[Diabetes-Talk] Pumps and accessibility

Wed Jan 4 12:16:49 UTC 2017

			Hey, Bridgit, I'm also pregnant and wanted to say
congradulations!

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, January 3, 2017 11:57 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] Pumps and accessibility

Jamie,

I wasn't always so on top of my diabetes management, especially as a teen,
but since my mid-20s, I've matured a bit and realized the importance of
taking care of myself.

I grew up with parents who were big into eating healthy and frequent
exercise. My mom was a dancer, and my dad a body-builder, among other
athletic endeavors. So when I was diagnosed at 4, as far as diet and
nutrition went, it was not a huge adjustment. Whether I ever had been
diagnosed with diabetes or not, I would have grown up with knowledge about
health and nutrition and fitness, grin.

When not pregnant, I see my endo every 3 months, but I keep in communication
in between, often emailing blood sugars every couple of weeks. I make
adjustments on my own, but I will notify my medical team and see what they
think as well.

It's really true that when you scale back and even cut out certain foods,
you don't crave them as much, especially refined sugar. In our house, we
don't keep things like chips or cookies or candy or snacky items on hand.
Most of what we buy is healthy, or at least healthier. My son likes to snack
on raw carrots and apples, although, he does love his candy, ha-ha!

I make mistakes and am by no means perfect, but I do try to be as healthy as
possible. I like to eat good foods, and I also eat few carbs, especially
wheat and grains. I also exercise frequently. I love to swim and jog and use
my elliptical at home. My husband and I did a triathlon this past summer. I
actually found out I was pregnant right before the tri event itself. That
was interesting. I did swimming and running back in my teens and early 20s,
but since then, I stuck to using the elliptical or treadmill. I also added
yoga recently to my routine, which I love. Since starting my third
trimester, I'm not exercising as intensely, but I keep up the swimming and
yoga.

I have family with a lot of health issues, and I just want to do my best to
avoid as much of it as possible. I also want to be fit and healthy so I can
run with, and after, grin, my kids.

Since being pregnant, I have been craving tootsie-pops, which have 15 grams
of carbs per lollipop. I'm off to have one right now, grin.

Bridgit

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Jamie Gurganus via Diabetes-Talk
Sent: Tuesday, January 03, 2017 7:46 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Jamie Gurganus <jamielgurganus at gmail.com>
Subject: Re: [Diabetes-Talk] Pumps and accessibility

Bridgiit,

     I think you and I would get along great.  I keep my A1C in the low 6's.
My last one was 6.4.  When I was pregnant over 19 years ago, mine went as
low as 5, because of how strict they wanted my blood sugars.  I eat very
little carbs these days, and I find that I feel better than I have in ages.
And, I don't feel deprived nor hungry.  I also don't crave sweets and
usually treat low blood sugars with those new flavored glucose tablets. 

			Jamie

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, January 03, 2017 7:11 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] Pumps and accessibility

My A1-Cs are usually between 6.5 and 7, but during pregnancy, I get them
down to 6, even though throughout the pregnancy my blood sugars rise, and we
frequently have to make adjustments to my basal rates.

A1-Cs over 7.5 are pretty high, but it can be a work in progress. Sometimes,
to get them in the target range, you have to implement more changes.

I love salads year-round, and when pregnant, I crave lettuce salads, smile.

I can't handle a lot of carbs. For holiday meals, I tend to bring veggie
sides and salads so we have some non-carb choices. I just get tired of every
dish being carbs, grin. Sweets are not a huge problem for me either. I'm not
a big sweet eater, though I do enjoy certain goodies like cheesecake. Often
what I do with treats is to just take a bite from my husband. He doesn't
mind. I'm good with just a bite of something most the time, so I can have
the pleasure of eating a treat without eating too much, and usually I don't
have to bolus when I take just a bite.

Whenever you feel like adding another carb choice to a meal, opt for a
protein or low-carb veggie. Carbs will raise glucose levels, while proteins
help stabilize them. My rule of thumb is to grab for the protein over the
carbs.

