[Diabetes-Talk] AIRA & pump questions
d m gina
dmgina at mysero.net
Thu Jun 27 19:22:42 UTC 2019
How do we get it done?
This is where I know both organizations would work together.
There are as many diabetics in the acb as well as nfb.
I just felt if we had proof that something was written companies won't
help becaue of ira then national presidents would start to step on ears.
We could share how a voice chip could be added to the pumps and this
would help out allot.
Coming off the shelf.
Just my thoughts.
As we say the game is over
Original message:
> Dar, very good question. Unfortunately, the reason nobody has taken
> these companies to court is because there is no law mandating
> accessible medical equipment. If there's a problem with a web site, a
> building, there are codes one can readily quote if there's a violation.
> There just isn't anything for accessible medical equipment. Of course,
> the question, why not? Good question. Hasn't been done.
> Veronica
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> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
> Of d m gina via Diabetes-Talk
> Sent: Thursday, June 27, 2019 11:17 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> My question again is this,
> After you get done with the pumps you have, I read that new pumps won't
> have anything for the blind to use,
> if this is correct, then why isn't national nfb or acb working together
> to take companies to court.
> I also want to have something in email from a company that is saying,
> Since you have ira you don't need us to put anything on a pump for the blind.
> I will keep reading.
> Original message:
>> Dar, it's not separate but equal. As someone once said to me, we need
>> to use every tool in the toolbox, and I would agree that if I am not
>> dressed and using a pump I don't want to be on camera. But nothing is
>> exclusive. For some, for now that may be the only choice.
>> Jeanette
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Dar via Diabetes-Talk
>> Sent: Wednesday, June 26, 2019 2:45 PM
>> To: Diabetes Talk for the Blind
>> Cc: Dar
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> From what you are saying is no new person can get a pump if they are
>> blind If I am correct, this is what we should fight for, not worry
>> what ira does or doesn’t do.
>> Always remember with nfb you start with $21 for 30 minutes and can add
>> 50 minutes more if you wish.
>> I am pleased it is here and I make the choice to use it
>> I would love to know the companies who know about ira and wish not wish
>> to help diabetics
>> I would like to know why Mark from nfb is not taking them to court
>> Dar
>> Every saint has a past,
>> Every sinner has a future
>>> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk
>>> <diabetes-talk at nfbnet.org> wrote:
>>> Bern,
>>> You make a good point in that AIRA is something that not all of us can
>>> afford. Even if I could see myself clear of spending that kind of money
>>> every month for the service, I would not use it for controlling my
>>> insulin pump functions. Yes, I too am in a half state of undress when
>>> working on my pump and aside from modesty issues, nor would I trust a
>>> stranger unfamiliar with the workings of insulin pumps on the phone to
>>> assist me in altering any settings of any type on my pump.
>>> Where you and I disagree is that the day has come that pump
>>> manufacturers “must” make adaptations of some type on the pumps they
>>> currently have on the market. We will all be in an extreme, bad place
>>> when next our warrantees are up. Something needs to be done pronto!
>>> Eileen
>>> From: Bernadette Jacobs via Diabetes-Talk
>>> Sent: Wednesday, June 26, 2019 12:50 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Bernadette Jacobs
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>>> For those of you who use AIRA, I’m leaving all this up to your discretion.
>>> As Sandy and Bridget both indicate, AIRA is just another tool. I agree
>>> tht as long as we have things like AIRA, and “Be My Eyes,” The pump
>>> makers out there won’t be forced to do what they really ought to do in
>>> the first place. It’s not like others haven’t made their products
>>> accessible. Things like AIRA and Be My Eyes can simply be used as
>>> scapegoats. Then, as Veronica has also indicated, when using and
>>> setting up the pump, most of us are at least partially undressed. I,
>>> for one, am not into posing nude for any camera.
>>> Quite frankly, AIRA is cost-prohibitive for our family. Not gonna
>>> happen here. I’ll let them speak to my seminar. But, they own’t get
>>> me to purchase it. No can do.
>>> Sent from my iPhone
>>>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via
>>>> Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> Yep.
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>>> sandi via Diabetes-Talk
>>>> Sent: Monday, June 24, 2019 9:30 PM
>>>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>>>> Cc: sandi <sjryan2 at gmail.com>
>>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>>>> Well said, my friend! Aira is a tool, but it’s neither the best nor the
>>>> most effective tool we could have. Most of the things it’s good at are
>>>> things that could be accomplished in other ways, many of those ways
>>>> better than this rather expensive, not-always-effective service.
>>>> Sandi
>>>> Sent from Mail for Windows 10
>>>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>>> Sent: Monday, June 24, 2019 8:32 PM
>>>> To: 'Diabetes Talk for the Blind'
>>>> Cc: Bridgit Kuenning-Pollpeter
>>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>>>> AIRA isn't the best way to make us independent. It's 24/7 help, but
>>>> it's still sighted help for things that mostly could be made accessible
>>>> in a way that blind people could do it without any sighted help. Forms
>>>> can be formatted for online use; websites can be made accessible;
>>>> devices can be accessible, etc. Sure, until companies get a fire lit
>>>> under them, AIRA is here, but what's the incentive for companies to
>>>> work on accessibility when services like AIRA exist? It's a catch 22.
>>>> We need accessibility now, but now that we have AIRA, companies no
>>>> longer think they need to think about accessibility.
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m
>>>> gina via Diabetes-Talk
>>>> Sent: Monday, June 24, 2019 8:05 PM
>>>> To: diabetes-talk at nfbnet.org
>>>> Cc: d m gina <dmgina at mysero.net>
>>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>>>> Joyce,
>>>> I won't be at convention,
>>>> Mike Henson wrote to me on ira list sharing that what we can't read,
>>>> ira is there for us, and does help us stay mobile in anything we want to do.
>>>> At no time does it make us less independent, if anything it makes us more.
>>>> I do hope and know we will do our best to try to et companies to put in
>>>> a chip for talking meeters.
>>>> If they can do it for devices then what is one more device.
>>>> Do let us know how the conversation works out.
>>>> Thanks again,
>>>> Original message:
>>>>> When this topic came up there seemed to be some chatter along with
>>>> So... In my opinion, it's not the best tool to give us independence.
>>>> True independence would be possible if companies gave a shit (excuse
>>>> BTW, this is not a negative comment on AIRA but on society in general.
>>>> Bridgitmy French) and worked to make products and devices accessible.
>>>> And now with AIRA, it's not as likely they will.
>>>>> opinions regarding the use of AIRA with a pump. I said I would make
>>>>> contact with AIRA and I did.
>>>>> I contacted Glenn Takemoto, , Account Executive andhe told me that
>>>>> there has been some mention of insulin pumps. He told me he would be
>>>>> at Convention in Vegas and he would be interested in speaking to some
>>>>> of the people who have been working for us blind Diabetic pump users
>>>>> to get insulin pumps accessible.
>>>>> If anyone is interested in making contact while at Convention, please
>>>>> send me a note off list and I will send you my conversation with him.
>>>>> Joyce
>>>>> _______________________________________________
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>>>>> sero.net
>>>> --
>>>> --Dar
>>>> skype: dmgina23
>>>> FB: dmgina
>>>> www.twitter.com/dmgina
>>>> every saint has a past
>>>> every sinner has a future
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> --
> --Dar
> skype: dmgina23
> FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
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--
--Dar
skype: dmgina23
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www.twitter.com/dmgina
every saint has a past
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