[Diabetes-Talk] DAN Resolution 2016-16

Sat Aug 29 01:19:54 UTC 2020

Thanks Sandi!
Melanie

Sent from Melanie's i phone

> On Aug 28, 2020, at 9:11 PM, Sandi Ryan via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Hi Melanie,
> 
> I had promised to send the Bill of Rights a couple of days ago. Unfortunately, the copy I have is Version 5, not the final version presented with the resolution. I am looking through past files to see if I can find it, and if Anil doesn't have it and send it first, and if I don't find the final one, I will send the version I have in a day or two. I don't think we'll want to use these as they are, but they might be helpful in fashioning a plan.
> 
> Sorry for the delay!
> 
> Sandi
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Melanie Torrance via Diabetes-Talk
> Sent: Friday, August 28, 2020 1:15 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Melanie Torrance <melanietorrance at icloud.com>
> Subject: Re: [Diabetes-Talk] DAN Resolution 2016-16
> 
> Can you provide us with a copy of the said Bill of Rights?
> Melanie
> 
> Sent from Melanie's i phone
> 
>> On Aug 28, 2020, at 2:07 PM, Lewis, Anil via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> The Resolution passed in 2016:
>> 
>> Regarding the Technology Bill of Rights for Individuals with Diabetes and Vision Loss
>> 
>> WHEREAS, the National Federation of the Blind and the NFB Diabetes Action Network advocate for the rights of an ever-increasing population of blind and low-vision people with diabetes; and
>> 
>> WHEREAS, the NFB Diabetes Action Network has created and adopted the following Technology Bill of Rights for Individuals with Diabetes and Vision Loss, which proclaims that all people with diabetes have a right to technology that is thoughtfully, collaboratively, and inclusively designed, and that we who have diabetes and are blind assert the following rights: (1) true independence—to manage our diabetes independently, with dignity, and without requiring assistance from sighted individuals; (2) meaningful access—to access the same life-changing diabetes information, diagnostic tools, and treatments as are available to others; (3) identical devices--to benefit from the same (not inferior, antiquated, or less effective) diabetes devices at the same time and price as are available to our sighted peers; (4) direct control—to operate these devices directly, through flexible and inclusive nonvisual and low-vision features, rather than relying upon smartphones or apps for access; (5) full participation—to participate fully in planning, pre-market testing, clinical trials, and evaluation of these technologies, their user interfaces, and related apps; and
>> 
>> WHEREAS, low vision and blindness complicate diabetes self-care; and
>> 
>> WHEREAS, for the past thirty years diabetes technologies have failed to include essential usability features (audio, high contrast, large print) that make independent diabetes self-care possible; and
>> 
>> WHEREAS, increasingly powerful and life-changing diabetes devices are emerging, many with high tech user interfaces such as onscreen menus and touch screens that create unintentional digital barriers that make the devices difficult to use without good vision; and
>> 
>> WHEREAS, this lack of access disadvantages users with visual disabilities and causes serious health inequities; and
>> 
>> WHEREAS, all diabetes devices can be designed to be fully accessible out of the box for little or no extra cost using existing technology; and
>> 
>> WHEREAS, audio features are already enhancing functionality and user experience for all consumers in other technologies such as GPS systems, elevators, ATMs, and Google Maps, not just for blind or low-vision consumers; and
>> 
>> WHEREAS, in some products simple tactile buttons and audible tones or vibrations may make devices fully accessible, while in others text-to-speech and zoom features can make user interfaces more inclusive: Now, therefore,
>> 
>> BE IT RESOLVED by the National Federation of the Blind in Convention assembled this fourth day of July, 2016, in the City of Orlando, Florida, that this organization adopt and affirm the Diabetes Action Network’s Technology Bill of Rights for Individuals with Diabetes and Vision Loss; and
>> 
>> BE IT FURTHER RESOLVED that this organization pledge to work toward establishing and securing these important rights until all diabetes devices are fully accessible out of the box; and
>> 
>> BE IT FURTHER RESOLVED that this organization urge other diabetes advocates, technology developers, and federal policy makers to affirm these rights and join with us to work to end these unjust health inequities.
>> 
>> 
>> 
>> Anil Lewis, M.P.A.
>> (410) 659-9314 x 2374 
>> National Federation of the Blind
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Sandi Ryan via Diabetes-Talk
>> Sent: Tuesday, August 25, 2020 6:00 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: sjryan2 at gmail.com
>> Subject: Re: [Diabetes-Talk] DAN Resolution 2016-16
>> 
