, or we connect with other organizations to create a
louder voice. Braille, websites, education, employment, other types of
technology, the Federation is pretty good about taking action and as a
collective, we present our case to the group or company in question. I'm
not saying this need become a a Federation cause the entire organization
acts upon, but right now, especially in terms of accessible pumps, it
seems like individuals are taking up the torch and we are not working as
a collective in any shape or form. I don't know the answers or even how
to make this suggestion a reality, but if we had more of a collective
voice showing up to medical conferences, visiting with companies and the
medical community, doing it on a somewhat larger scale than we currently
are, perhaps we will at least be listened too. When we do this as a
single person, it doesn't make very big ripples in the pond, but if we
had more manpower behind us, maybe a bigger splash will be noticed. Just
talking, or writing rather, out loud, grin.

Bridgit

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
Of Mike Freeman
Sent: Wednesday, January 22, 2014 11:59 AM
To: 'Everett Gavel'; 'Diabetes Talk for the Blind'
Subject: Re: [Diabetes-talk] What About Prodigy Working with Insulin
Pumps?

Hi, Everett.

I'm afraid the likelihood is damned near nil. You may remember that
Prodigy was supposedly working on an accessible insulin pump a few years
ago but, for all practical purposes, dropped the project. I suspect the
reason was very simple: the development process plus the cost of getting
a pump FDA
510(k) certified so that it could be marketed/sold in the U.s. was too
great for the number of accessible pumps that might be sold.

Moreover, there is in prototype already such a device -- the Pump-mate,
developed by James Kubel of Access Solutions (we gave him a Bolotin
award last year). Take a look at http://www.pump-mate.com to read about
it. At one time, Medtronics engineers were working with him to perfect
the device but said engineers are no longer working for Medtronics and
it won't give Mr. Kubel the time of day anymore. I suspect the reason is
exactly the same -- too costly to develop and get a system certified for
the revenue that would be generated.

I realize that no one wants to hear/read this but I think we should
confront reality head-on: this is part of what it means to be a minority
(remember, we've said from the days of Kenneth Jernigan onward that the
blind are a minority).

I wish things would change but there's no easy fix.

Mike Freeman

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
Of Everett Gavel
Sent: Wednesday, January 22, 2014 9:19 AM
To: diabetes-talk at nfbnet.org
Subject: [Diabetes-talk] What About Prodigy Working with Insulin Pumps?

Hi Mike, and all,

I've signed on recently for a Medtronic pump, though the actual name
escapes me as i write this. Sorry about that. However, despite the beeps
and bops it makes audibly, it's not, of course, actually accessible as
we know accessibility. 

It comes with it's own glucose meter, and my question (if not more a
suggestion to the industry) is, what is the likelihood of Prodigy, which
makes an accessible, talking glucose meter (which I absolutely love),
working with pump makers to incorporate their prodigy meter to work with
pumps instead of these inaccessible models now being used? 

Just an idea to throw out there, I guess. 

Strive On!
Everett

_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix
.com

_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40
hotmail.com

_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com