[Diabetes-Talk] FB group

Bridgit Kuenning-Pollpeter bkpollpeter at gmail.com
Thu Mar 28 16:29:59 UTC 2019 

Lots of wrong info here.

First, again, no one needs to state which platform they want to participate on here. There is an NFB group for those who wish to join, but it's not necessary.

Second, I frequently use FB with no issue as do hundreds of other blind people, including most of the Federation. It's particularly easy to navigate nonvisually if using mobile FB on your computer or on your smart device. That's why it's the number one social media platform used by the NFB and blind people in general, Twitter being second.

Third, and most important, when you create a group, only members of the group are allowed to post and comment. I made the group private, so people have to be approved to join, and only members can post and see other posts. So, if in the group, it will show up on your feed, but only you and those who are members can see. No one, not even FB, can post anything in a group. This means no advertising, nothing, unless a group member post it, and if it's inappropriate to the group, admin can delete it. So no one can post anything we don't like or that goes against Federation philosophy, although, I will argue that I've seen several emails over the years on this email list that don't really hold up to NFB philosophy, but that's another discussion. But my point is that we have just as much control over our FB group as we do this list. Currently, I'm the only admin, but we can add other admins, like Bern, if we want.

The Federation alone has several FB, Twitter and Instagram accounts, because it understands that in addition to older forums, it needs to develop an online repore. So, understand, this email list is going nowhere; you can still post here. No one has to choose. But we also have a FB group for those who want to use it, and several people have joined it who aren't on this list, so it has potential to serve people who want to use it. But no one here is obligated to.

But please understand what you're talking about before going off about a subject you clearly are not as educated on as you think. I work in PR and am more acquainted with social media platforms. To make a point, once again, it's a private group, and only members of the group can post and see the post. So unless people have questions about how FB operates, or want the link again to join, stop the fear-mongering comments and bashing what has become an established means of communication for the Federation. No one is forcing anyone to join; I have simply advertised the fact that it exist for those who want it.

Bridgit
And finally, I don't know why you would go to the NFB and report this, because several Federation groups/divisions have FB groups, and they are typically much more active than their corresponding listserves. The blind parent group and parent's of blind kids division have 2 of the most active FB groups. The community service division has a group and it's growing in momentum. Several affiliates and chapters also use FB effectively, and these are just the ones I follow. I know there are many more. We even have a general national FB page. So it's absurd that the NFB would be against us having one.

Again, if you don't prefer FB, that's fine. But everyone, please keep in mind, the reality is that more people of all ages use social media, and it's a preferred platform to email. There's nothing wrong keeping the email list, but we also need an online presence. Like it or not, this is just a reality. FB reaches more people than an email list

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
Sent: Thursday, March 28, 2019 10:12 AM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Michael Barber <m.barber817 at gmail.com>
Subject: Re: [Diabetes-Talk] FB group

I do not plan to switch the FB group or any diabetes talk. My objection is that Nfb continually makes the stupid changes that get here and make it sometimes difficult for people using voiceover or other computer software to use their application successfully. Nfb doesn’t seem to do anything about this, and I refuse to be a part of a little bit going to do stuff like this to us. The other important thing is that we’re going to be susceptible to outside interests and sponsor is intruding on as an outside people who will think they know better for us blind by bedbugs. This is our specific by and diabetes list and if it was up to me I would for bid at Facebook blind diabetes list.

