[Diabetes-Talk] apology re using insulin pumps

Sat Feb 9 12:59:13 UTC 2019

Paul,

     I'm sorry that responses to your suggestions elicited negative responses from some people.  Yes, we are frustrated with having to figure out how to navigate pumps, meters, etc. that are not designed for the use of a diabetic who is blind.  However, this site is designed to support each other, and telling us what works for you is what you are supposed to do.  I'm sorry you feel  that your suggestion was not appreciated and upsetting to others on the list.  If it works for you, then it is worth sharing with others.  

I find this mailing list extremely helpful, and I have always been the type to listen to a suggestion or idea and take from it what I need and move on from there.  That bit of advice from my mom has helped me maintain a good relationship with my mother-in-law over the years!

I hope you will continue to share what works for you when someone poses a question to the group.  I'm glad to hear from a fellow diabetic from Australia.  I bet it is beautiful there right now compared to the negative degree weather we are having here in Iowa!  

				Jamie

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Paul Magill via Diabetes-Talk
Sent: Saturday, February 9, 2019 1:17 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Paul Magill <magills at bigpond.com>
Subject: Re: [Diabetes-Talk] apology re using insulin pumps

Hi all,

I should have realised that people would have already considered what Iput forward, and that there was no need for me to  suggest it on list, which quite understandably irritated people who already have enough problems dealing with the manufacturer's obstinance.

I have benefitted so much from being on this list, that I thought I might offer something in return, without giving it due consideration.

With apologies,
Paul from Australia.

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Amber Wallenstein via Diabetes-Talk
Sent: Friday, 8 February 2019 5:51 PM
To: Diabetes Talk for the Blind
Cc: Amber Wallenstein
Subject: Re: [Diabetes-Talk] using insulin pumps

There are several problems with this.
1. You are assuming I have the smart phone or glasses to use AIRA. 
2. You are also assuming I have the funds to buy AIRA services each month. And you can’t miss a month if you buy this inaccessible pump, because of the inaccessibility, you would have to use it. What if something happens to AIRA and it is no longer operational? 
3.  It also gives the company a pass on accessibility.  If I buy the pump, what is their incentive to make it accessible?
4.  The fact I would have to use AIRA or another service is extremely disconcerting to me… I don’t really want a person knowing that information about me.  In addition, I’m not sure I feel comfortable telling this person information about me, or having to have them direct me on everything I must do. Frankly it’s another cumbersome step in what I need to do to access my own care.
So unless the companies of the inaccessible pumps were to pay for AIRA, the equipment to access it, and pay me to be trained on how to use AIRA effectively, I pass.
Amber

> On Feb 7, 2019, at 11:29 PM, Paul Magill via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> 
> 
> Hi all,
> 
> 
> 
> All I know about insulin pumps is what I have read on this list, but 
> may I make a suggestion re using the touch screen controller:
> 
> 
> 
> Would it help to use the Aira service to have an agent tell you where 
> the appropriate control is, so you can press it.
> 
> 
> 
> https://aira.io/
> 
> 
> 
> Regards,
> 
> Paul from Australia
> 
> 
> 
> _______________________________________________
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