[Diabetes-talk] Fw: Good News?

d m gina dmgina at samobile.net
Thu Sep 3 04:06:36 UTC 2015


With the exercising I am doing, I have a stronger heart.
I'm pleased about this.
Many times my numbers are like a radio station
101 or 109 sometimes higher depending on what we did the night before.
I think my sugars are confused at night, I learned my oxygen is dropping to
77. Now they want me on oxygen.
I will talk to the doctor on behalf of this, I have many concerns.
Working with two different things can get confusing at times.
I do love to walk my mile, where my sugars usually go down.
Not bad, just comfortable.
Keep up the swell work.


Original message:
> Eileen,

> Diabetes is an individual disease, at the end of the day. Some 
> regimines work better for some, and not so much for others. So many 
> variables go into the equation, and while there are some constants, so 
> much more is variable.

> What's an acceptable A1-C depends on a lot. For me, going below 7 means 
> I'm running too low. For others, they can go below 7 and be totally 
> fine. Type two's can usually have lower A1-C's too. There are 
> differences between type one and two, and people don't always 
> understand that. My grandma is a type two, and I'm a type one. She 
> typically has A1-C's 6. 5 and lower. She doesn't understand why I 
> shouldn't have mine lower, but the difference between one and two can 
> be varied enough to create such differences.

> Like Veronica, I need to get my daily work-out in. As a teen and in my 
> early 20's, I ran three to five miles a day, and I danced-- ballet, 
> tap, jazz-- and while I still incorporate ballet barre exercises into 
> my work-out, I like to either power walk outside or use my elliptical 
> at home for cardio. I do my ballet barre exercises and stretches 
> afterwards. Sometimes I jog on a mini-trampoline too. In total, my 
> work-outs last an hour to an hour-and-a-half. I usually have to 
> disconnect during cardio then hook back up an hour afterwards. I test 
> before working out then an hour-and-a-half after the work-out. Have you 
> tried exercising at the same time each day? This can help with 
> consistency, and you can usually judge what your sugars will run before 
> and after since doing it at the same time. You could also do it after a 
> meal, adding a little more carbs to that meal. I have a three-year-old, 
> so I tend to work-out late at night, like between nine and ten, since 
> that's usually when I can get a lot done without distractions, smile. I 
> tend to run higher at night, mid to upper 100's, so this actually works 
> out. I also don't eat much during the day, mostly grabbing what I can-- 
> Greek yogurt, Clif bars, salads-- and I usually don't snack unless low, 
> so I try to make supper the one meal I sit down and have a full course 
> with all the wonderful foods you are suppose to fit into each meal, smile.

> But it's really individually based. You can't always judge your 
> treatment and effects of by how others are treated and their results. I 
> can eat a candy bar, bolus and remain at 120, while a friend of mine 
> will eat candy, bolus and have crazy, inconsistent sugars all the rest 
> of the day. If I do run high, say 300 or higher, which happens during 
> my lady time, when I correct, I can drop in an hour. The same friend 
> will take all day to come down from a high sugar. For breakfast and 
> lunch, my carb/insulin ratio is one per 22, while at supper, it's one 
> per 15. And this ratio can also change depending on the carb I'm 
> eating. Like if pasta, no matter the time of day, I usually do one per 
> 15, though I eat pasta sparingly. My friend always needs to do one per 
> 10, regardless of time of day or carb.

> So what works for one, doesn't always work for another person. Do what 
> works for you and what your doctors recommend, and as long as you 
> achieve results you're happy with, it's okay. And if you want to try to 
> get your A1-C below 7, try. If you start running low frequently, then 
> you likely are good staying in the 7 to 8 range.

> Bridgit

> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Eileen Scrivani via Diabetes-talk
> Sent: Wednesday, September 02, 2015 6:40 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-talk] Fw: Good News?


> Hi Veronica and all:

> This for me has been a really interesting topic.

> I too have been using a pump for a year and a half now.  While my 
> numbers are certainly better than what I had been experiencing, they 
> are in my mind, still not perfect or the perfect I’d like them to be.  
> I’ve found that getting rid of the long acting Lantus in my insulin 
> regiment has totally eliminated extreme highs.  That’s not to say I 
> don’t have highs & lows, but the highs are at least contained to being 
> no more than the high 200’s which I can live with and fix.

> Usually, when I go high  its due to poor estimating of my carb 
> intake/insulin ratio.  I’ve been a diabetic since I was 5, and I have 
> had good control with really good A1C’s.  However, weird things started 
> happening to my control in my 40’s.  When I was using Lantus I would 
> see BG numbers that could be in the 300’s, 400’s and even higher!  I 
> found it really stressful and was constantly fretting over the numbers. 
> Its not like I wasn’t watching my diet or not exercising.  .  .  Making 
> the change to the pump and only having Novolog in my system has made a 
> big difference and leveled out the numbers.  The only thing I have been 
> left questioning has been my A1C results.  I’ve pretty much been around 
> 7.4 to 7.8.  Last year when I first started the pump I did get the A1C 
> down to 6.3, but that’s because I was having far too many lows while 
> adjusting insulin rates.  My doctor and Diabetic Educator have told me 
> over and over that the numbers I’m running are fine and they don’t want 
> me down around 6.something because that would leave me having too many 
> low BGs and could be damaging to the heart and heart function.

