[Diabetes-talk] New Member To The List, and alternate site testing
Mark Tardif
markspark at roadrunner.com
Fri Feb 26 23:50:33 UTC 2016
Veronica, rant agreed with, totally!!! It is absolutely atrocious the way
this stuff works, or doesn't, shall we say.
Mark Tardif
Nuclear arms will not hold you.
-----Original Message-----
From: Veronica Elsea via Diabetes-talk
Sent: Friday, February 26, 2016 4:40 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-talk] New Member To The List,and alternate site
testing
The really annoying thing to me is that most of the sighted diabetics I know
get their meters for free. A meter comes with the pump. There's a promotion
at doctor's offices where they give away meters so you'll be hooked on their
strips. Now granted, meters don't cost what they used to back in the
eighties and nineties, but what a mess. If I were king, hahahaha, well, the
wrong people are making our medical decisions and should be forced out of
the way. The same division of the company that refuses to pay for enough
strips should have to shoulder the cost of complications which arise from
not enough testing. The part I really don't get is why doctors tolerate
this. I would really hate having all those years of training, medical
knowledge only to have my decisions over ridden by some bean counter chasing
a Christmas bonus. How did they allow this to happen?
I don't mind paying something for my care and my supplies. I do mind outside
interference with my care decisions. Heck, yesterday I got a notice that a
lab test had been ordered for me which was a urine test to check kidney
function. I couldn't do it at our lab because the message didn't even
identify which doctor ordered it. It just said, your clinitian. And do you
think I'm running right over there? Nope! It's sad that so much of medicine
is now about money and lawyers. I sure hope the pendulum swings another way
soon.
Okay, rant over.
Veronica
"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club.
To learn more, visit:
http://www.laurelcreekmusic.com
Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-talk
Sent: Friday, February 26, 2016 10:15 AM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing
I do have to say that if supplemental strips are needed above and beyond
what insurance will cover, $8 a box from Amazon is pretty cheap. If I paid
for all my strips I currently need out of pocket this way, it would only be
$40 or $50 a month. And if one were just purchasing a box or two to cover
what insurance doesn't, that's only $8 or $14 a month. Cheap and worth it,
if you ask me.
Bridgit
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
William Lewis via Diabetes-talk
Sent: Friday, February 26, 2016 12:02 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: William Lewis <wlewis19 at cox.net>
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing
from Bill Lewis
When I was sirt diagnosed with dieabbetes 12 years ago, I begn receiving my
strips and monitor from a pharmacy where there was no co-payment and free
delivery of strips. That policy still stands. I have Medicare A, B, C and
D. And my monitor still works fine, my second decice.
Bill
-----Original Message-----
From: Mike Freeman via Diabetes-talk
Sent: Thursday, February 25, 2016 11:08 AM
To: 'Diabetes Talk for the Blind'
Cc: Mike Freeman
Subject: Re: [Diabetes-talk] New Member To The List,and alternate site
testing
Eileen:
It's pretty simple: whose money I take, his song I sing. I'm not disagreeing
with you but merely pointing out that, like nearly everyone else in society
these days, the insurance carriers worship the god Mammon.
Mike
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Eileen Scrivani via Diabetes-talk
Sent: Thursday, February 25, 2016 6:50 AM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing
Ya know, this strip accounting makes me furious. Like I’m a low-life drug
pusher, out on the street selling any over-stock of test strips for the
Solus V2 at a huge or any profit! All I want and needd is a sufficient
number of strips to get through the 3-month alotment to take care of my own
health needs. If these companies and the government had any intelligence
they would let us adjust the quantities ordered as necessary. Some months
it might be a little less and other times a little more because as the song
goes “I’m only human, born to make mistakes.”
What ever happened to our rights to privacy? We have to submit our logs
loaded with personal comments & notes about our health, but Apple can’t help
open up a single phone of known murderers!
Off my soap box ... for now.
Eileen
From: Bridgit Kuenning-Pollpeter via Diabetes-talk
Sent: Wednesday, February 24, 2016 7:53 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing
My pharmacy says I should turn in glucose records when ordering strips, but
I haven't turned in a log for a year now, maybe even longer. It's suppose to
demonstrate that I'm testing as much as I say I am, but the pharmacy keeps
giving me the strips, and I keep forgetting to turn the logs in. Perhaps it
could be a bit different for type ones, who knows. But my point being, it's
technically already a thing to show "proof" of how much you test. Though,
one could still make stuff up.
Bridgit
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Eileen Scrivani via Diabetes-talk
Sent: Wednesday, February 24, 2016 6:13 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing
Mike,
I would not like to see erroneous readings deleted out of meter memory,
since even those mistaken readings add into the total number of times per
day I’ve tested. If I have to use extra strips to get a reading which I
believe, then I want to show that I have truthfully tested that number of
times in a day.
