[Diabetes-Talk] free style libre
Bridgit Kuenning-Pollpeter
bkpollpeter at gmail.com
Sat Jan 5 05:22:37 UTC 2019
Yes, agree.
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
Sent: Friday, January 4, 2019 10:52 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: sandi <sjryan2 at gmail.com>
Subject: Re: [Diabetes-Talk] free style libre
And the thing is, we shouldn’t have to memorize things and figure out how to work around inaccessibilities. Each time we do that we give them an excuse not to make things more accessible, and we say we’re willing to struggle along with what’s available.
Sandi
Sent from Mail for Windows 10
From: Jamie Gurganus via Diabetes-Talk
Sent: Friday, January 4, 2019 8:16 PM
To: 'Diabetes Talk for the Blind'
Cc: jamielgurganus at gmail.com
Subject: Re: [Diabetes-Talk] free style libre
Bridget,
I looked at the Tandem with my educator, and it is all touch screen like an iPhone. There is no way to even memorize where to touch on it, since every touch changes the screen. It is a wonderful pump for sighted people or those with low vision who can read the screen. Too bad they didn't ask Apple how to put Voice Over on it.
Jamie
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Friday, January 4, 2019 2:39 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] free style libre
So it doesn't work for us totally blind people. That's the thing. Up until now, we found work-arounds for existing pumps, but now, pumps are not able to be done completely nonvisually. A majority of us on this list using pumps are totally blind, or can't use our remaining vision at all to use it. So recommending a pump you are essentially using with sight doesn't help.
Bridgit
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Melanie Torrance via Diabetes-Talk
Sent: Friday, January 4, 2019 10:29 AM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Melanie Torrance <melanietorrance at icloud.com>
Subject: Re: [Diabetes-Talk] free style libre
Yes-I am using it without sighted assistance. I’m low vision, and the pump display is easy for me to read. I has high contrast display, and the letters are large enough for me to see. What I love about it is that I don’t need the Dexcom receiver, CGM readings display right on the pump.
Melanie
Sent from Melanie's i phone
> On Jan 4, 2019, at 11:17 AM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>
> Hi Melanie,
>
> If you don’t mind, can you tell me if you are using the Tandem T connect insulin pump independently without any sighted assistance? As I wrote in another message I will be looking to upgrade very soon.
>
> Thanks.
>
> Eileen
>
> From: Melanie Torrance via Diabetes-Talk
> Sent: Friday, January 4, 2019 10:45 AM
> To: Diabetes Talk for the Blind
> Cc: Melanie Torrance
> Subject: Re: [Diabetes-Talk] free style libre
>
> I’m using the Tandem T connect insulin pump which interacts with Dexcom. Tandem also told me that it would be April before the G6 can be used for Medicare.
> Melanie
>
> Sent from Melanie's i phone
>
>> On Jan 3, 2019, at 10:07 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>
>> Well, as of today, the third, they certainly aren't covering mine. I tell you, nasty verbage will fly if they turn out to be covering the upgrade for G5 users and not those of us paying cash. But yesterday I was speaking with the Medicare department at Dexcom. You'd think they'd know. Also, my endocrinologist had a conversation with the local Dexcom rep today and she also said April. Frankly, I wouldn't trust the words from Dexcom staff any further than I can see right now. And I'm a total.
>> And this morning they told me that they'd get my order right out and send me an extra sensor and transmitter to make up for the mess. But big surprise! Nothing happened. So unless something miraculous happens, come Monday, I'll be out of everything. Isn't that special! Guess I'll call again in the morning. I hate feeling this discouraged and disheartened, I really do. Just when I got my A1C below 7 for the first time too. Anyway, thanks for letting me vent, if you're still reading. I'm hoping I can get my frustration out of my system a bit so I can cheer up for my hubby. <grin> Thanks again.