>> The Bill of Rights was intended to be used broadly with potential partners and to spread the word. I have the actual document in Braille, and would be glad to type it into a message if anyone wants to read it. Whether we use it or not, and I don't care either way, it does provide some wording that might be good for a message, and It is similar to some things that have been said here.
>> 
>> Let me know if you'd like me to make it available here.
>> 
>> Sandi
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, August 25, 2020 3:01 PM
>> To: mota1252 at gmail.com; 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
>> Subject: Re: [Diabetes-Talk] DAN Resolution 2016-16
>> 
>> But again, this is just something within the Federation. Few outside the Federation have heard of this. And it's never come close to being introduced in hearing. It's been brought up during Washington Seminar, but that's still not the same as being presented on the floor. This is solely a Federation resolution that frankly means nothing beyond something the NFB theoretically supports. This is not a judgement, just a reality.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Milton via Diabetes-Talk
>> Sent: Tuesday, August 25, 2020 2:06 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Milton <mota1252 at gmail.com>
>> Subject: [Diabetes-Talk] DAN Resolution 2016-16
>> 
>> Below is the full text of the Resolution passed by the convention. To get the full text of the Bill of Rights, if someone has back issues of the Diabetes Action Network Newsletter you will find it there.
>> 
>> Resolution 2016-16
>> Regarding the Technology Bill of Rights for Individuals with Diabetes and Vision Loss WHEREAS, the National Federation of the Blind and the NFB Diabetes Action Network advocate for the rights of an ever-increasing population of blind and low-vision people with diabetes; and
>> 
>> WHEREAS, the NFB Diabetes Action Network has created and adopted the following Technology Bill of Rights for Individuals with Diabetes and Vision Loss, which proclaims that all people with diabetes have a right to technology that is thoughtfully, collaboratively, and inclusively designed, and that we who have diabetes and are blind assert the following rights: (1) true independence—to manage our diabetes independently, with dignity, and without requiring assistance from sighted individuals; (2) meaningful access—to access the same life-changing diabetes information, diagnostic tools, and treatments as are available to others; (3) identical devices--to benefit from the same (not inferior, antiquated, or less effective) diabetes devices at the same time and price as are available to our sighted peers; (4) direct control—to operate these devices directly, through flexible and inclusive nonvisual and low-vision features, rather than relying upon smartphones or apps for access; (5) full participation—to participate fully in planning, pre-market testing, clinical trials, and evaluation of these technologies, their user interfaces, and related apps; and
>> 
>> WHEREAS, low vision and blindness complicate diabetes self-care; and
>> 
>> WHEREAS, for the past thirty years diabetes technologies have failed to include essential usability features (audio, high contrast, large print) that make independent diabetes self-care possible; and
>> 
>> WHEREAS, increasingly powerful and life-changing diabetes devices are emerging, many with high tech user interfaces such as onscreen menus and touch screens that create unintentional digital barriers that make the devices difficult to use without good vision; and
>> 
>> WHEREAS, this lack of access disadvantages users with visual disabilities and causes serious health inequities; and
>> 
>> WHEREAS, all diabetes devices can be designed to be fully accessible out of the box for little or no extra cost using existing technology; and
>> 
>> WHEREAS, audio features are already enhancing functionality and user experience for all consumers in other technologies such as GPS systems, elevators, ATMs, and Google Maps, not just for blind or low-vision consumers; and
>> 
>> WHEREAS, in some products simple tactile buttons and audible tones or vibrations may make devices fully accessible, while in others text-to-speech and zoom features can make user interfaces more inclusive: Now, therefore,
>> 
>> BE IT RESOLVED by the National Federation of the Blind in Convention assembled this fourth day of July, 2016, in the City of Orlando, Florida, that this organization adopt and affirm the Diabetes Action Network’s Technology Bill of Rights for Individuals with Diabetes and Vision Loss; and
>> 
>> BE IT FURTHER RESOLVED that this organization pledge to work toward establishing and securing these important rights until all diabetes devices are fully accessible out of the box; and
>> 
>> BE IT FURTHER RESOLVED that this organization urge other diabetes advocates, technology developers, and federal policy makers to affirm these rights and join with us to work to end these unjust health inequities.
>> 
>> 
>> 
>> 
>> _______________________________________________
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>> 
>> 
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>> 
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