[Diabetes-talk] Dex com and T simple

[franks.jonathan13 at gmail.com]

I will be attending that conference here in Texas in two weeks.

Sent from my iPhone

> On Oct 1, 2014, at 9:45 PM, Sandra Ryan via Diabetes-talk <diabetes-talk at nfbnet.org> wrote:
> 
> Last weekend, I attended the Taking Control of Your Diabetes seminar in Des
> Moines, Iowa.  It's a good program--practical, they admit no one's perfect,
> and there's lots of good education and exhibits.  I spoke in a session about
> continuous glucose monitoring about our inaccessibility issue.  The session
> presenters were a young doc from California who has diabetes, and the editor
> of Diabetes Forecast, who lives here and also has diabetes.  Before I spoke,
> a lady had mentioned that Medicare won't pay for CGM.  The doctor told us
> that, of the technologies currently available, all are great, but CGM is the
> most useful, because it gets at one of people's most common complaints:
> having to poke themselves for glucose readings.  
> 
> I said that diabetics who are blind or visually impaired have a different
> problem: None of the CGM's or insulin pumps are accessible.  Both presenters
> said they are aware of this, and that they believe these technologies must
> be made accessible.  I was told both in this session and the one on insulin
> pumps that the research demonstrating improved quality and quantity of life
> using technologies has been done and is readily available, and both
> presenters agreed it is a problem for blind people that they can't have the
> best treatments because of inaccessibility.  
> 
> I also spoke with a representative of Tandem and one from Johnson & Johnson,
> who makes the Animus pump.  The Animus rep understood why we need
> accessibility and encouraged me to work toward getting it.  The Tandem rep
> clicked his pen about a thousand times and told me that negotiations to get
> accessible pumps and CGM's "will never be friendly."  
> 
> In one of the education sessions, I learned that the Medtronic screens are
> very hard for anyone to read, that the Animus is much more readable, but
> still difficult.  I have a handout, but from memory I think it was the
> Omnipod that was most readable, but it had a different problem.  Definitely
> none is perfect.
> 
> So it was an interesting way to spend a Saturday.
> 
> Sandi
> 
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Mike Freeman via Diabetes-talk
> Sent: Wednesday, October 1, 2014 4:06 PM
> To: 'Tamera'; 'Diabetes Talk for the Blind'
> Subject: Re: [Diabetes-talk] Dex com and T simple
> 
> Way to go, tamera. Hopefully, those people came away at least slightly
> enlightened.
> 
> Mike
> 
> 
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Tamera via Diabetes-talk
> Sent: Wednesday, October 01, 2014 12:43 PM
> To: diabetes-talk at nfbnet.org
> Subject: [Diabetes-talk] Dex com and T simple
> 
> I walked in the local JDRF walk this past Sunday and spoke with a person
> from Tandem who makes the T simple pump, and she also uses a DEX com
> herself, and wondered  if anyone is using either or finding any usable
> accessibility with these. 
> 
> They sound terrific, but  meaningless with the lack of user accessibility.
> 
> Tamera
> 
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> om
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