[Diabetes-talk] Fw: Good News?
Danielle Ledet
singingmywayin at gmail.com
Sun Sep 6 01:10:40 UTC 2015
Thanks everyone.
On 9/5/15, Mike Freeman via Diabetes-talk <diabetes-talk at nfbnet.org> wrote:
> You wouldn't heal because of diabetes? Sheesh! Some gurus!
>
> Mike
>
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-talk
> Sent: Saturday, September 05, 2015 3:42 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> Oh Bridgit, what funny stories! I was already married when I was diagnosed
> so all I got was from the professionals who assumed that Peter was my
> attendant or something. When I went through surgery two years ago, all the
> doctors just kept assuring me that I wouldn't heal because I have diabetes.
> Ummm, never mind that I had to stop all of my drugs for RA because they
> interfere with healing! Hello? So for six weeks after surgery I literally
> tested every two hours. Yes, round the clock. I was so driven partly by
> fear, partly by anger and shere I told you so kind of a reaction. Obviously
> there came a point where I decided that sleeping through the night had some
> real attraction and eventually the rest of life kind of came back in as
> well. But I sure did like catching changes before they became big changes.
> Sometimes I do really think about trying the Dexcom with the iPhone and then
> another part of me wonders if the amount of info I'd get is worth the head
> aches involved in dealing with the CGM. But I never say never! <grin>
> Veronica
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
> Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-talk
> Sent: Saturday, September 05, 2015 2:23 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> Veronica,
>
> It seems to be about every three to four months that my basal needs change.
> It's weird, but like you, I make the changes and carry on with life, smile.
>
> Because I feel symptoms of being low early, and usually I can gage just how
> low I am, and how much time I have before I actually crash, I don't always
> test. But yes, I definitely test an hour after a low to make sure I'm not
> jumping up. I don't mess with highs. When I feel high, I test so I know how
> much insulin I need to correct. And I also rarely bolus after meals without
> testing because my bolus can change depending on what my sugars are running.
> I like to test roughly every three hours in a day, adding in more for when I
> exercise, which is usually five times a week, so this is why I test 6 to 8
> times a day. When I was pregnant, I was testing 15 times a day, and
> boy-oh-boy, that was intense, smile.
>
> Funny story, a few months ago, I woke up low in the morning, and my husband
> was still at home. I knew instantly, so I asked the hubby for juice, but I
> was a little disorientated. I knew where I was and who I was, but I wasn't
> sure who my husband was. I asked for the juice, and while he retrieved it, I
> thought to myself, "Who is this guy? Is he my husband?" I knew I was
> married, but I just wasn't sure if this guy was my husband. When he returned
> with juice, I asked, "Are you Ross?" Like ten seconds later, I realized it,
> but to this day, Ross and my endocrine joke about this. LOL!
>
> As a kid, I had awful insulin reactions. I hallucinated, seizure and
> screamed then passed out for a few seconds. The worse thing is that I was
> simultaneously aware of what was happening while all the bad stuff was
> happening. As I grew older, these type of reactions stopped, and I just got
> really tired when dropping too low. In the last couple of years though, when
> I'm low and sleeping, I wake myself up, but often I'm disorientated. This
> didn't use to happen. I've always been able to wake myself up when low (I
> think since I can lucid dream, this has a little something to do with it)
> but I was always aware of everything. But now, usually when I wake up with a
> low, I know enough that I need to get juice and eat food, but I am confused
> about where I am, or what objects are. This doesn't happen when awake and
> low, even if crashing, I just fall asleep when awake and dropping, but when
> asleep and wake up low, it's weird, I can become so confused and
> disorientated.
>
> When my husband and I were dating, he wanted to meet with my diabetes nurse
> educator and do a training, so he had a crash course in diabetes, including
> how to inject glucagon. He knows what to watch for and how to treat various
> symptoms. He also knows how to operate my pump.