Bridgit

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of d
m gina via Diabetes-Talk
Sent: Tuesday, January 03, 2017 3:37 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at sero.email>
Subject: Re: [Diabetes-Talk] Pumps and accessibility

I rock with the a one c between seven and eight.
Has nothing to do with having child.
Glad you are doing well.

Original message:
> Yes, me too. My A1-Cs were all over the place, despite my trying. Then 
> I went on the pump, and they have remained pretty stable and in a good
range.
> In 12 years, the highest A1-C I've had is 7.5.

> Off topic, but weirdly, when pregnant, I experience the best A1-Cs 
> ever. Any other mommys experience this? With both my pregnancies, I 
> have gotten my A1-C way down, usually ending up around 6. Not sure why 
> this is, smile. My doctors find it interesting too.

> BTW, seven weeks to go before baby number 2 arrives, smile.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, January 03, 2017 12:42 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] Pumps and accessibility

> At the risk of one of those dreaded one-word replies on a list, Amen! 
> <grin>

> Before going on the pump, I spent my first three years as a type 1 
> with an A1C hovering between 13 and 16. I was already blind before 
> diagnosis. Within two month of going on my first pump, I had it down 
> to 7 and I've never looked back. For some reason insulin just never 
> seemed to obsorb like it was supposed to do. So I'll continue to fight 
> through the current state of pumps and do the best I can. And by 
> golly, if sighted people deserve the convenience of having the pump 
> figure things out, then so do I. <grin> Veronica

> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the 
> Guide
Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, January 03, 2017 10:33 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: [Diabetes-Talk] Pumps and accessibility

> While I completely agree with you, Bernie, and it's totally true that 
> no pump is fully accessible, I do think the comments made to Jamie 
> were not that a blind user can use the pump never requiring sighted 
> assistance, just that blind users do use their product, and are 
> experiencing success managing their diabetes.

> I will say that the only time I require sighted assistance for my pump 
> (and for what it's worth, I'm totally blind) is when adjusting basal 
> rates, and that only happens maybe quarterly, and that's based on me.
> For other diabetics, basal adjustments could happen more or less 
> frequently, but for me, so far, this is the only assistance I have 
> with my
pump.

> Wait, I do prefer to have sighted help filling cartridges. I do it on 
> my own if need be, but I do prefer sighted help. I know Veronica fills 
> her cartridges on her own though. I will have someone fill about a 
> month's worth of cartridges for me at a time though. And for me, a 
> cartridge last about a week.

> It's ultimately a personal choice to use a pump or not. Some have 
> found the benefits immense, others, not so much. Some start on a pump 
> and eventually go off it, not enjoying it as much as they originally 
> thought. For me, the pump has given me the best control over my 
> diabetes ever. I've been type 1 diabetic for 31 years now and using a 
> pump for 12 years. I started using a pump after I lost my sight. I 
> love the insulin pump, and it has helped me better manage my diabetes.
> My husband is blind, and I do not have sighted assistance whenever I 
> need it. So accessibility is important and crucial for me, like most 
> of us. Despite the lack of accessibility that should not be so 
> difficult to implement on a pump, I have made it work for several 
> years
now and I don't often require sighted assistance.

> I know this discussion goes round and round, but I feel like there has 
> to be something we can do as a collective to make accessibility in 
> medical devices more of an important issue than it is. Not sure what 
> answers exist, and I'm sure it will take a lot of hard work, but it 
> seems we need to be more proactive as a group to make accessibility in 
> the forefront for manufacturers.

> Okay, my rant for the day, grin.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bernadette Jacobs via Diabetes-Talk
> Sent: Tuesday, January 03, 2017 8:50 AM
> To: Jamie Gurganus <jamielgurganus at gmail.com>
> Cc: Bernadette Jacobs <bernienfb75 at gmail.com>; Diabetes Talk for the 
> Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Your new president...

> Jamie, my friend.

