[Diabetes-Talk] KNFB reader and pump

Fri Jan 6 08:15:30 UTC 2017

Now I would have hated that rite away being that cold, I sticking foot 
in water would have stopped rite away.
What a brave lady you are.
Glad you got the feeting back in your feet again.

Original message:
> Yeah, I may do the same when I get mine. I did shower and swim with my old
> H-Tron and it did just fine. The Cozmo was happier not going in water. A few
> months ago I was visiting a friend and she invited me to swim in her pool,
> so of course, I did. Good thing my pump wasn't connect. It sure upset my
> Dexcom. I had no idea, until I jumped in, just how cold that water was. I'm
> not kidding, it was 45 degrees. I exercised anyway. But I couldn't feel my
> feet when I was done. It took the Dexcom almost a day to recover. <grin>
> Veronica

> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Wednesday, January 04, 2017 8:18 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] KNFB reader and pump

> Oh, meant to say that I've been told my Animas can completely submerge, but
> I've been to scared to try it. I don't even wear it in the shower. I just
> unhook while I swim, testing before and after.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-Talk
> Sent: Wednesday, January 04, 2017 9:01 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] KNFB reader and pump

> I used Facetime once when I couldn't remember whether or not I'd taken my
> insulin. As for the KNFB reader, I got it to read the remote for the Ping
> once but I'd really have to build a specific holder or it just takes too
> long to line things up. The OmniPod screen is one of the best for it though.
> And I sure don't think pregnancy is off topic here. Besides, we're kind of
> family here and even though I've never been pregnant, there's always
> something to be learned in terms of managing diabetes through changing
> hormones and such.
> And out of curiosity, Bridgit, where do you swim? I was swimming at the
> university and boy did that help my blood sugar readings. Actually, I wasn't
> doing laps but more like water exercises. But it was perfect for me. Only
> problem was running into a few bullies who yelled at me for not going
> straight, bla bla bla. I wish I could find a place where I could feel free
> and comfortable again. And of course, the Animas claims that I wouldn't have
> to take the pump off either. That could be nice. But boy the Dexcom sure
> freaked out when I spent that hour in the pool. It always thought I was low
> even though I wasn't.
> Anyway, keep up the good work, all of you and please keep those snippits of
> real life coming.
> Veronica

> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bernadette Jacobs via Diabetes-Talk
> Sent: Wednesday, January 04, 2017 6:33 PM
> To: Diabetes Talk for the Blind
> Cc: Bernadette Jacobs
> Subject: Re: [Diabetes-Talk] KNFB reader and pump

> Wow Bridget!! You're good!! I never thought of doing a FaceTime thing.
> Shoot!! That's a brilliant idea!! Like you say, in a pinch!!  And don't
> worry about the baby being off topic. I don't think it's off-topic it all.
> As a matter of fact, I think it's one of those right on target thanks. And
> my reason is because often times, pregnancy can really put a damper on your
> diabetes. You have to make a whole lot of changes all the time depending on
> what trimester you're in. Also depending on what either you or your baby are
> doing. There are so, so many variables!! My first pregnancy and my only
> pregnancy was not good at all. As a matter fact, that was what I said I had
> lost the baby and miscarriage. That was a long, hard, hot summer. They took
> the baby at 12 weeks. I was a very high risk pregnancy from the very
> beginning. Insulin reaction to every day. I would go up-and-down like a
> roller coaster for as long as seven hours at a time. It was miserable. It
> was obviously never meant to be. A matter of a few years after that, we
> adopted our two little blessings. Virginia is now 13 going on 14. David just
> turned 16 on Monday the second. Amazing!  Huh?

> Bern

> Sent from my iPhone

>> On Jan 3, 2017, at 12:36 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk
> <diabetes-talk at nfbnet.org> wrote:

>> Agree about the KNFB reader. I tried it once on my pump with no success.
>> Personally, I've not had great success using the app even for regular
>> reading. It works about 30% of the time for me. So I would not trust it
> for
>> something like my pump.

>> In a pinch, I will Facetime someone on my phone to make adjustments to my
>> pump, and this works well.

>> Bridgit

>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Bernadette Jacobs via Diabetes-Talk
>> Sent: Tuesday, January 03, 2017 7:15 AM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Bernadette Jacobs <bernienfb75 at gmail.com>
>> Subject: Re: [Diabetes-Talk] Your new president...