Every time I call for a re-order of supplies, I am asked how many tests per
day I do and the number of strips I have left in my on-hand supply. The way
the system currently works, I would not be surprised should the time come
when doctors need to be able to read the memory for the purpose of
determining the strip counts. Perhaps a better way than deleting would be a
marker to indicate there was a miss-read, that way the reading would not get
calculated into the averages and there would still be an accounting of the
numbers used.
Eileen
From: Mike Freeman via Diabetes-talk
Sent: Wednesday, February 24, 2016 6:14 PM
To: 'Diabetes Talk for the Blind'
Cc: Mike Freeman
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing
Veronica:
Amen multiple times over erroneous readings staying in the meters. Had its
manufacturer ever completed the 510(k) application with the FDA so that its
meter could be marketed here, the SensoCardPlus allowed deleting of
readings. But when I've talked to meter manufacturers, they seemed
extraordinarily resistant to patients having control over which readings
were kept, maintaining that this would lead to "patient noncompliance". That
is, they presumed that patients would delete readings that weren't in their
target bg ranges. To which I responded: "Who cares? Patients would only be
hurting themselves by falsifying or leaving out valid but "bad" readings. It
isn't the responsibility of meter manufacturers to see that patients do what
they're supposed to!" Of course, my statement ended up floating like a lead
balloon!
Which is why I only submit a written log.
Mike Freeman
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Veronica Elsea via Diabetes-talk
Sent: Wednesday, February 24, 2016 2:32 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing
Wow! You're lucky Bridgit. I've been diabetic for almost 28 years now and my
fingers are a mess. I have been blind the entire time so have done way more
sticks requiring more blood than I would have sighted. But for whatever
reason, my fingers have these giant callouses on the sides that are now
really interfering with my ability to test as often as I'd like. This is one
of the reason I'd really like getting the CGM so I could at least watch
patterns and have some idea. I just haven't yet made the time to sit down
and lie, making up a fake log for a month.
And I did get crazy readings going both directions with the Prodigy. Most of
the time I do know if I'm really high or low, but not always. Heck, given
the current state of my fingers, if I thought I always knew my reading by
intuition, I wouldn't even think of using a meter. Alas, that's not the
case. What I really dislike about all meters that do a test and then say, oh
wait, not enough blood is that you now have spurious readings in that log
for good. I've had a couple of endos who just never seemed to grasp that
they were really not enough blood and kept wanting to adjust my insulin
dosages based on those way low readings, for instance. That's why I stay
with the FreeStyle Lite even though it's a bit of a pain to connect it with
a computer to read it. It doesn't start the test until it verifies that the
strip is full. So while the final reading has the same 20 per cent variation
that all meters have, at least I don't fill up the memory with junk
readings. One would think more companies would be working like this in 2016.
Veronica
"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club.
To learn more, visit:
http://www.laurelcreekmusic.com
Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-talk
Sent: Wednesday, February 24, 2016 6:33 AM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing
A few years ago, my doctor suggested I consider alternate site testing just
because I've been pricking my fingers for so long. Actually, my fingers are
good. No loss of sensitivity because of poking, and no permanent calluses,
(I moisturize frequently and alternate between all fingers and all over the
fingers) but nonetheless, they thought it worth considering. When I was a
kid and sighted, they made the same suggestion so I could alternate where I
test, similar to how you alternate where you inject insulin, but I never
liked it. I currently use a Prodigy Voice, and my nurse educator, who has
been amazing and has become a family friend in the last 13 years since I've
known her, said alternate testing should work fine. I just don't like the
idea of testing elsewhere than my fingers. The best I have done is start
testing with my thumbs in the last 8 years or so. I've been diabetic for 30
years now, and my fingers are still going strong, grin.
Bridgit
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Paul Magill via Diabetes-talk
Sent: Tuesday, February 23, 2016 7:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Paul Magill <magills at bigpond.com>
Subject: Re: [Diabetes-talk] New Member To The List, and alternate site
testing
Hi Daniel,
The manual I sent has a brief section on alternate testing, and to me at
least, it suggests that this is not practical for a blind person.
Most glucose meters don't have this feature anyway.
Regards,
Paul from Australia
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Mike Freeman via Diabetes-talk
Right. I once encountered a certified diabetes educator who swore blind
persons could do alternate site testing. But I've never met one. The very
thing which makes some folks like alternate site testing -- they can't feel
the stick -- is the very thing that throws blind persons for a loop. Also,
the readings aren't quite as up-to-date as fingerstick readings.
Mike
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