> Don't let any foolish pump wrap tell you that other blind people are 
> using their pumps successfully and independently. There is not one 
> totally accessible pump out there! And that's a fact! Even Veronica 
> and Bridget and other blind pump you service out here will tell you 
> the very same thing. My doctor has been wanting me to use a pump for 
> years and years. Haven't found One that's totally and completely
accessible yet. My husband agrees with me.
> He tells me the same thing. He says, honey there's not one accessible 
> pump out there and I don't want you to go on a pump until there is.
> We may have to bite the bullet at some point, however. And when I do, 
> the first thing I will do is post right here. You, my friend, are in 
> touch with the best. So, still, don't let anycompany's pump REP Tell 
> you that other blind folks are using their products successfully.
> Because there's not one of us out here The can't do something without 
> sighted assistance. And that's a fact. Have a great day!!

> Bern

> Sent from my iPhone

>> On Jan 3, 2017, at 8:51 AM, Jamie Gurganus <jamielgurganus at gmail.com>
> wrote:

>> Veronica,

>> I am a new subscriber to this site and found it while searching for 
>> other diabetics who are blind and use insulin pumps.  Much like you, 
>> I have been independently using an insulin pump for 18 years.  I am 
>> currently using the Accucheck Spirit, but Roche suddenly chose to not 
>> sell any of their Accucheck pumps any more.  And, like your Cosmo, my 
>> Spirit has about a month left before completely shutting down on me.
>> I did visit my Diabetic Educator and looked at the options for pumps.
>> I also decided that the Animas products would be the best, although 
>> not
> the perfect solution for me.
>> I also use the Dexcom G5, which my two teenagers help me use.  Even 
>> though it is inaccessible to me, I need to use it to help me detect 
>> my llow blood sugars.  I use my iPhone to know what my blood sugar is 
>> when it
> alarms me.

>> So, you and I are going to be learning how to use the Vibe together!
>> It will be a true test of how well I can memorize things at my age!  
>> I hope that we can keep in  touch and share our experiences of how we 
>> are conquering our new pumps!  The Animas rep assures me that they 
>> have other individuals who are blind or visually impaired and 
>> successfully using their pumps.  However, he could not tell me how I 
>> could contact these people.  I am hoping to find help through 
>> Diabetes
> Talk.

>>                Jamie

>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Bernadette Jacobs via Diabetes-Talk
>> Sent: Tuesday, January 03, 2017 7:15 AM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Bernadette Jacobs <bernienfb75 at gmail.com>
>> Subject: Re: [Diabetes-Talk] Your new president...

>> Thanks Veronica!!!

>> I certainly have to say, you and Bridgit have both taught me so very
much.
>> I can't imagine myself using a KNFB reader for something like that.
>> Although I do love my KNFB reader, it doesn't come without its 
>> limitations either.  And, believe me I had to practice using it to 
>> make it
> work for me.
>> I'm not perfect yet.  I can use it to read some of my mail and the kids'
>> notices they bring home in their bookbags.
>> But, I'm not sure I'd attempt to use it fore reading an insulin pump?
>> I think I'd rather have something a bit more fool-proof.  I'm not 
>> that brave.  Especially when my survival is at stake.  Scary.

>> Talk soon my friend and thank you so much for your vote of confidence.
>> This means a lot.

