[Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Thu Jan 4 00:17:13 UTC 2018

Hi Veronica,
The Diabetes Action Network Board actually has been working on this matter
for a few months.  The reason it is not just Diabetes related items is
because this needs to encompass many more devices and more Americans!
Because then, Congress may pay more attention! 
Warmly, Joy

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
Medical Technology for the Blind

I also received this message and it struck me a little odd.
I hope this is something real but why didn't they say something about
working with the DAN affiliate rather than just collecting a bunch of
individual message. I'm just a bit leary of someone starting a project who
knows nothing about the real issues with various medical devices. I get that
some sort of task force was being created or something but it did concern me
a bit. 
I have just written so many messages to so many people in NFB with no
obvious result that I'm looking for more detail before doing it again. Like
I said, I want something real. Thanks.
Veronica

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:24 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
Medical Technology for the Blind

Hello All,

I got the below very interesting message this afternoon. I already wrote to
Eric Duffy and hope the rest of you who want to see accessibility and more
access to medical devices that will make manageing our diabetes better and
easier will do the same.

Eileen

From: Hedtler-Gaudette,Dylan via NFBNet-Members-List
Sent: Wednesday, January 3, 2018 1:29 PM
To: nfbnet-members-list at nfbnet.org
Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for
the Blind

Greetings fellow Federationists!

I hope and trust that you all had a wonderful holiday season.

President Riccobono has asked us to prioritize a number of important
initiatives in 2018. I am writing today to share with you that the National
Federation of the Blind is jump starting its work aimed at addressing the
critical issue of accessibility and medical technology and devices. Although
this will be coordinated from the NFB Jernigan Institute, it will require
the participation and collaboration of Federationists around the country. 

As far too many of you know all too well, the lack of accessibility when it
comes to vital medical equipment can be inconvenient at best but dangerous
and risky in many cases. We are therefore creating the Accessible Medical
Technology Working Group (AMT-WG), which will be tasked with investigating
concerns, devising strategies and making recommendations to President
Riccobono. 

We will need your help as we get started. In order to focus our work and
direct our energies appropriately, we are requesting feedback from you that
will let us know what issues are being encountered as a result of
inaccessible medical technologies and devices. You do not need to share any
personal or private information; we are only looking for the names of
devices and technologies that pose accessibility challenges, that way we can
channel our attention to where it is needed most. Please be sure to be
specific about what aspects of the device make them less accessible. We
would also appreciate you letting us know about any medical technology or
devices that are accessible so we can refer to those as positive examples of
how accessibility can be done right in this space. 

If you have any feedback to share or ideas as to what types of medical
technologies and devices need to be a part of this initiative, please send
your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at
dhedtler-gaudette at nfb.org.

Thank you all for your help as we get this project started. Your
contributions will be invaluable and we look forward to making progress
together in the area of accessible medical technology in 2018!

Sincerely,

Eric Duffy, Director of Access Technology

Dylan Hedtler-Gaudette, Government Affairs Specialist 

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