[Diabetes-Talk] extending life of Dexcom Sensors is on diabetic daily and many other sites

Thu Mar 28 20:22:55 UTC 2019

Ah, that's why they discontinued the remote.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Thursday, March 28, 2019 2:00 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] extending life of Dexcom Sensors is on diabetic daily and many other sites

Yes, and not only that, the doctors who are type 1 are also doing that and they're demonstrating it at conferences. The problem with Medtronic is that when they figured out that people were doing this, they took away the remote and made it so you can't mess around with the newer pumps. So nowadays, you have to somehow get your hands on a very old pump to do this so you have no warranty or help if anything breaks. That's the big down side. Also, the stuff that goes with the pump and the CGM is like, several pieces of clunky gear and that alone ruled it out for me. Too much stuff. Not to mention, we couldn't read any of the displays. 
But of course, once one company does jump, they'll all follow. And I'm really afraid we'll really be out of the loop then. I'll definitely report here after this week end.
Veronica

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Thursday, March 28, 2019 9:43 AM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] extending life of Dexcom Sensors is on diabetic daily and many other sites

Veronica,
 Interesting. Years ago, when researching pumps, I learned that parents were taking current tech and creating their own closed loop systems to be accessible for their kids. So this is definitely possible. Funny that parents with some programming knowledge can and are doing what the companies should do as a given.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Thursday, March 28, 2019 11:38 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] extending life of Dexcom Sensors is on diabetic daily and many other sites

I just checked the insulin-pumpers platform and there's all sorts of chatter about this. There's also stuff about how you can hack an old Medtronic pump and make your own sort of closed loop system with it. I think if it's labeled as hey, this didn't come from Dexcom, why shouldn't we have the right to be as naughty as our sighted equals. I will be attending a large diabetes seminar this week end and I'll see what gets said in the CGM workshop. I'd suggest being a little careful about banning topics because if Dexcom does sanction it, we'd sure like to be able to mention it here. I fooled my G5 sensors all the time because it was easy. I'm not quite so inclined to mess with the G6 ones though. If I'm truly using it to replace finger sticks I want the company behind the accuracy I perceive. 
But in general, as demonstrated during the Libre discussion, I do advocate putting sensors where the company says to put them and using them according to directions. Were I in a natural disaster and not able to get access to sensors, yeah, I might do it. But I do think some sort of disclaimer is a good idea. Not big on banning topics here though. Thanks.
Veronica

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Dr. Denise M Robinson via Diabetes-Talk
Sent: Thursday, March 28, 2019 3:41 AM
To: Diabetes Talk for the Blind
Cc: Dr. Denise M Robinson
Subject: Re: [Diabetes-Talk] extending life of Dexcom Sensors is on diabetic daily and many other sites

Bern

 The fastest answer to your response is this information is put out by diabetic magazines and so many videos I could not possibly post them all--here is one-- https://www.diabetesdaily.com/blog/how-to-extend-the-dexcom-g6-sensor-goes-beyond-the-ten-day-hard-stop-580510/

Saying that, a huge majority of sighted people have been doing this since the first sensors came out. If you do more youtube searches and google searches you will see the videos as far back as when the first dexcom came out and there are a vast amount of tricks to extend life to everything. No one states these as gospel....it is just something they tried that works well.  If I had time, I would be replacing the battery in the transmitter also. You will even hear people say they have used one sensor up to 5 months and so on. People contribute all of what they are doing on other sites. We learn from each other. Danger comes in when you do not know yourself or how to use something well. That is explained in the video I sent--know yourself--use wisdom in all things

Next, how many of you have used insulin past the 28 day expiration date?  I do, and I know I need to adjust it up with each week because it is not as effective as those first 28 days...but it works well and I have been a diabetic for over 40 years so have used a vast amount of wisdom to know what to do to make adjustments in my life... and my guess is a vast amount of you are doing this also. Not knowing about your insulin and how it works best is far riskier than extending the dexcom sensor and I have not had not heard of anyone else having issues with extending their sensors. Might there be in the future? probably as we are humans and goofs are made all the time but nothing out there yet--will there be...most likely as back to the human error and use wisdom in all things and know your body well.

Now, Back to expiration dates(which are suggestions--how about using any food after the expiration--think of all those cans and boxes of food in your cupboard --I think you are getting where I am going here. Lets look at some of these facts of which do not exist for extending the life of the sensor
Food:
- Unsafe food containing harmful bacteria, viruses, parasites or chemical substances, causes more than 200 diseases – ranging from diarrhoea to cancers.
- An estimated 600 million – almost 1 in 10 people in the world – fall ill after eating contaminated food and 420 000 die every year, resulting in the loss of 33 million healthy life years (DALYs).
- Children under 5 years of age carry 40% of the foodborne disease burden, with 125 000 deaths every year

There is a lot more on this of course. And learn what expiration dates really mean--they are only suggestions--that is it--too many sites to put down here...just do a quick google as well as google all the diabetic sites promoting how to extend the life of the sensor and other items

I am relaying information that I discovered to work very well and that people have been using ever since the first sensor came out with no issues.
I was asked to share this from many other blind diabetics who do want to know. People want options that work well and can also save you money--this is just one--there are so many more

* Dr Denise M Robinson*

*Denise M Robinson, TVI, PhD*

Specialist-Technology/Blind Skills | Teacher of the Blind and Visually Impaired
425-220-6935 | www.yourtechvision.com

[image: TechVision Logo]
“Helping the visually impaired see their world changed through technology”
"While they were saying among themselves it cannot be done, it was done."
--Helen Keller

On Wed, Mar 27, 2019 at 2:22 PM Bernadette Jacobs via Diabetes-Talk < diabetes-talk at nfbnet.org> wrote:

> Dr. Denise M. Robinson:
>
> I have to say, after over a day since you posted this, I am still 
> completely in a state of shock.  I know everyone here is into the idea 
> of saving money.  We should be.  However, there is an awful lot on 
> U-Tube I wouldn’t think of circulating.  And, I worry about my 
> daughter and her U-Tube usage???  Oh Glory!!!  I didn’t think I’d have 
> to worry about adults and their U-Tube usage too?  Oh Glory!!!  I, for 
> one, have a serious problem with something that has serious potential 
> risk???  Matter of life-and-death???  Sight or no sight.  If we want 
> to work with Dexcom and we, (at least some of us),, want Dexcom to 
> work with us, to circulate such risky behavior and involve ourselves 
> in such behavior, as I see it, would only be asking for trouble. Like 
> I say, I am in a complete state of shock to believe that I ever saw 
> this.  I’m actually mortified and I have to say I may confer with 
> President Mark Riccobono over this.  I just can’t believe it!!!
>
> Bern.
>
> Sent from my iPhone
>
> > On Mar 25, 2019, at 5:53 PM, Bridgit Kuenning-Pollpeter via
> Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >
> > I'm not fully understanding Denise's post. I get it's about 
> > extending
> sensors, but I've read several times and still don't fully comprehend 
> the directions.
> >
> > Bridgit
> >
> > -----Original Message-----
> > From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> > G
> Melconian via Diabetes-Talk
> > Sent: Monday, March 25, 2019 4:12 PM
> > To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> > Cc: G Melconian <gmelconian619 at gmail.com>
> > Subject: Re: [Diabetes-Talk] extending life of Dexcom Sensors
> >
> > There are lots of ways of extending both transmiters and sensors.cas
> farways to replace the batteries as the dexcom transmitterds use 
> standard watch batteries. I know this to be fact as I know that does 
> this googlevdexcom refurb transmitter and the Facebook page and where 
> you can contact them. I don't know about the g6 but I'm aware of the g5.
> >
> >
> >> On March 25, 2019 1:50:12 PM Veronica Elsea via Diabetes-Talk <
> diabetes-talk at nfbnet.org> wrote:
> >>
> >> I've known a couple of sighted people who do this. Two of them said 
> >> it got them an extra day or so, but no longer. But of course, for 
> >> us, no way could we do this without sighted assistants because even 
> >> unlocking the receiver is tricky. I do sure wonder who figured this out and how.
> >> <grin> Veronica
> >>
> >>
> >> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> >> available on iTunes, along with other music from her and from the 
> >> Guide
> Dog Glee Club.
> >> To learn more, visit:
> >> http://www.laurelcreekmusic.com
> >>                Veronica Elsea, Owner Laurel Creek Music Designs 
> >> Santa Cruz, California
> >> Phone: 831-429-6407
> >>
> >>
> >>
> >> -----Original Message-----
> >> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> >> Behalf Of Dr. Denise M Robinson via Diabetes-Talk
> >> Sent: Monday, March 25, 2019 11:06 AM
> >> To: Diabetes Talk for the Blind; ange.mperone at optimum.net
> >> Cc: Dr. Denise M Robinson
> >> Subject: [Diabetes-Talk] extending life of Dexcom Sensors
> >>
> >> Hi Everyone,
> >> This info comes in part from the diabetes monthly get together 
> >> online and also--if you are interested in saving money, here is a 
> >> way to extend the life of your Dexcom sensor. My deductible to 6000 
> >> yes, 6k and it hurts when you are a diabetic as all of you can 
> >> attest too
> >>
> >> This is one reason to keep a receiver even if you do not use it the 
> >> rest of the month and you only use your iphone--which makes the 
> >> dexcom totally accessible--But you can also just have the reciever 
> >> by your bed all the time and it will wake you up if you go too hi 
> >> or too low--will do another video on the different sounds. Sighted 
> >> assistance will be needed with the receiver and to do this trick.
> >> You can also extend the life using this trick and skip the 
> >> microwave option but that just means you just have to prick your 
> >> finger for the next 2 hours during warm up and you do not need to 
> >> bother with the receiver and just use the iphone. This trick allows 
> >> you to never have to prick
> your finger.
> >> If you let your sensor expire--it is done. There is no way to start 
> >> it back up. I always stop my sensor 6 hours before to keep 
> >> prolonging its life. I have not gone past 25 days due to my skin 
> >> sensitively but I know others have have extended it much longer.
> >> You will have to get something like the simpatch to keep it on your 
> >> belly hard and fast. If it comes loose, you will have your receiver 
> >> say it has lost signal. I have done it wrong many ways to test different ways to do it right.
> >> Here is the video: Dexcom sensor--extend its life longer than 10 
> >> days <https://www.youtube.com/watch?v=zicOefubeIc&feature=youtu.be>
> >>
> >> * Dr Denise M Robinson*
> >>
> >> *Denise M Robinson, TVI, PhD*
> >>
> >> Specialist-Technology/Blind Skills | Teacher of the Blind and 
> >> Visually Impaired
> >> 425-220-6935 | www.yourtechvision.com
> >>
> >> [image: TechVision Logo]
> >> “Helping the visually impaired see their world changed through
> technology”
> >> "While they were saying among themselves it cannot be done, it was
> done."
> >> --Helen Keller
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info 
> >> for
> >> Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica
> >> %40
> >> laurelcreekmusic.com
> >>
> >>
> >> _______________________________________________
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> >> for
> >> Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconi
> >> an6
> >> 19%40gmail.com
> >
> >
> >
> > _______________________________________________
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> >
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