[Diabetes-Talk] 530 G Pump

[Veronica Elsea]

Rick, please don't put words in our mouths. Beliefs or not, it isn't happening right now and we have to figure out how to do the best we can with what is out there right now. Being skeptical is one thing but stop expecting people to be jumping with joy when there is no concrete information about what they're jumping for. At best, whatever you have will take years. We call 'em as we see 'em at the moment. Some of us have been at this for a very long time. Please don't bad mouth us if we are tired, discouraged or skeptical. Many of us have heard stuff in the past. I bet this list is full of people who have heard all of Medtronic's claims over the decades about coming out with an accessible pump. I always thought it was not true and I was right. So when something exists and is for sale, I'll check it out.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Rick Mladek via Diabetes-Talk
Sent: Monday, August 17, 2020 9:31 AM
To: 'Diabetes Talk for the Blind'
Cc: Rick Mladek
Subject: Re: [Diabetes-Talk] 530 G Pump

Mary,

 

There is nothing illegal for a company to not produce a product that is accessible for one needing such added features. If this were true, we could all go after a company such as those making washing machines and dryers to televisions. There is people working on a pump that will be 100% accessible and will be introduced in time. However, as others believe this not to happen, of those companies with pumps on the market, they have no need to be concerned for there is no law to make anything accessible for any specific individual or group of individuals. This, if forced to be so, would have many simply moving their products out of the United States. Government cannot force a company to consider adding anything to a design to allow any disabled individual ability to use independently. Look at laws that force websites to be accessible to those using speach technology. They have failed for we all continuously find websites impossible to use. However, for insulin pumps, I will only say to be patient, one is coming and this is all I will publicly say at this time.

 

From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Matt Davis via Diabetes-Talk
Sent: Monday, August 17, 2020 11:09 AM
To: Diabetes-Talk at nfbnet.org
Cc: Matt Davis <mdavisforalternatives at gmail.com>
Subject: [Diabetes-Talk] 530 G Pump

 

What to do now?? 

For those of us using this pump and having spoken with the pump reps, our physicians and still continue to do so, about this dilemma without success, seems illegal for Medtronic.

Different thoughts have arisen, why can’t the company continue with this model?

Acu Chek had a pump that was designed for the sighted person to control the pump non-visually(my understanding was that the people researched wanted a pump that they could manipulate while it was in their pocket or at least under the table in order not to distract from conversation going around them)

So, my understanding was that Acu Chek designed their pumps for that reason.

and because they did, blind people could use them. 

About 23 years ago, I bought one of their pumps. We Received training from Mary Leighton, an RN at the Diabetes Education Center of the Midlands. Because of its accessibility, I was interviewed with the Omaha World Herald newspaper as being the first blind person in Nebraska to use an Acu Chek pump.  

Within the last 10 years, the company went out of business. I feared going on the Metronic pump as I knew I would not have the independence I had with the Acu Chek pump. I have been using this 530 G for a few years now. It seems that if companies could design their pumps back then to have tones and vibrations, certainly, Metronic can design one now!

My question is, “Why haven’t they?”

Sincerely,

Mary

 

 

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