[Diabetes-Talk] The Stupidity of Medtronic.

d m gina dmgina at mysero.net
Wed Jun 19 19:34:51 UTC 2019 

Ok would ira be able to help with pumps?
Or would it take to long to get done what you need done at the time of a beep?

Original message:
> Dar,

> This is specific to the Omnipod insulin pump; not all diabetic products.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m 
> gina via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 11:16 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> So all diabetics have to change from apple products to androyd?
> Or get a second phone?
> Hmmm wonder what apple did they eat?

> Original message:
>> Okay, here's an example. Many medical device companies are turning to
>> Android as a basis for their new products. This includes, pumps, CPap
>> machines, and other devices. I have been trying to figure out how to
>> get Google to start with their health division, Verily, to come up
>> with funding, then somehow to make the TalkBack system a part of the
>> operating system installed in all of these devices. Trouble is, I
>> haven't landed the right contacts yet. I'm sending emails, trying to
>> ask people who they know and so on, but I haven't hit the right person
>> yet. This is the sort of thing a national organization could really do
>> better than an individual. I have been saying this for a year and a
>> half now. The NFB says, oh we know people at Google. But they're not
>> in the right department and I haven't seen any action. If the NFB is
>> so concerned about the Dexcom, why didn't they push harder to remove
>> the question about whether or not we're going to use the receiver with
>> the G6? Yes, they don't seem to be enforcing this, but the average
>> person doesn't know this. There's a job half completed. My experience
>> with the NFB over many years is that they start something and when
>> they get some sense of maybe a little bit happened, they stop. One of
>> these days I'm just going to stage a sit-in at the Google campus until
>> I get directed somewhere. Time is not our friend here. So we have to
>> get past complaining on a list, whether it's this one or the used to
>> be task force one. If I knew where to plant my noise, I'd have done it
>> long ago. I actually all but closed my business so that I could devote
>> my efforts to the medical device task force, because I had so much
>> hope. I care very much about other blind people and myself. That's why
>> I've made such an effort to make the Omnipod work for now. I will
>> happily spend any amount of time helping others as I did in the early
>> Dexcom days because it matters to me. All of you matter to me. I matter to me.
>> And I have said all of this on the task force list, many times. Sorry
>> if I've flagged a bit. I'm broken-hearted and I've had other family
>> emergencies that demanded my attention. And I could really use someone
>> who has good connections somewhere. Till that time comes, I'll keep
>> looking. I will also keep on with my daily struggle to keep using
>> technology that really isn't designed with me in mind. Thanks for listening.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>> available on iTunes, along with other music from her and from the Guide
>> Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                 Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407



>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:25 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Yes, I am on the National DAN Board and I was on the committee. There
>> was others as well Bernadette was on the board. The DAN was the
>> originator of the idea.

>> Walter Mitchell
>> V-President, Ohio Diabetes Action Network
>> Board member, National Diabetes Action Network
>> (513) 582-8606
>> Walterl.mitch2 at gmail.com




>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 9:14 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Is anyone from the DAN board on the committee? Is national working with
>> DAN on this? If not, it should.

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Michael Barber via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:06 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Michael Barber <m.barber817 at gmail.com>
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Anil Lewis is the person heading up this committee at this time.



>> Cordially,
>> Michael D. Barber

>>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk
>>> <diabetes-talk at nfbnet.org> wrote:

>>> Walter,

>>> Do you know who took the places of Eric & Dylan? My thinking is that a
>>> diabetic with understanding of pump use & glucose monitors and who is
>>> blind from this group should be on that committee. I’m disgusted with
>>> the lack of motivation, interest, what ever the driving force is to try
>>> and get something done for diabetics who are blind and need to use
>>> these devices be they pumps, glucose monitors. I believe they should
>>> not be thrown into a large group of generic appliances.

>>> I have my pump that's working and under warrantee so I feel safe, for a
>>> while, but I am very worried about the future and am frightened for
>>> those blind diabetics whose pumps breakdown and won’t be able to get
>>> replacement pumps. Luckily for the person I spoke with yesterday, after
>>> speaking with me they called Medtronics who said they would work with
>>> them to get a pump they could use. At some point the supply of
>>> Medtronic pumps that a blind person can operate will dry up and go
>>> away. When I’ve spoken with Medtronic reps & my pump trainer they swear
>>> to me they are working on getting another pump that will be
>>> operational, but when, when. It is frightening to think about it.

