[Diabetes-Talk] Fwd: Personal stories

Eileen Scrivani etscrivani at verizon.net
Wed Apr 4 00:01:47 UTC 2018


Hi Bernadette,

Isn’t this the same request that was sent out several months back? If it is I sent a letter then. Do I need to re-submitt?

Eileen

From: Bernadette Jacobs via Diabetes-Talk 
Sent: Tuesday, April 3, 2018 3:07 PM
To: diabetes-talk at nfbnet.org 
Cc: Bernadette Jacobs 
Subject: [Diabetes-Talk] Fwd: Personal stories



Sent from my iPad

Begin forwarded message:

> From: "Hedtler-Gaudette, Dylan" <DHedtler-Gaudette at nfb.org>
> Date: April 3, 2018 at 2:03:18 PM EDT
> To: "Jacobs, Bernadette" <bernienfb75 at gmail.com>
> Subject: RE: Personal stories
> 
> Thanks Bernie! And yes, please do have them send the stories to me.
>  
> Best,
> ~Dylan
>  
> From: Bernadette Jacobs [mailto:bernienfb75 at gmail.com] 
> Sent: Tuesday, April 3, 2018 1:41 PM
> To: Hedtler-Gaudette, Dylan <DHedtler-Gaudette at nfb.org>
> Subject: Re: Personal stories
>  
> I’ll  send out a message right away Dylan!!  Shall I have everyone send their submissions directly to you?
>  
> Talk soon.
>  
> Bernie
>  
>  
> 
> Sent from my iPhone
> 
> On Apr 3, 2018, at 11:38 AM, Hedtler-Gaudette, Dylan <DHedtler-Gaudette at nfb.org> wrote:
> 
> Hi Bernie:
>  
> I hope you’re doing well and that you and your family had a lovely Easter weekend.
>  
> I have a request for you and I’m hoping it’s something we can move on quickly.
>  
> Do you think you could solicit personal stories from DAN members about the general hardships and challenges they face due to the lack of accessible diabetic equipment? Relatedly, it would also be really helpful to have a personal story or two from folks who are directly experiencing the problem of getting the Dexcom CGM because Medicare won’t cover it and how that complicates their lives.
>  
> I am trying to collect these personal stories so they can be used in our advocacy. Please also ask your members if it is permissible for us to refer to their names and their stories when we talk about these issues with  members of Congress or with other stakeholders.
>  
> Thanks so much Bernie!
>  
> Best,
> ~Dylan
>  
> Dylan Hedtler-Gaudette
> Government Affairs Specialist
> 200 East Wells Street, Baltimore, MD 21230
> (410) 659-9314, extension 2210 | DHedtler-Gaudette at nfb.org
>  
>  
> 
>  
>                                   
>  
> The National Federation of the Blind is a community of members and friends who believe in the hopes and dreams of the nation’s blind. Every day we work together to help blind people live the lives they want.
>  
>  
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