> I’ve been questioning the advice, because I’ve heard other diabetics 
> always insisting that the closer to a 6 you can get the A1C the better 
> your control and the less the chance of complications.  This just has 
> left me feeling like I was doing something, somewhere so wrong by 
> having a 7.whatever A1C number.

> So, bottom line is I feel a lot better after reading the posts by 
> Bridget, yourself & everet today.

> As for exercising for a full hour – I wish I could! Even after a short 
> workout of 20 or 30 minutes my BG level crashes.  I disconnect the pump 
> during and then leave it off for another half hour to a full hour.  
> Still, I can sometimes have horrible lows.  I wish I could get a better 
> handle on getting that leveled out so I could exercise with a bit less worry.

> Thanks for the great topic today and we’ll all just keep striving 
> together to improve control.

> Eileen


> From: Veronica Elsea via Diabetes-talk
> Sent: Wednesday, September 2, 2015 5:22 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-talk] Good News?

> Hi Everett!
> Oh how I loved reading your post. Congrats and bravo for you. When I 
> was first diagnosed at age 34, for the first couple of years my A1C ran between
> 13 and 16 no matter what I seemed to do. NPH insulin just didn't obsorb 
> consistently and no amount of fiddling seemed to sort me out. Within 
> two months on a pump, I had my A1C down to 7 to 8 range, where I seem 
> to spend a lot of time. I seem to go from being really on top of things 
> to phases of burn out, then back at it again, then burn out. So what I 
> really like here is that ability to be, well, human, knowing that 
> sometimes it's okay to ride the ups and downs with a supportive group. 
> The sanity for me is exercise. I feel really weird if I don't walk at 
> least an hour a day.
> My biggest struggle right now is blood testing. My callouses are really 
> a problem and the swollen fingers from rheumatoid arthritis don't help much.
> But as you said, just keep swimming. Just keep swimming. <grin> Oh wait!
> Striving! <laughing!
> So go for it, all of us!
> Veronica

> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide 
> Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407



> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Mike Freeman via Diabetes-talk
> Sent: Wednesday, September 02, 2015 12:55 PM
> To: 'Everett Gavel'; 'Diabetes Talk for the Blind'
> Cc: Mike Freeman
> Subject: Re: [Diabetes-talk] Good News?

> Hey Everett! Bravo, my man! Glad your attitude adjustment is working! 
> Keep it up!

> Mike


> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Everett Gavel via Diabetes-talk
> Sent: Wednesday, September 02, 2015 11:56 AM
> To: diabetes-talk at nfbnet.org
> Cc: Everett Gavel
> Subject: [Diabetes-talk] Good News?

> Hello All,

> I just realized that, while I've recently begun sharing a little more 
> about my personal situation with my diabetes publicly on some 'blind diabetic'
> lists, I've yet to share it here on my original and most favorite, most 
> read, bestest list of them all for blind diabetics. Please forgive me for that.

> I do have some good news to share. Good for me, at least. A week or two 
> ago, my doc told me my a1c was 8.0. Now, that may not be all that 
> great, but try to understand, I'm pretty sure it's not been that low, 
> personally, since I was a young teenager, and possibly even before that.

> I got diabetes when I was 10, and all through my teens and 20's, and 
> I'll admit, even into my 30's truly, I was as stupid, er, stubborn as 
> they come.
> At least in regards to my diabetes. I pretty much ignored it as much as 
> I could without bringing on a quick death. About all I did for the 
> first couple of decades (I'm 45 now) was to take my insulin once and 
> for a while twice a day. That's it.

> I never cared what my a1c was on those 3-month appointments I sometimes 
> kept with my docs. But a few years ago I started smartening up a bit.
> Little by little I tried taking better care of my diabetes. I finally 
> gave in and got a Medtronic pump about 1.5 years ago.

> Today, I can say I finally made the mental switch and gave into the 
> need, the smarter choice, to actually monitor my glucose levels regularly.
> Nowadays, if I don't test at least 4 times a day, I feel wierd. Maybe 
> it's some kind of guilt or something, I don't know. But I *like* that 
> it feels wrong to not test at least 4 times a day, these days.

> So, all that being rambled on about, while I realize it may be along 
> the lines of too little too late, I'm hoping for the other cliche to be 
> more true, where it says, better late than never.
> ;-)

> So my BS levels are 8.0. Well, okay, my 'BS' (and
> sarcasm) levels are often far higher than that, but, my blood sugar 
> levels are now most often under 200, and for me, that's great. For 
> decades, my average has been between 300 & 400 when I'd test it. I've 
> been clocked more times than I can count, back in the day when the 
> Joslin Diabetes Center was where I went for my 3-month check ups as a 
> teen, at over 700. These days, I can't seem to find a monitor that 
> doesn't quit counting around 599 or 600, seems like. But I don't test 
> em out like that too much anymore either, so who knows? I'm glad I can 
> say I don't know that for sure, actually.

> Anyway, I'm newly inspired by my 8.0 a1c. In 3 months, my new goal is 7.0.
> I'm not just counting carbs and taking insulin to cover, now. It's a 
> challenge, and I love a good challenge. So I'm actually (gasp) paying 
> attention to what I'm eating, and not just counting carbs. I'm actually 
> focusing on, go figure, EATING BETTER.

> So, I just wanted to share my small bit of good news and new inspiration.
> You all, here, have been inspiring to me over the years, and I truly 
> appreciate all that you share.


> Strive On!
> Everett
> In Colorado Springs, USA



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--Dar
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every saint has a past
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