>>> Eileen

>>> From: Walter Mitchell via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:29 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Walter Mitchell
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> I understand your comments, but my questions are based around, just how
>>> we lost both our experts in close proximity. We made a considerable
>>> amount of noise with them and without them, we haven't made a sound. In
>>> my book, I don't think that was a coincidence. That is just my opinion.

>>> Walter


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:13 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Veronica Elsea
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Actually, this is slightly nicer than what used to be on their web site.
>>> As for the NFB, in 2018, the accessible medical equipment task force
>>> started off working very hard and really was setting up goals, plans
>>> and assigning tasks to people. Unfortunately the NFB transferred
>>> everything to the Jernigan Institute. They dropped all of the medical
>>> equipment into one giant bill, which aims to address everything from
>>> dish washers to DVD's. They want the Access board to set up rule making
>>> and so on and so forth. If I follow this language, it will be at least
>>> 10 years before anything happens. And nobody using current diabetes
>>> management equipment is currently asked to help. So from where I sit,
>>> looks like they dropped us. But while it lasted, it was a good task
>>> force and I worked my butt off. Okay, it's still there. Darn! <grin>
>>> But I do live in fear of what will happen when Insulet decides to
>>> discontinue the model of PDM I'm using. And to think we could be a year
>>> further along in our efforts if things had continued as they started
>>> last year. Very disappointing.
>>> Veronica


>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>>> available on iTunes, along with other music from her and from the Guide
>>> Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>                Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 2:01 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> It's wrong but pretty standard pump language. Most companies have a
>>> similar warning. I know pens used to have similar verbiage and there
>>> was a legal action to remove this language from pen info and packaging.
>>> Wondering if something similar needs to happen with pump companies.
>>> Although, now that Medtronic is no longer making the 530G, there are
>>> not currently any pumps with work-arounds on the market.

>>> BTW, we tried to get a group together to work on this accessibility
>>> issue, and the only thing to come out out of it was a bitchfest about
>>> using Facebook in addition to the listserve. So...

>>> Bridgit

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>> Eileen Scrivani via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 3:33 PM
>>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Hi All,

>>> I got an email from Medtronic today and its subject was “Pre-travel
>>> Tips To Get You Ready For Summer.” It sounded interesting to me so I
>>> decided to click on a link in the message that brought me to their web
>>> site. I was reading along and then came their disclaimer which while I
>>> know its how they think, I couldn’t believe they had the below written
>>> out. The article was talking about the latest & greatest pumps they
>>> make which as blind diabetics we can’t use. Maybe though they should
>>> make a statement that their current pumps do not take into account
>>> accessibility rather than saying someone without vision or impaired
>>> vision should not be using insulin pump therapy. I find it especially
>>> upsetting since I just was put in touch with a person yesterday who’s
>>> current pump is going out of its warentee soon and this person is in
>>> the rough position of finding a pump to use independantly.

>>> By the way, folks, where is the DAN on working on this topic for
>>> getting accessibility into pumps? Any plans for the up-coming convention?

>>> At the end of what I was reading came the following which is very
>>> annoying to me. Here’s what it states:

>>> “Pump therapy is not recommended for people whose vision or hearing
>>> does not allow recognition of pump signals and alarms. Pump therapy is
>>> not recommended for people who are unwilling or unable to maintain
>>> contact with their healthcare professional. The safety of the MiniMed™
>>> 670G system has not been studied in pregnant women. For complete
>>> details of the system, including product and important safety
>>> information such as indications, contraindications, warnings and
>>> precautions associated with system and its components, please consult
>>> http://www.medtronicdiabetes.com/important-safety-information#minimed-
>>> 670g
>>>  and the appropriate user guide at
>>> http://www.medtronicdiabetes.com/download-library”

>>> If you are interested in reading this for yourselves, , here is the
>>> link to what I was reading:

>>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
>>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
>>> mo&utm_content=pumpcaretips_first_loopblog2


>>> Eileen


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>>> laurelcreekmusic.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>>> ch2%40gmail.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
>>> 40verizon.net _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
>>> %40gmail.com

>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

More information about the Diabetes-Talk mailing list