>
> Another funny story, when we announced our engagement, my mother-in-law told
> my husband that people with diabetes can get crazy. She had read an article
> about how when high or low, the symptoms can vary, and it can include
> erratic behavior during the low or high. But she interpreted it as actually
> developing psychological conditions, ha-ha! Ross and I still joke about this
> comment, grin.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-talk
> Sent: Saturday, September 05, 2015 3:33 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> I'm with you here, Bridgit. I do seem to have to change my basal rates for
> winter and summer. Nobody seemed to think that analysis made sense but there
> it is. I change the basals and get the results I want so there! <grin> And
> of course, just when I think I know what I'm doing, there will be an
> occasional misbehaving cannula and surprise! And I too never guess what to
> do if I think I'm high. I've treated many lows before or without testing
> because, well, as long as it sometimes takes me to test, why risk going even
> lower. <grin> If my fingers cooperate, I like to test about an hour after a
> low to make sure I'm not heading too far in the other direction.
> Veronica
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
> Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-talk
> Sent: Friday, September 04, 2015 6:09 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> Veronica,
>
> Yes, I definitely have days where I don't test as often as I like. Some
> days, I get caught up doing something, and before I know it, hours have gone
> by without me testing. I start feeling lows in the 70's, and sometimes I
> treat before knowing exactly how low I am, but I never correct when high
> without knowing exactly how high. My variables tend to change frequently
> too, even when I do things on the same schedule. I can eat the exact same
> food every day at the exact same time, exercise at the same time, doing the
> same activity each day, get up and go to bed at the same time, and still,
> things change frequently for me, like every couple of months, though at
> times, it has happened in a matter of weeks. But suddenly I will run high in
> the morning and low at night. When one per 20 for a bolus had been working,
> all of a sudden, I need one per 15. If I didn't test frequently, I wouldn't
> always catch this, and I wouldn't be able to track the trends, knowing where
> exactly I need to adjust. Others may be able to remain much steadier than
> this, and I wish I would, but ever since I was little, this is how my
> diabetes has been. I like that since being on the pump, I can set basal
> rates to deliver different amounts of insulin at different parts of the day,
> adjusting as I need too. For me, this has helped tremendously in keeping my
> sugars more even-keeled.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-talk
> Sent: Friday, September 04, 2015 4:04 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> Bridgit, my answer when I don't get in those regular or extra tests is, I
> don't. I fret or worry about what they are. I have never understood how
> people could say oh I know I am, fill in the blank. Yes, if I'm really high
> I can feel it. If I'm low, thank goodness I can feel it. But I can't know
> how much insulin to take to bring me down appropriately without testing.
> Unfortunately for me, I've had to accept the fact that sometimes I don't get
> a number and I have to just go on with life. But it bugs me!
> Veronica
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
> Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-talk
> Sent: Friday, September 04, 2015 10:50 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> I have a legitimate question, and this is not directed at anyone, it's sheer
> curiosity. Regardless if type one or two, how do you know what you're sugars
> are running without testing several times throughout the day? And I have
> noticed that the type two's I know who test infrequently or not at all, do
> so under the supervision of a general practitioner or internal med doc.
> Whereas those who see an endocrine, tend to test regularly and frequently,
> for two's usually being four times a day. But without testing throughout the
> day, you don't honestly know what your numbers are running, and as Veronica
> pointed out, A1-C's, while usually more accurate than a glucose meter, they
> are not precise either. For best control and monitoring of sugars, how can
> this happen without testing frequently daily?
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Mike Freeman via Diabetes-talk
> Sent: Friday, September 04, 2015 12:11 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Mike Freeman <k7uij at panix.com>
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> I dare say that goes for all of us.