>> Veronica
>>
>>
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>> Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>>
>>
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Jamie Gurganus via Diabetes-Talk
>> Sent: Thursday, January 03, 2019 5:58 PM
>> To: Diabetes Talk for the Blind
>> Cc: Jamie Gurganus
>> Subject: Re: [Diabetes-Talk] free style libre
>>
>> I was told the same thing when I called Dexcom on New Year’s Eve for a little technical assistance.
>>
>> Sent from my iPhone
>>
>>> On Jan 3, 2019, at 2:45 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>
>>> That's not what I was told by my Dexcom rep and nurse educator. I was told that as of the New Year, Medicare will cover the G6, and that when I'm ready to upgrade, which I will be with my next order well before April, I can get the G6 version.
>>>
>>> Bridgit
>>>
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>> Veronica Elsea via Diabetes-Talk
>>> Sent: Thursday, January 3, 2019 2:42 PM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>>> Subject: Re: [Diabetes-Talk] free style libre
>>>
>>> Bridgit, Medicare definitely is not yet covering the G6 yet. Not until April. That's as of this morning.
>>> Veronica
>>>
>>>
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>> Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>>
>>>
>>>
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Thursday, January 03, 2019 6:57 AM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] free style libre
>>>
>>> Walter,
>>>
>>> Medicare does cover Dexcom, both G5 and G6 now. I'm on Medicare as are others on this list usin Dexcom.
>>>
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>> Walter Mitchell via Diabetes-Talk
>>> Sent: Thursday, January 3, 2019 6:34 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: Walter Mitchell <walterl.mitch2 at gmail.com>
>>> Subject: Re: [Diabetes-Talk] free style libre
>>>
>>> Hello everyone, I hope and pray that you all had a wonderful holiday season!
>>>
>>> I have a few questions about the Libre. My doctor explained to me that I do not qualify for a Dexcum thru Medicare, so is there qualifying criteria to get a Libre? Is the cost of it covered by Medicare? If not, how much are they on average?
>>>
>>> I apologize if these questions have been answered previous to now, but I was under the impression that I would get a Dexcum.
>>>
>>> Thanks,
>>> Walter Mitchell
>>>
>>>
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Greg Wocher via Diabetes-Talk
>>> Sent: Thursday, December 27, 2018 6:41 AM
>>> To: Diabetes Talk for the Blind
>>> Cc: Greg Wocher
>>> Subject: Re: [Diabetes-Talk] free style libre
>>>
>>> Hello,
>>>
>>> You do not have to wait till the old sensor ends to start a new one.
>>> If you are using the app on your phone there is a button that says
>>> sensor icon. Double tap on this and it will ask you to scan the
>>> sensor. Once you scan the sensor on the main page it will ask at the
>>> very bottom if you want to start a new sensor answer yes and the
>>> scan new sensor button should appear.’’Greg Wocher
>>>
>>> Sent from my iPad
>>>
>>>> On Dec 26, 2018, at 9:01 PM, d m gina via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>>
>>>> I got a little bit of tape near the dot as I call the cencer.
>>>> The gentleman said he thought it should still read.
>>>> What is interesting, is the app still thinks I have the other one on.
>>>> So I have to wait 20 hours before it will read this one.
>>>> We couldn't find where it says start a new cencer.
>>>> So I am waiting.
>>>>
>>>>
>>>> Original message:
>>>>> No, it's not just for swimming. Obviously, once it's on, it's not
>>>>> coming off unless you also remove the sensor, and you're not going
>>>>> to do that unless it's time to change the sensor. There's nothing
>>>>> wrong using the overlay for every day use too. When placing it
>>>>> over, just make sure the middle cut-out section does not cover
>>>>> where the transmitter goes. It's probably okay if you place the
>>>>> overlay after the transmitter, but others on the list probably know better than me if this is okay.
