[Diabetes-Talk] future CGM and pump accessibility
fidano at comcast.net
fidano at comcast.net
Sat Nov 9 23:23:03 UTC 2019
Verlyn,
Again, as others have commented.. not knowing all the facts...
I have had Type 1 for over 45 years, I have been totally blind since 1987.
I have lived totally alone the past 4.5 years, after a 30 yr marriage and
then bad divorce.
I use the Dexcom 5
The contour meter supplied by Dexcom....
Bot work via my iPhone 8
I use pens for my insulin and have created various ways to know when and
what I took.
I have a room I exercise in, walk my dog via the neighborhood, clean, cook,
garden.. and work within and outside my home, I use Lyft car for transport
as it is close, convenient and quick.
When I get in the downer dumps.. I often think moving to a apartment, condo
whatever and letting my baby go! What a self-destructive thought is that?
If there is a will, there "has" to be a way!
So, I don't understand the 1 specific place you refer too, having to move to
and let your cat go, or other related reasons for your concern?
I do encourage letting whomever, metatronics or Dexcom know of your plight,
but..
I had a friend stop in when I first got my Dexcom, over 4 years ago and read
instructions, listen to videos and been off and running with it.
I did need help w/setting up the meter they provided/Dexcom, but was using
prodigy prior and honestly... like the contour so much better! But does need
sighted assistance for the setting up w/Bluetooth and you phone.
I know there are several apps as be my eyes and more that will offer camera
assistance in finding info you might need? Codes etc.
But, if I get a sighted friend to read me the code on my transmitter when it
arrives in notes.. I have it when the time come to change.
I know some on this list have used their camera on phone.. so there are
multitudes of ways to make ones way forward .. and independently, as much as
one can.
Once again, forgive me for any comments I made, unaware of other
disabilities or issues you might have.
Tamera
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Verlyn
Baldwin via Diabetes-Talk
Sent: Saturday, November 9, 2019 9:24 AM
To: diabetes-talk at nfbnet.org
Cc: Verlyn Baldwin <letsdanceintx at gmail.com>
Subject: [Diabetes-Talk] future CGM and pump accessibility
Hi,
Please advise me as to the best direct ways to make an impact to get the
manufactures to make their CGM's and pumps accessible for all levels of
disabilities.
It has been suggested by my local Medtronic's representative that letters to
Medtronic CEO's would be the best contact.
She suggests this as they are the ones that make the decisions which
upcoming products to focus on. Obviously Medtronic's has many lines of
products in addition to their diabetic line.
Also, another concern I have is my continued care in regards to management
of my diabetes as I become unable to do so independently. My research thus
far has given me two options.
One to train and hire assistance (which in reality is cost prohibited) or
move to a supportive care facility in Chicago. The later will not allow
occupants to have any other animal than a guide dog. I have had a cat for
several years which assists me in emotional support. This is verified by my
doctors.
Your comments and suggestions are appreciated,
Verlyn Baldwin
letsdanceintx at gmail.com
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