>
> Mike
>
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Mark Tardif via Diabetes-talk
> Sent: Thursday, September 03, 2015 5:58 PM
> To: Diabetes Talk for the Blind
> Cc: Mark Tardif
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> And if it becomes necessary and my doctor recommends it, I will test 3 or 4
> times a day and become stricter about exercise and diet. Actually, my
> exercise routine is good, (a lot of walking, and in this neighborhood we
> have a lot of hills,) but my food intake certainly needs modification.
>
>
>
> Mark Tardif
> Nuclear arms will not hold you.
> -----Original Message-----
> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
> Sent: Thursday, September 03, 2015 8:50 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> Mark,
>
> That's one big difference between ones and twos: two's tend to remain more
> consistent than type one's, and that's why two's can usually test less
> frequently. Personally, I think two's, regardless of A1-C's, should test
> four times a day, but as long as you're managing things and are healthy,
> what works for you is what works. One's have much more problems with
> inconsistencies, and that's why it's important we test as frequently as
> possible. At 200 and higher, I can definitely feel it, and I don't like how
> I feel in these ranges. Even if bolusing correctly, one's still tend to have
> more potential problems with inconsistencies.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Mark Tardif via Diabetes-talk
> Sent: Thursday, September 03, 2015 6:51 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Mark Tardif <markspark at roadrunner.com>
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> I think what you said here is very important. I have type two diabetes,
> don't take insulin yet, just metformin, and my last A1C level was 5.9, and I
> felt perfectly fine and my doctor thought that was very appropriate in my
> case. Even though I like ice cream, my glucose readings rarely go above
> 200, and I can test once or twice a day with no problem.
>
>
>
> Mark Tardif
> Nuclear arms will not hold you.
> -----Original Message-----
> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
> Sent: Wednesday, September 02, 2015 11:53 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-talk] Fw: Good News?
>
> Eileen,
>
> Diabetes is an individual disease, at the end of the day. Some regimines
> work better for some, and not so much for others. So many variables go into
> the equation, and while there are some constants, so much more is variable.
>
> What's an acceptable A1-C depends on a lot. For me, going below 7 means I'm
> running too low. For others, they can go below 7 and be totally fine. Type
> two's can usually have lower A1-C's too. There are differences between type
> one and two, and people don't always understand that. My grandma is a type
> two, and I'm a type one. She typically has A1-C's 6. 5 and lower. She
> doesn't understand why I shouldn't have mine lower, but the difference
> between one and two can be varied enough to create such differences.
>
> Like Veronica, I need to get my daily work-out in. As a teen and in my early
> 20's, I ran three to five miles a day, and I danced-- ballet, tap, jazz--
> and while I still incorporate ballet barre exercises into my work-out, I
> like to either power walk outside or use my elliptical at home for cardio. I
> do my ballet barre exercises and stretches afterwards. Sometimes I jog on a
> mini-trampoline too. In total, my work-outs last an hour to an
> hour-and-a-half. I usually have to disconnect during cardio then hook back
> up an hour afterwards. I test before working out then an hour-and-a-half
> after the work-out. Have you tried exercising at the same time each day?
> This can help with consistency, and you can usually judge what your sugars
> will run before and after since doing it at the same time. You could also do
> it after a meal, adding a little more carbs to that meal. I have a
> three-year-old, so I tend to work-out late at night, like between nine and
> ten, since that's usually when I can get a lot done without distractions,
> smile. I tend to run higher at night, mid to upper 100's, so this actually
> works out. I also don't eat much during the day, mostly grabbing what I
> can-- Greek yogurt, Clif bars, salads-- and I usually don't snack unless
> low, so I try to make supper the one meal I sit down and have a full course
> with all the wonderful foods you are suppose to fit into each meal, smile.
