[Diabetes-Talk] I spoke to my lawyer

[gary-melconian]

Count me in the advicacy train on this one.  

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Thursday, August 31, 2017 3:04 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] I spoke to my lawyer

If something doesn't exist, then we need to create it. I have some ideas brewing, so if this is a real concern, and something is going to really happen, I'm in.

Bridgit

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of sandi via Diabetes-Talk
Sent: Thursday, August 31, 2017 2:39 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: sandi <sjryan2 at gmail.com>
Subject: Re: [Diabetes-Talk] I spoke to my lawyer

Not really, and everything that does is fairly old. We need to do something new. The Bill of Rights was part of the resolution passed in 2016. It’s probably on the NFB.org website, though I haven’t checked. The resolution from 2014 should also be there. I think it was 2014-07, or something like that. I can look up some of this if that will help.

Sandi


Sent from Mail for Windows 10

From: Walter Mitchell via Diabetes-Talk
Sent: Thursday, August 31, 2017 1:14 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] I spoke to my lawyer

Sandy,

I am glad that we see eye to eye, smile. Do you know of literature that we already have printed, If so, who do I contact to get it? Just off the top of my head, I would say the Independence market, but do documents of this sort exist?

Thank you,
Walter Mitchell
(513) 334-9000


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of sandi via Diabetes-Talk
Sent: Thursday, August 31, 2017 12:33 PM
To: Diabetes Talk for the Blind
Cc: sandi
Subject: Re: [Diabetes-Talk] I spoke to my lawyer

I agree, Walter, that probably there will be legislation involved, since FDA and CMS need it to change what they’re doing now.

But there are so many other things we can do, as a group and as individuals, such as attending diabetes meetings of ADA and other diabetes organizations and talking with vendors, health-care providers, and other people with diabetes. As DAN, we could even ask to present at diabetes meetings about how diabetes is different for blind and low-vision diabetics, and why it shouldn’t be.

As I said yesterday, we can give our friends, families, and fellow members of any group we belong to a brief discussion of the topic and why it’s important to everyone, including them. We can pass out the Bill of Rights to people who treat diabetes or people who attend meetings, and others, to let them understand our philosophy and how not making tools and treatments accessible is discrimination. 

Everyone needs to take part in whatever is done, and not wait around for something to happen. I agree with you!

Sandi


Sent from Mail for Windows 10

From: Walter Mitchell via Diabetes-Talk
Sent: Thursday, August 31, 2017 2:24 AM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] I spoke to my lawyer

Hello Bridgette,

You have a very interesting concept. It brings a couple questions to mind. I understand DAN to be an advocate for equality and the expectation of life, as well other aspects.

1. How do we make sure that our corner of the world, get it?
2. How do we attempt to fix what's wrong?

Please don't mis understand me, this is not an attack. I am trying to survey those on this list as to what we could as an organization do to fix these concerns. In my opinion, this may just be a great legislative request.

Sincerely,
Walter Mitchell
5 1 3, 3 3 4, 9 0 0 0
walterl.mitch2 at gmail.com

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, August 30, 2017 7:20 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] I spoke to my lawyer

Technically, any time there's a device, product, website and tool inaccessible to the blind, it's discrimination. Segregation is illegal.
Denying things to people based on race, religion or gender is illegal, but the thousands of disabled people kept from accessing the world apparently is not discrimination. Until the world gets this, little will change.

Bridgit

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Wednesday, August 30, 2017 4:20 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: [Diabetes-Talk] I spoke to my lawyer

Hi	 Folks,
After reading thru the messages here and getting a notice from Dexcom that folks with Medicare Advantage Plans will be delayed more in receiving the CGM, I decided to give the Lawyer, who was handling my case to get coverage for the CGM.  After speaking to her law clerk she did describe the reason why having this approved thru the CMS that there was not a way for them to take action. 

I told her they are not allowing the blind to access the information for the CGM in the only way possible for a blind diabetic.  Is that not discrimination?

She said I made a good point and the lawyer would give me a call Thursday.

Joyce Kane
Blindhands at AOL.com 




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