>>>>
>>>>> Bridgit
>>>>
>>>>> -----Original Message-----
>>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf
>>>>> Of d m gina via Diabetes-Talk
>>>>> Sent: Wednesday, December 26, 2018 7:45 PM
>>>>> To: diabetes-talk at nfbnet.org
>>>>> Cc: d m gina <dmgina at mysero.net>
>>>>> Subject: Re: [Diabetes-Talk] free style libre
>>>>
>>>>> I found this one I got with the center cut out harder to put on
>>>>> like they thought it should be.
>>>>> I went over to wallmart where I was allowed to put on the cencer
>>>>> then the tape.
>>>>> This is just for swimming they say.
>>>>
>>>>> Original message:
>>>>>> You can wear the sensor anywhere on the body, and the overlay is
>>>>>> not just for swimming. It's just an extra measure to keep the
>>>>>> sensor in place. The overlay can be used for any reason.
>>>>
>>>>>> -----Original Message-----
>>>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf
>>>>>> Of d m gina via Diabetes-Talk
>>>>>> Sent: Wednesday, December 26, 2018 12:10 PM
>>>>>> To: diabetes-talk at nfbnet.org
>>>>>> Cc: d m gina <dmgina at mysero.net>
>>>>>> Subject: Re: [Diabetes-Talk] free style libre
>>>>
>>>>>> I didn't see that.
>>>>>> I still am learning how to put it on.
>>>>>> Will try again in a different place and pray I do it correctly.
>>>>>> As long as I know i have the rite tape for it.
>>>>>> It is round with the center cut out.
>>>>>> I understand it is for swimming.
>>>>>> I am over whelmed..
>>>>
>>>>
>>>>>> Original message:
>>>>>>> Yes, as has been said on the list before, you can wear the
>>>>>>> sensor pretty much anywhere on your body.
>>>>
>>>>>>> -----Original Message-----
>>>>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf
>>>>>>> Of Greg Wocher via Diabetes-Talk
>>>>>>> Sent: Wednesday, December 26, 2018 5:32 AM
>>>>>>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>>>>>>> Cc: Greg Wocher <gwocher at gwocher.com>
>>>>>>> Subject: Re: [Diabetes-Talk] free style libre
>>>>
>>>>>>> Hello,
>>>>>>> You can buy extra tape to help keep it stuck from Amazon. Also
>>>>>>> if you search on Google you can find information on people using
>>>>>>> the sensors in other places besides the arm. I have seen videos
>>>>>>> where people have placed them on their stomachs or their thighs.
>>>>>>> Basically anywhere you can pinch to take an insulin injection.
>>>>
>>>>>>> Greg Wocher
>>>>
>>>>
>>>>>>>> On Dec 26, 2018, at 1:00 AM, d m gina via Diabetes-Talk
>>>>>>> <diabetes-talk at nfbnet.org> wrote:
>>>>
>>>>>>>> I had something happen that took me by surprise.
>>>>>>>> I was wearing the 14 day patch when it decided yesterday to come off.
>>>>>>>> I could see that the backing of it wasn't going to hold any more.
>>>>>>>> I could feel the needles that I was sure wouldn't go back in.
>>>>>>>> How do you keep it on all the days it says it has.
>>>>>>>> Withe the cost I need to put out $119.95 I need to make sure it
>>>>>>>> will hold
>>>>>>> until I want to take it off.
>>>>>>>> I understand that the only place this is going to work is on the arms.
>>>>>>>> I made sure it didn't get all that wet in the shower and that
>>>>>>>> was the most
>>>>>>> water it was near.
>>>>>>>> My insurance pays $11 where I need to be grateful for that.
>>>>>>>> Just some thoughts, or I will have to stop using it no matter
>>>>>>>> how much fun
>>>>>>> I had with it.
>>>>>>>> I don't test at all as much as I did with it.
>>>>>>>> Get tired of my fingers hurting all of the time, so I just test
>>>>>>>> when I
>>>>>>> feel I need to do so.
>>>>>>>> I understand that I need to get a yes from the doctor wich I
>>>>>>>> did, but
>>>>>>> can't buy this from amazon, I know it would be cheaper there.