>
> But it's really individually based. You can't always judge your treatment
> and effects of by how others are treated and their results. I can eat a
> candy bar, bolus and remain at 120, while a friend of mine will eat candy,
> bolus and have crazy, inconsistent sugars all the rest of the day. If I do
> run high, say 300 or higher, which happens during my lady time, when I
> correct, I can drop in an hour. The same friend will take all day to come
> down from a high sugar. For breakfast and lunch, my carb/insulin ratio is
> one per 22, while at supper, it's one per 15. And this ratio can also change
> depending on the carb I'm eating. Like if pasta, no matter the time of day,
> I usually do one per 15, though I eat pasta sparingly. My friend always
> needs to do one per 10, regardless of time of day or carb.
>
> So what works for one, doesn't always work for another person. Do what works
> for you and what your doctors recommend, and as long as you achieve results
> you're happy with, it's okay. And if you want to try to get your A1-C below
> 7, try. If you start running low frequently, then you likely are good
> staying in the 7 to 8 range.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Eileen Scrivani via Diabetes-talk
> Sent: Wednesday, September 02, 2015 6:40 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-talk] Fw: Good News?
>
>
> Hi Veronica and all:
>
> This for me has been a really interesting topic.
>
> I too have been using a pump for a year and a half now. While my numbers
> are certainly better than what I had been experiencing, they are in my mind,
> still not perfect or the perfect I’d like them to be. I’ve found that
> getting rid of the long acting Lantus in my insulin regiment has totally
> eliminated extreme highs. That’s not to say I don’t have highs & lows, but
> the highs are at least contained to being no more than the high 200’s which
> I can live with and fix.
>
> Usually, when I go high its due to poor estimating of my carb
> intake/insulin ratio. I’ve been a diabetic since I was 5, and I have had
> good control with really good A1C’s. However, weird things started
> happening to my control in my 40’s. When I was using Lantus I would see BG
> numbers that could be in the 300’s, 400’s and even higher! I found it
> really stressful and was constantly fretting over the numbers. Its not like
> I wasn’t watching my diet or not exercising. . . Making the change to the
> pump and only having Novolog in my system has made a big difference and
> leveled out the numbers. The only thing I have been left questioning has
> been my A1C results. I’ve pretty much been around 7.4 to 7.8. Last year
> when I first started the pump I did get the A1C down to 6.3, but that’s
> because I was having far too many lows while adjusting insulin rates. My
> doctor and Diabetic Educator have told me over and over that the numbers I’m
> running are fine and they don’t want me down around 6.something because that
> would leave me having too many low BGs and could be damaging to the heart
> and heart function.
>
> I’ve been questioning the advice, because I’ve heard other diabetics always
> insisting that the closer to a 6 you can get the A1C the better your control
> and the less the chance of complications. This just has left me feeling
> like I was doing something, somewhere so wrong by having a 7.whatever A1C
> number.
>
> So, bottom line is I feel a lot better after reading the posts by Bridget,
> yourself & everet today.
>
> As for exercising for a full hour – I wish I could! Even after a short
> workout of 20 or 30 minutes my BG level crashes. I disconnect the pump
> during and then leave it off for another half hour to a full hour. Still, I
> can sometimes have horrible lows. I wish I could get a better handle on
> getting that leveled out so I could exercise with a bit less worry.
>
> Thanks for the great topic today and we’ll all just keep striving together
> to improve control.
>
> Eileen
>
>
> From: Veronica Elsea via Diabetes-talk
> Sent: Wednesday, September 2, 2015 5:22 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-talk] Good News?
>
> Hi Everett!
> Oh how I loved reading your post. Congrats and bravo for you. When I was
> first diagnosed at age 34, for the first couple of years my A1C ran between
> 13 and 16 no matter what I seemed to do. NPH insulin just didn't obsorb
> consistently and no amount of fiddling seemed to sort me out. Within two
> months on a pump, I had my A1C down to 7 to 8 range, where I seem to spend a
> lot of time. I seem to go from being really on top of things to phases of
> burn out, then back at it again, then burn out. So what I really like here
> is that ability to be, well, human, knowing that sometimes it's okay to ride
> the ups and downs with a supportive group. The sanity for me is exercise. I
> feel really weird if I don't walk at least an hour a day.