>> Bern

>> On 1/2/17, Veronica Elsea via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org>
>> wrote:
>>> Bern, I echo the bitter-sweet congratulations. I assure you that we 
>>> do not expect you to be Mike. <grin> I look forward to seeing how 
>>> this list and organization will grow under your leadership. And yes, 
>>> a definite group effort.
>>> I also look forward to seeing what the new technology will do. In 
>>> the meantime, I am checking out the current pumps as my beloved 
>>> Cozmo finally shrieked out its last system fault alarm. Yikes!
>>> Someone here mentioned awhile back that there was a blind person 
>>> using an OmniPod with some sort of app. I found out that he was 
>>> actually using a KNFB reader to try and read the screen. I'll 
>>> probably end up with the Animas Vibe but I'm struggling to get 
>>> around that notion of how much I'm losing compared to what I had.
>>> As for the artificial pancreas, I hope the technology it's based on 
>>> is more accurate than what we have now. Eventually it would be nice 
>>> to have to interact less with stuff, but I'm not so sure I want to 
>>> be in the first round. <grin> Never say never though.
>>> In the meantime, boy do I appreciate having a place to share 
>>> knowledge, to vent, to brag, to whine and to help each other. I 
>>> really do appreciate all of you and look forward to accomplishing as 
>>> much as we
>> can together.
>>> Onward,
>>> onward! Count me in!
>>> Veronica

>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>>> available on iTunes, along with other music from her and from the 
>>> Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>                Veronica Elsea, Owner Laurel Creek Music Designs 
>>> Santa Cruz, California
>>> Phone: 831-429-6407

>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Bernadette Jacobs via Diabetes-Talk
>>> Sent: Monday, January 02, 2017 8:45 AM
>>> To: Diabetes Talk for the Blind
>>> Cc: Bernadette Jacobs
>>> Subject: Re: [Diabetes-Talk] Your new president...

>>> Oh Bridgit!

>>> Thank you so kindly for your vote of confidence!! You're like a 
>>> breath of fresh air!

>>> Only trouble is, for Medicare patients, I think that these things 
>>> are so hard, as a matter of fact, too hard to get. You shouldn't 
>>> have to go through denials and appeals and denials and appeals. Too 
>>> bad the system is so broken!! We should not have to fight this hard 
>>> to survive. Just makes me sick!! However, I will be anxious to hear 
>>> more about the artificial pancreas.  I'm always anxious to hear more 
>>> when it comes. Talk very soon.

>>> Bern

>>> Sent from my iPhone

>>>> On Jan 2, 2017, at 9:50 AM, Bridgit Kuenning-Pollpeter via 
>>>> Diabetes-Talk
>>> <diabetes-talk at nfbnet.org> wrote:

>>>> Bernie,

>>>> Congrats, even though it's a bittersweet congratulations. You will 
>>>> do a fantastic job.

>>>> On a sidenote, speaking of sharing and learning from each other, I 
>>>> just
>>> want
>>>> to say that my doctor continues to bring up the artificial pancreas 
>>>> and
>>> how
>>>> it will be available on the market within the year to all diabetics.
>>>> He believes this will revolutionize diabetes even more than insulin 
>>>> pumps
>>> have.
>>>> He's eager and excited for the technology and for me to have the
>>> opportunity
>>>> to transition to one. Of course, I'm concerned about accessibility, 
>>>> but nonetheless, this is exciting news, and I'm sure many of us are 
>>>> excited about this technology.

>>>> The device will use a CGM to constantly monitor blood sugars. As it 
>>>> does this, it will automatically adjust insulin as needed. Little 
>>>> interaction will be necessary for the device.

>>>> More info about this is available online, but as I learn more, I 
>>>> will continue to share.

>>>> Happy New Year; may 2017 be fruitful for everyone.

>>>> Bridgit

>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>>> Behalf Of Bernadette Jacobs via Diabetes-Talk
>>>> Sent: Sunday, January 01, 2017 1:26 PM
>>>> To: diabetes-talk at nfbnet.org
>>>> Cc: Bernadette Jacobs <bernienfb75 at gmail.com>
>>>> Subject: [Diabetes-Talk] Your new president...

>>>> Good Afternoon Everyone!!!

>>>> Happy New Year!!!

