[Diabetes-talk] New Member To The List, and alternate site testing

Thu Feb 25 00:24:02 UTC 2016

You know, in addition to all of my earlier rants, why in the bleepity bleep shouldn't we be allowed as many strips as we want. One illness and we need to significantly increase our testing, not to mention our medication. Oh I forgot! We're all criminals until verified otherwise! Boo hiss! 
Wanta know how I really feel? <grin> Tell you what! Maybe I'll go buy a power ball ticket or something. Then if I win, all of us can have all the strips we want. <smile>
Veronica

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-talk
Sent: Wednesday, February 24, 2016 4:13 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site testing

Mike, 

I would not like to see erroneous readings deleted out of meter memory, since even those mistaken readings add into the total number of times per day I’ve tested.  If I have to use extra strips to get a reading which I believe, then I want to show that I have truthfully tested that number of times in a day.  

Every time I call for a re-order of supplies, I am asked how many tests per day I do and the number of strips I have left in my on-hand supply.  The way the system currently works, I would not be surprised should the time come when doctors need to be able to read the memory for the purpose of determining the strip counts.  Perhaps a better way than deleting would be a marker to indicate there was a miss-read, that way the reading would not get calculated into the averages and there would still be an accounting of the numbers used.

Eileen 

From: Mike Freeman via Diabetes-talk 
Sent: Wednesday, February 24, 2016 6:14 PM
To: 'Diabetes Talk for the Blind' 
Cc: Mike Freeman 
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site testing

Veronica:

Amen multiple times over erroneous readings staying in the meters. Had its
manufacturer ever completed the 510(k) application with the FDA so that its
meter could be marketed here, the SensoCardPlus allowed deleting of
readings. But when I've talked to meter manufacturers, they seemed
extraordinarily resistant to patients having control over which readings
were kept, maintaining that this would lead to "patient noncompliance". That
is, they presumed that patients would delete readings that weren't in their
target bg ranges. To which I responded: "Who cares? Patients would only be
hurting themselves by falsifying or leaving out valid but "bad" readings. It
isn't the responsibility of meter manufacturers to see that patients do what
they're supposed to!" Of course, my statement ended up floating like a lead
balloon!
Which is why I only submit a written log.

Mike Freeman

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Veronica Elsea via Diabetes-talk
Sent: Wednesday, February 24, 2016 2:32 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing

Wow! You're lucky Bridgit. I've been diabetic for almost 28 years now and my
fingers are a mess. I have been blind the entire time so have done way more
sticks requiring more blood than I would have sighted. But for whatever
reason, my fingers have these giant callouses on the sides that are now
really interfering with my ability to test as often as I'd like. This is one
of the reason I'd really like getting the CGM so I could at least watch
patterns and have some idea. I just haven't yet made the time to sit down
and lie, making up a fake log for a month. 
And I did get crazy readings going both directions with the Prodigy. Most of
the time I do know if I'm really high or low, but not always. Heck, given
the current state of my fingers, if I thought I always knew my reading by
intuition, I wouldn't even think of using a meter. Alas, that's not the
case. What I really dislike about all meters that do a test and then say, oh
wait, not enough blood is that you now have spurious readings in that log
for good. I've had a couple of endos who just never seemed to grasp that
they were really not enough blood and kept wanting to adjust my insulin
dosages based on those way low readings, for instance. That's why I stay
with the FreeStyle Lite even though it's a bit of a pain to connect it with
a computer to read it. It doesn't start the test until it verifies that the
strip is full. So while the final reading has the same 20 per cent variation
that all meters have, at least I don't fill up the memory with junk
readings. One would think more companies would be working like this in 2016.

Veronica

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-talk
Sent: Wednesday, February 24, 2016 6:33 AM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing

A few years ago, my doctor suggested I consider alternate site testing just
because I've been pricking my fingers for so long. Actually, my fingers are
good. No loss of sensitivity because of poking, and no permanent calluses,
(I moisturize frequently and alternate between all fingers and all over the
fingers) but nonetheless, they thought it worth considering. When I was a
kid and sighted, they made the same suggestion so I could alternate where I
test, similar to how you alternate where you inject insulin, but I never
liked it. I currently use a Prodigy Voice, and my nurse educator, who has
been amazing and has become a family friend in the last 13 years since I've
known her, said alternate testing should work fine. I just don't like the
idea of testing elsewhere than my fingers. The best I have done is start
testing with my thumbs in the last 8 years or so. I've been diabetic for 30
years now, and my fingers are still going strong, grin.

Bridgit

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Paul Magill via Diabetes-talk
Sent: Tuesday, February 23, 2016 7:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Paul Magill <magills at bigpond.com>
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing

Hi Daniel,

The manual I sent has a brief section on alternate testing, and to me at
least, it suggests that this is not practical for a blind person.

Most glucose meters don't have this feature anyway.

Regards,
Paul from Australia

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Mike Freeman via Diabetes-talk

Right. I once encountered a certified diabetes educator who swore blind
persons could do alternate site testing. But I've never met one. The very
thing which makes some folks like alternate site testing -- they can't feel
the stick -- is the very thing that throws blind persons for a loop. Also,
the readings aren't quite as up-to-date as fingerstick readings.

Mike

_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
ail.com

_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com

_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com

_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com