[Diabetes-Talk] AIRA & pump questions

[Eileen Scrivani]

Bern,

You make a good point in that AIRA is something that not all of us can afford. Even if I could see myself clear of spending that kind of money every month for the service, I would not use it for controlling my insulin pump functions. Yes, I too am in a half state of undress when working on my pump and aside from modesty issues, nor would I trust a stranger unfamiliar with the workings of insulin pumps on the phone to assist me in altering any settings of any type on my pump.

Where you and I disagree is that the day has come that pump manufacturers “must” make adaptations of some type on the pumps they currently have on the market. We will all be in an extreme, bad place when next our warrantees are up. Something needs to be done pronto!

Eileen

From: Bernadette Jacobs via Diabetes-Talk 
Sent: Wednesday, June 26, 2019 12:50 PM
To: Diabetes Talk for the Blind 
Cc: Bernadette Jacobs 
Subject: Re: [Diabetes-Talk] AIRA & pump questions

For those of you who use AIRA, I’m leaving all this up to your discretion.  

As Sandy and Bridget both indicate, AIRA is just another tool.  I agree tht as long as we have things like AIRA, and “Be My Eyes,” The pump makers out there won’t be forced to do what they really ought to do in the first place.  It’s not like others haven’t made their products accessible.  Things like AIRA and Be My Eyes can simply be used as scapegoats.  Then, as Veronica has also indicated, when using and setting up the pump, most of us are at least partially undressed.  I, for one, am not into posing nude for any camera.  

Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna happen here.  I’ll let them speak to my seminar.  But, they own’t get me to purchase it.  No can do.  

Sent from my iPhone

> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Yep.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:30 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: sandi <sjryan2 at gmail.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Well said, my friend! Aira is a tool, but it’s neither the best nor the most effective tool we could have. Most of the things it’s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.
> 
> Sandi
> 
> 
> Sent from Mail for Windows 10
> 
> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:32 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,
> 
> Original message:
>> When this topic came up there seemed to be some chatter along with
> 
> So... In my opinion, it's not the best tool to give us independence. True independence would be possible if companies gave a shit (excuse 
> 
> BTW, this is not a negative comment on AIRA but on society in general.
> 
> Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.
> 
> 
> 
>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.
> 
> 
> 
>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>> Joyce
> 
> 
> 
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