[Diabetes-Talk] Questions regarding Victoza and ending treatment

Sat Jun 15 15:40:45 UTC 2019

I just did some research and found out this--even if side effects of Victoza are bad, Victoza is not one of those medications you should just stop. It should either be tapered every other day, or the dose lowered. If not, blood sugars will go up until a replacement is found. Teri, I was on the phone with a pharmacist about another issue and I asked, out of curiosity, and did some research as well on the computer. 

Jeanette
-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Saturday, June 15, 2019 11:02 AM
To: 'Diabetes Talk for the Blind'
Cc: Jeanette Kutash
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Let me restate--I never said I decreased my dose of Victoza. Please read emails carefully. I said you might want to consider doing this, but would never encourage it unless discussed with your doctor.

And to the person who states Victoza will soon be discontinued, please email back and tell me where you found that information. I will also do more research.

Thank you.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Saturday, June 15, 2019 12:18 AM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri,

As its already been mentioned from others here, its really important that you discuss this with your doctor before changing up your medications and routines around taking them. It sounds to me like you’re taking high doses of insulin and it makes me think you are eating a large number of carbs in your diet. Have you ever asked your doctor to send you to either a CDE or a nutritionist for nutritional counseling. The carb to insulin ratio is very important in knowing how much insulin you need to X-number of carbohydrates at meals. The carb to insulin ratio is a personal thing and varies from person to person so you should really have a nutritionist who specializes in diabetes go over this with you.

Good luck.

Eileen

From: Terri Stimmel via Diabetes-Talk 
Sent: Friday, June 14, 2019 10:31 PM
To: Diabetes Talk for the Blind 
Cc: Terri Stimmel 
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

First of all, I appreciate all the responses to my questions. I wasn’t sure if anyone would respond. Or if anyone would have any ideas. So I am so thankful.

Also, let me explain something that I left out earlier. I wasn’t thinking about this. But I am currently on two different insulin’s. I take a long lasting, and a quick acting. For my long-lasting, I take Tresiba For my quick acting, I take novalog. They definitely seem to help me a lot. Before I stopped taking the Victoza, I did notice that my blood sugar was starting to go up some. I’m not sure why. But it would be in the low 200s. But now without the Victoza, as I mentioned earlier, it could be up around 400. Also, are use the libre system to test my blood sugar. I was taking both my insulin and my Victoza in the morning. And then just the quick acting insulin with my other meals. I take 50 units of the long acting. Then I take 15 units of the quick acting, that’s my base. But if my blood sugar is over 150, then I add two units. Then if it is  200, then I add three units, and so on. 

You know, I never thought about taking my tresiba at night. I wonder if that would help me more? That’s an idea. And I wonder if maybe I could start taking the Victoza at night as well? I think that I might start it up again, and try taking it at night. Maybe I will see what that does. And I will definitely discuss all of this with my doctor on the 20th. I will let you all know what he suggests. Also, as for the Met Forman, I have not been on that for a couple of years now. I believe he took me off of it, because he thought the insulin would help me more. Which it has. But also, because I was having such nasty side effects from the Met Forman. I have some stomach problems as it is. So when medications can add to this, and they do at times, it makes it much more rough on me.

Anyway, I do appreciate all the suggestions and help. I will definitely keep you all posted.

Thank you!

Terri 

Sent from my iPhone

> On Jun 14, 2019, at 8:19 PM, G Melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> here's a question I have I'd like to know what is the difference between humalog and novolog do they work the same for a type to you I just wanted to know how to go about doing it doing for units 6 units 8 units 10 units how does one go about the right amount if either humalog and novolog for mealtime scenarios just would like to have some thoughts about this if you guys could give me more info I'd appreciate it I am new at this I been on insulin for 18 months and so I'm just you know playing it now with just a short-term I mean he had a meal time insulin I used to take the fastest long-term insulin and the once-a-week type trulicity and it was not working for me with trulicity side went to exempt EXO SM pick is working better for me compared to
> 
> 
>> On June 14, 2019 3:23:43 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Terri,
>> 
>> Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.
>> 
>> As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
>> Sent: Friday, June 14, 2019 3:29 PM
>> To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
>> Cc: Terri Stimmel <princessterri76 at gmail.com>
>> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>> 
>> Hello everyone,
>> 
>> As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That’s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
>> However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don’t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.
>> 
>> However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn’t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.
>> 
>> With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?
>> 
>> Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!
>> 
>> Thank you,
>> 
>> Terri
>> 
>> Sent from my iPhone
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> 
> 
> 
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