>>>>>>>> Some insurance give a 90 day supply where humana at this time
>>>>>>>> on this
>>>>>>> doesn't.
>>>>>>>> Thanks for any help you can give me.
>>>>
>>>>>>>> --
>>>>>>>> --Dar
>>>>>>>> skype: dmgina23
>>>>>>>> FB: dmgina
>>>>>>>> www.twitter.com/dmgina
>>>>>>>> every saint has a past
>>>>>>>> every sinner has a future
>>>>
>>>>>>>> _______________________________________________
>>>>>>>> Diabetes-Talk mailing list
>>>>>>>> Diabetes-Talk at nfbnet.org
>>>>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>>>>> To unsubscribe, change your list options or get your account
>>>>>>>> info for
>>>>>>> Diabetes-Talk:
>>>>
>>>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gwoch
>>>>>>> er%
>>>>>>> 40
>>>>>>> g
>>>>>>> wocher
>>>>>>> .com
>>>>
>>>>
>>>>>>> _______________________________________________
>>>>>>> Diabetes-Talk mailing list
>>>>>>> Diabetes-Talk at nfbnet.org
>>>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>>>> To unsubscribe, change your list options or get your account
>>>>>>> info for
>>>>>>> Diabetes-Talk:
>>>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpoll
>>>>>>> pet
>>>>>>> er
>>>>>>> %
>>>>>>> 40hotm
>>>>>>> ail.com
>>>>
>>>>
>>>>>>> _______________________________________________
>>>>>>> Diabetes-Talk mailing list
>>>>>>> Diabetes-Talk at nfbnet.org
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>>>>>>> To unsubscribe, change your list options or get your account
>>>>>>> info for
>>>>>>> Diabetes-Talk:
>>>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgin
>>>>>>> a%4
>>>>>>> 0m
>>>>>>> y
>>>>>>> sero.net
>>>>
>>>>>> --
>>>>>> --Dar
>>>>>> skype: dmgina23
>>>>>> FB: dmgina
>>>>>> www.twitter.com/dmgina
>>>>>> every saint has a past
>>>>>> every sinner has a future
>>>>
>>>>>> _______________________________________________
>>>>>> Diabetes-Talk mailing list
>>>>>> Diabetes-Talk at nfbnet.org
>>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>>> To unsubscribe, change your list options or get your account info
>>>>>> for
>>>>>> Diabetes-Talk:
>>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollp
>>>>>> ete
>>>>>> r%
>>>>>> 40hotm
>>>>>> ail.com
>>>>
>>>>
>>>>>> _______________________________________________
>>>>>> Diabetes-Talk mailing list
>>>>>> Diabetes-Talk at nfbnet.org
>>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>>> To unsubscribe, change your list options or get your account info
>>>>>> for
>>>>>> Diabetes-Talk:
>>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina
>>>>>> %40
>>>>>> my
>>>>>> sero.net
>>>>
>>>>> --
>>>>> --Dar
>>>>> skype: dmgina23
>>>>> FB: dmgina
>>>>> www.twitter.com/dmgina
>>>>> every saint has a past
>>>>> every sinner has a future
>>>>
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info
>>>>> for
>>>>> Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollp
>>>>> ete
>>>>> r%40gma
>>>>> il.com
>>>>
>>>>
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%
>>>>> 40m
>>>>> ysero.net
>>>>
>>>> --
>>>> --Dar
>>>> skype: dmgina23
>>>> FB: dmgina
>>>> www.twitter.com/dmgina
>>>> every saint has a past
>>>> every sinner has a future
>>>>
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gwocher%
>>>> 40g
>>>> wocher.com
>>>
>>>
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>>> itch2%40gmail.com
>>>
>>>
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>>>
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>>> 40laurelcreekmusic.com
>>>
>>>
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>>>
>>>
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>>> ganus%40gmail.com
>>
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>> 0laurelcreekmusic.com
>>
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>> rance%40icloud.com
>
>
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