>>>> Firstly, I'd like to begin by telling you a little bit about myself 
>>>> for those of you who don't know me.  I'm aware, however that most 
>>>> of you
>> do.
>>> I
>>>> am Bernadette Jacobs, formerly, about 18 years ago, Bernadette
> Krajewski.
>>> I
>>>> have been first vice-president now since, I believe, about 2007.
>>>> Don't hesitate to correct me if somebody out there finds me to be 
>>>> wrong.  At any rate, I did have a one-year break while Sandy Ryan 
>>>> served just last year--2015-2016.  Thank you Sandy.
>>>> Since the unfortunate passing of our illustrious and fearless 
>>>> leader Mike Freeman's passing, I will do my best to serve you as 
>>>> our Diabetes Action Network's president and your list moderator.

>>>> I will warn you.  I can't do this all alone, however.  I need all 
>>>> of you
>>> to
>>>> work with me and teach me as you have done about our conditions for 
>>>> the
>>> past
>>>> so many years.  Most of what I have learned about my own diabetes, 
>>>> I've learned from all of you.  You've been so gracious.  But that's 
>>>> what we're
>>> in
>>>> this thing for.  Right????  Helping each other and taking care of 
>>>> each other.  So, I'd like to say, Welcome home and Happy New Year!!!

>>>> I was diagnosed as a type II diabetic in about March of 1985.  
>>>> This, of course, was before the age of "pre-diabetes."  I have been 
>>>> insulin
>>> dependent
>>>> since 1999 when My husband Bill and I were first married and I 
>>>> became pregnant with the baby we lost in miscarriage.  I have been 
>>>> a member of
>>> the
>>>> Diabetes Action Network, (DAN) since its inception in 1985.

>>>> My mother was a diabetic and I lost my mother to complications of 
>>>> diabetes at the tender age of 13.  She, herself was only 47.  She 
>>>> had three heart attacks, the third of which, resulted in her 
>>>> passing.  I remember it as if were Yesterday.  When I came into 
>>>> DAN, I told it's then president, Ed Bryant, that my mother was a 
>>>> diabetic and died of complications.  He gave
>>> me
>>>> that gentle kick in the seat of the pants, "And you are diabetic
too..."
>>> Of
>>>> course, he also recognized I was in that old familiar river,
"Denial???"
>>> Ed
>>>> Bryant, the gentle man he was, took me under his fatherly wing and 
>>>> we
>>> worked
>>>> together up until his passing.  Mike came in and we all continued on.
>>>> I must say, that his passing on December 24, shocked and deeply 
>>>> saddened me just as it has everyone else.

>>>> Now, everyone, I'd like to take this time to thank you!!  For, it's 
>>>> all of you who've taught me so much about the conditions that we 
>>>> share together.
>>>> Taught me about insulin pumps, complications, and the heartaches 
>>>> we've suffered together as well as foo the positive bits of news.
>>>> There are so many of you that I simply can't wait to hear about 
>>>> something new you've learned, discovered and/or whatever else.  It 
>>>> simply warms my heart to the moon and back to hear from you as I 
>>>> feel like we're such a great big
>>> family.
>>>> Isn't it wonderful???  I think it's phantabulous!!!  SQUEEEEEZE!!!!!
>>>> i DO hope that all of you will continue to write in with all your 
>>>> things, both good and bad so that we can all continue to share, 
>>>> learn, and work
>>> together.
>>>> I'll miss you if you don't!!

>>>> Until next time, take care and have a great day!!!

>>>> Below, I'll be posting my Email, so that you can write me offlist 
>>>> for anything strictly confidential you might need help with.  I 
>>>> will then
>>> share
>>>> my cell phone with you that we may continue our work together.

>>>> Very Warmly,

>>>> Bernadette M. Jacobs, (Bernie, Bern).

>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
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>>>> To unsubscribe, change your list options or get your account info 
>>>> for
>>>> Diabetes-Talk:

>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpet
>>> e
>>> r
>>> %40gma
>>>> il.com

>>>> _______________________________________________
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>>>> for
>>> Diabetes-Talk:

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>>> 7
>>> 5
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>>> il.com

>>> _______________________________________________
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>>> 4
>>> 0
>>> laurel
>>> creekmusic.com

>>> _______________________________________________
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--
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skype: dmgina23
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every saint has a past
every sinner has a future

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