Cordially,
Michael D. Barber

> On Mar 28, 2019, at 7:18 AM, Bernadette Jacobs via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> I too feel like many of you.  Quite frankly, where FB is concerned, 
> I’m all grouped out.  I’ve found that to keep my sanity, I can only deal with so many of these silly groups.  At the beginning of the year, I actually spent three hours going through all these groups, deleting, unfollowing, and whatever else it took to get rid of so many of these groups and swear I needed something good and stiff to drink when I finished !!!  Whew!!
> 
> Bern
> 
> 
> 
> Sent from my iPhone
> 
>> On Mar 27, 2019, at 11:18 AM, sandi via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> I’m not sure why we need both this group and a Facebook group. But I’m for keeping this one. I will not be on a Facebook group, and the trend right now is getting off Facebook, not getting on it!
>> 
>> Sandi
>> 
>> 
>> Sent from Mail for Windows 10
>> 
>> From: d m gina via Diabetes-Talk
>> Sent: Wednesday, March 27, 2019 4:23 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: d m gina
>> Subject: Re: [Diabetes-Talk] FB group
>> 
>> I hope this group stays up and going, Even if I drive all of you 
>> crazy, someone has to do it loll.
>> Keep up the swell work for face book if folks like it there.
>> 
>> Original message:
>>> I am not harranging anyone. People have privately messaged me, not 
>>> posted directly on the group. There's been hesitancy to post since 
>>> the group is not active right now. But these people prefer a 
>>> platform like Facebook instead of the listserve, which, as I said, is the going trend these days.
>> 
>>> This message wasn't directed towards you or any other individual but 
>>> was for the group as a whole. If we want to reach as many blind 
>>> diabetics as possible, we need to consider other means and utilize 
>>> what forms of communication exist.
>> 
>>> Personally, I prefer FB groups myself, and I actually admin a few; 
>>> it really doesn't take much time in a day to check social media and 
>>> email, especially if you use smart devices. But I understand social 
>>> media isn't for everyone, and that's okay. No one has to post there 
>>> own questions or concerns in the group if they prefer the listserve, 
>>> but it would be helpful if more than one of us could peruse the 
>>> group from time-to-time and respond to questions/posts others put 
>>> there. This is about capitalizing on the number of people we can reach.
>> 
>>> I understand trying new things isn't always easy, but if we want to 
>>> be active in our blind community and reach as many blind people as 
>>> we can, it's important we have a social media presence. This isn't 
>>> just for this group, but the entire Federation. Several groups and 
>>> divisions are moving in this direction, and it affords each the 
>>> opportunity to not only reach other blind people, but get the 
>>> message out about blind and Federation issues on a much larger 
>>> platform that has millions of followers. Again, if FB isn't for you, 
>>> that's fine, but we also need to acknowledge that more and more people of all ages and backgrounds prefer a platform like FB and are active on it.
>>> Perhaps the group will never be that active, but it doesn't hurt to try.
>>> Some NFB FB groups are extremely active, and others haven't gained 
>>> traction either, but there tends to be a direct correlation between 
>>> inactive listserves and their FB groups/pages, and active listserves 
>>> that also have a group/page tend to be equally active. Just something to note.
>> 
>>> And finally, I didn't harass anyone, individual or as a group. I put 
>>> out there what people have privately messaged me about. If you 
>>> didn't like it, you can delete the email and move on.
>> 
>>> Bridgit
>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Veronica Elsea via Diabetes-Talk
>>> Sent: Monday, March 25, 2019 9:29 PM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>>> Subject: Re: [Diabetes-Talk] FB group
>> 
>>> You know, I did go on there this afternoon. According to FB, when I 
>>> looked, it had been fifteen minutes since this person had posted. I 
>>> don't appreciate being harranged because I don't reply instantly to 
>>> Facebook. I can't always reply instantly here either because I might 
>>> be doing something. And I did post an answer, at least I think I 
>>> did. But I don't know if I can keep up with two separate platforms. Frankly, this one's easier, for me.
>>> So please be considerate with the rest of us. It's one person, one question.
>>> She'll get answers.
>>> Veronica
>> 
>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>>> available on iTunes, along with other music from her and from the Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>               Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>> 
>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Joy Stigile via Diabetes-Talk
>>> Sent: Monday, March 25, 2019 4:29 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Joy Stigile
>>> Subject: Re: [Diabetes-Talk] FB group
>> 
>>> Hi Bridget,
>>> I rarely go on Facebook.  I find it easyer to use this list.
>>> Warmly, Joy
>> 
>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Monday, March 25, 2019 3:12 PM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
>>> Subject: [Diabetes-Talk] FB group
>> 
>>> I know there's some hesitation to switch over to Facebook, but 
>>> several people have joined our FB group and many not currently on 
>>> the listserve or who don't post here often. Many are curious as to 
>>> why the group is not active, and I know a couple of people have a 
>>> lot of questions; one person in particular about CGMs. So, even if 
>>> you don't want to post your questions here, can more of us peruse 
>>> the FB group so its members get some answers? It would be appreciated, grin.
>> 
>>> Bridgit
>> 
>> 
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>>> e%40gmai
>>> l.com
>> 
>> 
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>>> 40laurel
>>> creekmusic.com
>> 
>> 
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>> 
>> 
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>>> mysero.net
>> 
>> --
>> --Dar
>> skype: dmgina23
>> FB: dmgina
>> www.twitter.com/dmgina
>> every saint has a past
>> every sinner has a future
>> 
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