> My biggest struggle right now is blood testing. My callouses are really a
> problem and the swollen fingers from rheumatoid arthritis don't help much.
> But as you said, just keep swimming. Just keep swimming. <grin> Oh wait!
> Striving! <laughing!
> So go for it, all of us!
> Veronica
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
> Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Mike Freeman via Diabetes-talk
> Sent: Wednesday, September 02, 2015 12:55 PM
> To: 'Everett Gavel'; 'Diabetes Talk for the Blind'
> Cc: Mike Freeman
> Subject: Re: [Diabetes-talk] Good News?
>
> Hey Everett! Bravo, my man! Glad your attitude adjustment is working! Keep
> it up!
>
> Mike
>
>
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Everett Gavel via Diabetes-talk
> Sent: Wednesday, September 02, 2015 11:56 AM
> To: diabetes-talk at nfbnet.org
> Cc: Everett Gavel
> Subject: [Diabetes-talk] Good News?
>
> Hello All,
>
> I just realized that, while I've recently begun sharing a little more about
> my personal situation with my diabetes publicly on some 'blind diabetic'
> lists, I've yet to share it here on my original and most favorite, most
> read, bestest list of them all for blind diabetics. Please forgive me for
> that.
>
> I do have some good news to share. Good for me, at least. A week or two ago,
> my doc told me my a1c was 8.0. Now, that may not be all that great, but try
> to understand, I'm pretty sure it's not been that low, personally, since I
> was a young teenager, and possibly even before that.
>
> I got diabetes when I was 10, and all through my teens and 20's, and I'll
> admit, even into my 30's truly, I was as stupid, er, stubborn as they come.
> At least in regards to my diabetes. I pretty much ignored it as much as I
> could without bringing on a quick death. About all I did for the first
> couple of decades (I'm 45 now) was to take my insulin once and for a while
> twice a day. That's it.
>
> I never cared what my a1c was on those 3-month appointments I sometimes kept
> with my docs. But a few years ago I started smartening up a bit.
> Little by little I tried taking better care of my diabetes. I finally gave
> in and got a Medtronic pump about 1.5 years ago.
>
> Today, I can say I finally made the mental switch and gave into the need,
> the smarter choice, to actually monitor my glucose levels regularly.
> Nowadays, if I don't test at least 4 times a day, I feel wierd. Maybe it's
> some kind of guilt or something, I don't know. But I *like* that it feels
> wrong to not test at least 4 times a day, these days.
>
> So, all that being rambled on about, while I realize it may be along the
> lines of too little too late, I'm hoping for the other cliche to be more
> true, where it says, better late than never.
> ;-)
>
> So my BS levels are 8.0. Well, okay, my 'BS' (and
> sarcasm) levels are often far higher than that, but, my blood sugar levels
> are now most often under 200, and for me, that's great. For decades, my
> average has been between 300 & 400 when I'd test it. I've been clocked more
> times than I can count, back in the day when the Joslin Diabetes Center was
> where I went for my 3-month check ups as a teen, at over 700. These days, I
> can't seem to find a monitor that doesn't quit counting around 599 or 600,
> seems like. But I don't test em out like that too much anymore either, so
> who knows? I'm glad I can say I don't know that for sure, actually.
>
> Anyway, I'm newly inspired by my 8.0 a1c. In 3 months, my new goal is 7.0.
> I'm not just counting carbs and taking insulin to cover, now. It's a
> challenge, and I love a good challenge. So I'm actually (gasp) paying
> attention to what I'm eating, and not just counting carbs. I'm actually
> focusing on, go figure, EATING BETTER.
>
> So, I just wanted to share my small bit of good news and new inspiration.
> You all, here, have been inspiring to me over the years, and I truly
> appreciate all that you share.
>
>
> Strive On!
> Everett
> In Colorado Springs, USA
>
>
>
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>
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>
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Danielle
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