>> Thanks Veronica!!!

>> I certainly have to say, you and Bridgit have both taught me so very much.
>> I can't imagine myself using a KNFB reader for something like that.
>> Although I do love my KNFB reader, it doesn't come without its limitations
>> either.  And, believe me I had to practice using it to make it work for
> me.
>> I'm not perfect yet.  I can use it to read some of my mail and the kids'
>> notices they bring home in their bookbags.
>> But, I'm not sure I'd attempt to use it fore reading an insulin pump?
>> I think I'd rather have something a bit more fool-proof.  I'm not that
>> brave.  Especially when my survival is at stake.  Scary.

>> Talk soon my friend and thank you so much for your vote of confidence.
>> This means a lot.

>> Bern

>> On 1/2/17, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org>
>> wrote:
>>> Bern, I echo the bitter-sweet congratulations. I assure you that we do
>>> not expect you to be Mike. <grin> I look forward to seeing how this
>>> list and organization will grow under your leadership. And yes, a
>>> definite group effort.
>>> I also look forward to seeing what the new technology will do. In the
>>> meantime, I am checking out the current pumps as my beloved Cozmo
>>> finally shrieked out its last system fault alarm. Yikes! Someone here
>>> mentioned awhile back that there was a blind person using an OmniPod
>>> with some sort of app. I found out that he was actually using a KNFB
>>> reader to try and read the screen. I'll probably end up with the
>>> Animas Vibe but I'm struggling to get around that notion of how much
>>> I'm losing compared to what I had.
>>> As for the artificial pancreas, I hope the technology it's based on is
>>> more accurate than what we have now. Eventually it would be nice to
>>> have to interact less with stuff, but I'm not so sure I want to be in
>>> the first round. <grin> Never say never though.
>>> In the meantime, boy do I appreciate having a place to share
>>> knowledge, to vent, to brag, to whine and to help each other. I really
>>> do appreciate all of you and look forward to accomplishing as much as we
>> can together.
>>> Onward,
>>> onward! Count me in!
>>> Veronica

>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>>> available on iTunes, along with other music from her and from the
>>> Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>                Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407

>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bernadette Jacobs via Diabetes-Talk
>>> Sent: Monday, January 02, 2017 8:45 AM
>>> To: Diabetes Talk for the Blind
>>> Cc: Bernadette Jacobs
>>> Subject: Re: [Diabetes-Talk] Your new president...

>>> Oh Bridgit!

>>> Thank you so kindly for your vote of confidence!! You're like a breath
>>> of fresh air!

>>> Only trouble is, for Medicare patients, I think that these things are
>>> so hard, as a matter of fact, too hard to get. You shouldn't have to
>>> go through denials and appeals and denials and appeals. Too bad the
>>> system is so broken!! We should not have to fight this hard to
>>> survive. Just makes me sick!! However, I will be anxious to hear more
>>> about the artificial pancreas.  I'm always anxious to hear more when
>>> it comes. Talk very soon.

>>> Bern

>>> Sent from my iPhone

>>>> On Jan 2, 2017, at 9:50 AM, Bridgit Kuenning-Pollpeter via
>>>> Diabetes-Talk
>>> <diabetes-talk at nfbnet.org> wrote:

>>>> Bernie,

>>>> Congrats, even though it's a bittersweet congratulations. You will do
>>>> a fantastic job.

>>>> On a sidenote, speaking of sharing and learning from each other, I
>>>> just
>>> want
>>>> to say that my doctor continues to bring up the artificial pancreas
>>>> and
>>> how
>>>> it will be available on the market within the year to all diabetics.
>>>> He believes this will revolutionize diabetes even more than insulin
>>>> pumps
>>> have.
>>>> He's eager and excited for the technology and for me to have the
>>> opportunity
>>>> to transition to one. Of course, I'm concerned about accessibility,
>>>> but nonetheless, this is exciting news, and I'm sure many of us are
>>>> excited about this technology.

>>>> The device will use a CGM to constantly monitor blood sugars. As it
>>>> does this, it will automatically adjust insulin as needed. Little
>>>> interaction will be necessary for the device.

>>>> More info about this is available online, but as I learn more, I will
>>>> continue to share.

