[Diabetes-Talk] AIRA & pump questions

Wed Jun 26 01:11:40 UTC 2019

Aira is available 24/7


Cindy Lou Ray
Sent from my iPhone

> On Jun 25, 2019, at 6:15 PM, blindhands--- via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> As far as I know AIRA is not available 24 hours a day.  I basically live
> alone.  So a good portion of the day I have no sighted help. My son drops in
> at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
> dependent on using AIRA, but it is great to know it is there if I need it.
> 
> I have been using a pump only the last 2 years and the Dexcom for the last
> year.  It is the Medtronics pump, but I can tell you it took getting both of
> these devices working together for me to feel at ease.  Now as what was said
> on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
> are at numbers that my Endourologist  and I are happy with.    Since I am a
> brittle Diabetic there is always room for improvement, but I had never been
> down in the 7 or as low as 7.6  in the past.
> 
> With as far as this division has gone and accessibility  isn't happening
> with the pump manufacturers where does that leave us blind pump users.  
> 
> I have heard about some day the artificial pancreas will be available from
> my doctors  in Yale New Haven for the last 50 years.  Well now that it is
> here and only to find out it isn't accessible to a blind Diabetic, I am not
> going to take this sitting down.    I really don't care how it becomes
> accessible, I will take the accessibility  any way I can get it.  Technology
> has jumped insulin pumps ahead and left us blind people behind.  The DAN
> Board has been trying to convince the pump companies to make their machines
> accessible for more than 15 years and it has fallen on deaf ears.
> 
> One way or the other we need to demand that we have accessibility as the
> sighted world.  After all don't we have the right to  reach for keeping
> ourselves as healthy as we  can be since Diabetes is the cause of  so much
> more effecting other parts of the body.  
> 
> Joyce Kane
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
> Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:31 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's
> still sighted help for things that mostly could be made accessible in a way
> that blind people could do it without any sighted help. Forms can be
> formatted for online use; websites can be made accessible; devices can be
> accessible, etc. Sure, until companies get a fire lit under them, AIRA is
> here, but what's the incentive for companies to work on accessibility when
> services like AIRA exist? It's a catch 22. We need accessibility now, but
> now that we have AIRA, companies no longer think they need to think about
> accessibility.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
> via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira is
> there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a
> chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,
> 
> Original message:
>> When this topic came up there seemed to be some chatter along with
> 
> So... In my opinion, it's not the best tool to give us independence. True
> independence would be possible if companies gave a shit (excuse 
> 
> BTW, this is not a negative comment on AIRA but on society in general.
> 
> Bridgitmy French) and worked to make products and devices accessible. And
> now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.
> 
> 
> 
>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.
> 
> 
> 
>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>> Joyce
> 
> 
> 
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> 
> --
> --Dar
> skype: dmgina23
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> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> 
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