[Diabetes-Talk] Just talked with Animas.

Tue Oct 17 12:34:26 UTC 2017

Good Morning Everyone!!!!!

I want you all to know that a meeting will be taking place tomorrow
morning and I want you all to know that your PANIC is not going
un-noticed.  I, as president of DAN, have forwarded this on and this
will be passed on appropriately.  I can assure you that I will
disclose more to you at which time I am allowed!!!  Promise!!!

Have a phantabulous day!!!!!

Bern

On 10/17/17, Jamie Gurganus via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> And, older models may not be available nor supported at this point.  Kind of
> like buying a 4S iPhone.
>
> 				Jamie
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-Talk
> Sent: Monday, October 16, 2017 9:40 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] Just talked with Animas.
>
> Now I'll look to see if we could still get it. The Paradigm came before the
> Rebel, then the 530, then the 630 and now the 670. So it is definitely an
> older model.
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Jamie Gurganus via Diabetes-Talk
> Sent: Monday, October 16, 2017 5:52 PM
> To: Diabetes Talk for the Blind
> Cc: Jamie Gurganus
> Subject: Re: [Diabetes-Talk] Just talked with Animas.
>
> Thanks Eileen! This gives me hope that I could possibly use the med Tronic
> with some adjustments and lots of practice.
>
>     Jamie
>
> Sent from my iPhone
>
>> On Oct 16, 2017, at 5:04 PM, Eileen Scrivani via Diabetes-Talk
>> <diabetes-talk at nfbnet.org> wrote:
>>
>> Jamie,
>>
>> I have the Medtronics Paradigm pump. Yes, I can change the battery on my
>> own as a totally blind person. The battery compartment requires a coin to
>> get it started which is not difficult at all.
>>
>> I change out the infusion set and reservoir and rewind the pistons on the
>> pump every 3rd day totally on my own. From time to time things go wrong if
>> I’m not paying complete attention and lose my focus. Then I might call for
>> help from family or friends to make a stop over. Because of the
>> possibility of needing assistance I change during early afternoon, not
>> late at night. Sometimes if I’m not sure that I’ve backed out of the menus
>> I’ll just take the battery out for a second or two and then when I restart
>> the process its back to where I expect it to be. My pump has an escape
>> button on it that helps me cancel out of something or back out. I do the
>> bolis dosages on my own and the pump beeps with every press of the button.
>> At the point I press what is the Act/okay button it counts back with beeps
>> and then I press Act another time if the dose is correct and the insulin
>> starts delivering. If I decide its the wrong dose and I change my mind if
>> I just ignore it it will give a tri-tone beep so I know it cancelled out
>> or I can press escape and it also will cancel out the dose.
>>
>> The CDE who trained me with the pump was from Medtronics and she was
>> great.
>>
>> When filling the reservoir I use a length of staples that are taped
>> together for drawing up the insulin into it. I had the staples from when I
>> used syringes and it works perfectly for the pump refill.
>>
>> The things the CDE had me do to make it easier to use is set it so I never
>> get a low reservoir alarm going off. This means that I must absolutely be
>> aware of the day when I’m due to change out the infusion set and reservoir
>> and pay total attention if I am using big amounts of insulin that will
>> make the pump run low before the change out date. I also fill the
>> reservoir with 200 units of insulin which for me is more than enough to
>> get through the 3 days. In other words its set up that I’ll never run out
>> of insulin during the 3 days.
>>
>> The other thing I also due so the low battery alarm doesn’t go off on me
>> is at the beginning of every month no matter if its needed or not I change
>> the battery.
>>
>> That's all I can think of right now to tell you.
>>
>> Eileen
>>
>> From: Jamie Gurganus via Diabetes-Talk
>> Sent: Monday, October 16, 2017 3:37 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Jamie Gurganus
>> Subject: Re: [Diabetes-Talk] Just talked with Animas.
>>
>> Thanks Eileen.  So, are you able to use a Medtronic pump without sighted
>> help?  I know that none will let us program the basal rates, but can you
>> unlock the pump, give a bolus and change the cartridge and battery on your
>> own?  Those are the four things that I have been able to do independently
>> with my Spirit and now the Animas Vibe.
>>
>> Jamie
>>
>>
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Eileen Scrivani via Diabetes-Talk
>> Sent: Monday, October 16, 2017 2:26 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: Re: [Diabetes-Talk] Just talked with Animas.
>>
>> Hi Jamie,
>>
>> Medtronics for years has been the leading insulin pump on the market. I
>> have a Medtronics pump and have been happy with it and support from the
>> company when I’ve run into issues has been good. However, when it comes to
>> listening to input they stink, but that’s not any different from any of
>> the other insulin pump manufacturers. Some years back I had my family
>> members and friends write to Medtronics asking them about an accesssible
>> pump and when they might consider developing one. No one who wrote,
>> including myself, got a response.
>>
>> Eileen
>>
>>
>> From: Jamie Gurganus via Diabetes-Talk
>> Sent: Monday, October 16, 2017 3:18 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Jamie Gurganus
>> Subject: Re: [Diabetes-Talk] Just talked with Animas.
>>
>> Does anyone know why this is happening?  Does Medtronic really have the
>> monopoly on insulin pumps?  If this is the case, then we need to figure
>> out who to talk to at Medtronic and insist that they make the pump more
>> accessible to the blind.
>>
>> Jamie
>>
>>
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, October 16, 2017 1:51 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: [Diabetes-Talk] Just talked with Animas.
>>
>> Hi everyone.
>> Just thought I'd let you know that according to the person I spoke with on
>> the phone, all warranties will be honored until September 30 of 2019. So
>> those of us who just got our pumps won't have the full 4 years, but we'll
>> have two. When I explained that the letter was unclear, he sent a note up
>> to get a clarification put up on the web site.
>> So if this guy is correct, this would mean that Jamie and I would have two
>> years for some miracle to occur and a more accessible pump to appear. But
>> I guess everyone will hear from Medtronic when the warranty is about to
>> expire.
>> The thing that concerns me is that all of the remaining pumps require one
>> to look at the screen just to unlock the pump.
>> Joyce, didn't you briefly try the 630G? Of course, anyone with a warranty
>> about to expire, oh man! We've sure got some work to do here.
>> Veronica
>>
>>
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available
>> on iTunes, along with other music from her and from the Guide Dog Glee
>> Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>>
>>
>>
>>
>> _______________________________________________
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>>
>>
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>> 40verizon.net _______________________________________________
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>>
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>
> _______________________________________________
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>
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