>>>> Happy New Year; may 2017 be fruitful for everyone.

>>>> Bridgit

>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>> Behalf Of Bernadette Jacobs via Diabetes-Talk
>>>> Sent: Sunday, January 01, 2017 1:26 PM
>>>> To: diabetes-talk at nfbnet.org
>>>> Cc: Bernadette Jacobs <bernienfb75 at gmail.com>
>>>> Subject: [Diabetes-Talk] Your new president...

>>>> Good Afternoon Everyone!!!

>>>> Happy New Year!!!

>>>> Firstly, I'd like to begin by telling you a little bit about myself
>>>> for those of you who don't know me.  I'm aware, however that most of you
>> do.
>>> I
>>>> am Bernadette Jacobs, formerly, about 18 years ago, Bernadette
> Krajewski.
>>> I
>>>> have been first vice-president now since, I believe, about 2007.
>>>> Don't hesitate to correct me if somebody out there finds me to be
>>>> wrong.  At any rate, I did have a one-year break while Sandy Ryan
>>>> served just last year--2015-2016.  Thank you Sandy.
>>>> Since the unfortunate passing of our illustrious and fearless leader
>>>> Mike Freeman's passing, I will do my best to serve you as our
>>>> Diabetes Action Network's president and your list moderator.

>>>> I will warn you.  I can't do this all alone, however.  I need all of
>>>> you
>>> to
>>>> work with me and teach me as you have done about our conditions for
>>>> the
>>> past
>>>> so many years.  Most of what I have learned about my own diabetes,
>>>> I've learned from all of you.  You've been so gracious.  But that's
>>>> what we're
>>> in
>>>> this thing for.  Right????  Helping each other and taking care of
>>>> each other.  So, I'd like to say, Welcome home and Happy New Year!!!

>>>> I was diagnosed as a type II diabetic in about March of 1985.  This,
>>>> of course, was before the age of "pre-diabetes."  I have been insulin
>>> dependent
>>>> since 1999 when My husband Bill and I were first married and I became
>>>> pregnant with the baby we lost in miscarriage.  I have been a member
>>>> of
>>> the
>>>> Diabetes Action Network, (DAN) since its inception in 1985.

>>>> My mother was a diabetic and I lost my mother to complications of
>>>> diabetes at the tender age of 13.  She, herself was only 47.  She had
>>>> three heart attacks, the third of which, resulted in her passing.  I
>>>> remember it as if were Yesterday.  When I came into DAN, I told it's
>>>> then president, Ed Bryant, that my mother was a diabetic and died of
>>>> complications.  He gave
>>> me
>>>> that gentle kick in the seat of the pants, "And you are diabetic too..."
>>> Of
>>>> course, he also recognized I was in that old familiar river, "Denial???"
>>> Ed
>>>> Bryant, the gentle man he was, took me under his fatherly wing and we
>>> worked
>>>> together up until his passing.  Mike came in and we all continued on.
>>>> I must say, that his passing on December 24, shocked and deeply
>>>> saddened me just as it has everyone else.

>>>> Now, everyone, I'd like to take this time to thank you!!  For, it's
>>>> all of you who've taught me so much about the conditions that we
>>>> share together.
>>>> Taught me about insulin pumps, complications, and the heartaches
>>>> we've suffered together as well as foo the positive bits of news.
>>>> There are so many of you that I simply can't wait to hear about
>>>> something new you've learned, discovered and/or whatever else.  It
>>>> simply warms my heart to the moon and back to hear from you as I feel
>>>> like we're such a great big
>>> family.
>>>> Isn't it wonderful???  I think it's phantabulous!!!  SQUEEEEEZE!!!!!
>>>> i DO hope that all of you will continue to write in with all your
>>>> things, both good and bad so that we can all continue to share,
>>>> learn, and work
>>> together.
>>>> I'll miss you if you don't!!

>>>> Until next time, take care and have a great day!!!

>>>> Below, I'll be posting my Email, so that you can write me offlist for
>>>> anything strictly confidential you might need help with.  I will then
>>> share
>>>> my cell phone with you that we may continue our work together.

>>>> Very Warmly,

>>>> Bernadette M. Jacobs, (Bernie, Bern).

>>>> _______________________________________________
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>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
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>>> laurel
>>> creekmusic.com

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