[Diabetes-talk] Have you gone thru this?

Thu Jul 21 14:31:03 UTC 2016

If this is in deed true, I am very interested.

Bridgit

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of J
Steele-Louchart via Diabetes-Talk
Sent: Thursday, July 21, 2016 3:01 AM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: J Steele-Louchart <jsteelelouchart at gmail.com>
Subject: Re: [Diabetes-talk] Have you gone thru this?

Hi, all,

Some totally blind diabetics I've met through another forum  are using "The
Pod," a wireless insulin pump which auto checks your blood sugar every 15
minutes and delivers as needed. The app is apparently accessible, and the
device itself has a simple pattern to be able to control it through the
inaccessible on-board settings.

I could ask them for more information, if you're interested. Their
insurances are covering it with no problem.

J

On 7/21/16, Bridgit Kuenning-Pollpeter via Diabetes-Talk
<diabetes-talk at nfbnet.org> wrote:
> I now use the Animas Ping, but I worked with a Medtronic pump too. As 
> a blind person, there's not a whole lot more you can do with a pump 
> independently beyond changing batteries, cartridges and tubing, bolus, 
> some bolus wizards can work without sight, setting temporary basal 
> patterns and switching between basal patterns, but changing basal 
> rates is usually a bit more complicated to do nonvisually. Outside 
> this, there's not much more blind users use on pumps. It also depends 
> on how comfortable you become with the pump. The CGM part of the 
> Medtronic is not accessible at all. I'm not sure about the app. My 
> understanding was that the Dexcum CGM app was the only accessible app, 
> but I thought someone on the list said that with the Medtronic CGM app 
> you can at least have it read out numbers, though you can't change or 
> set anything.
>
> Do you have symptoms of being low? Dizziness, cold sweats, hunger, 
> light-headed, etc.? Not all diabetics feel symptoms, I understand 
> this. I feel symptoms well before I reach the point of passing out. I 
> have frequent lows, but I rarely don't get to the point where I run out of
time to treat.
> But I can also be 40 or lower and completely lucid and capable of
treating.
> But when, if you do, feel symptoms, do you treat immediately? Do you 
> keep juice and candy or food nearby at all times including at night? 
> When I leave the house, I always have juice and a snack of some kind 
> with me. And I keep juice in my nightstand.
>
> Good luck.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of
> blindhands--- via Diabetes-Talk
> Sent: Wednesday, July 20, 2016 10:33 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: blindhands at aol.com
> Subject: Re: [Diabetes-talk] Have you gone thru this?
>
> It will shut off up to 2 hours or from what I have been told if your 
> blood sugar reaches a certain level it will start delivering insulin once
again.
>
> I have had this in my hands and the rep basically showed me how to put 
> the insulin in and bleed the tubing to get the air out.  Showed me how 
> to bolis a amount of insulin.  I will need to learn a lot more, but I 
> don't know if I want the pump until I get the CGM  unit as I feel that 
> they are giving me the car without the brakes and there is no brakes 
> for it.
>
> Joyce
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Wednesday, July 20, 2016 11:27 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
> Subject: Re: [Diabetes-talk] Have you gone thru this?
>
> When the Medtronic turns off when low, is it somehow accessible to 
> turn back on when you need?
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of
> blindhands--- via Diabetes-Talk
> Sent: Wednesday, July 20, 2016 10:06 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: blindhands at aol.com
> Subject: [Diabetes-talk] Have you gone thru this?
>
> Well first the good news:
>
> My United Health Care has approved getting me the Medtronic 530 B 
> insulin pump!  This is the new one that will turn off when your blood 
> sugar goes to low.  I don't know what other bells and whistles it has.  
> Someone mentioned here that this is the only pump that can do this?
>
> This is what I really need as I have had a lot of low blood sugars and 
> have been found on the floor by my son being unconscious for 3 to 4 hours.
>
> Now the horrible and are they crazy?
> They denied the CGM to this machine.  So much for it turning off when 
> my blood sugar goes too low.  But, I was advised by the American 
> Diabetes Association to contact my state advocacy  department which I 
> had done and was assigned a person that will handle the denial.  I got 
> the form in like Johnny on the Spot.  When she called me I told her I 
> did not get a denial letter as MedTronics was dragging their feet on 
> it.  They wanted me to put in for the older machine as the United 
> Health Care would approve that machine.
>
> So I will be starting the battle to see if they change their minds and 
> go for the thing that I really need and the endocrinologist is
recommending.
>
> Has any one tried fighting a denial?
>
> If you call up Medtronics and get put on hold they have an 
> advertisement going that states United Health Care supportsMedtronics 530
G insulin pump.
> When I asked the insurance person she did not even know that was on 
> their phone line.
>
> I did ask her, if the apt works with voiceover and she told me she did 
> not know and would ask around.  I did not get that answer from her either.
>
> Advise, Advise Advise, please let me know your experience with a denial.
> Supposely United Health Care goes by Medicare rules.  So that is why 
> the first denial.
>
> Joyce
>
>
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--
J Steele-Louchart

I Will Find A Way or I Will Make One

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