[Diabetes-Talk] V-go insulin system

Mon Nov 9 20:41:55 UTC 2020

I'm in total agreement. We should have accessible meters, accessible cgm with all aspects of the app to the cgm accessible to us.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Monday, November 9, 2020 12:26 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Jeanette Kutash <kutash-jm at comcast.net>
Subject: Re: [Diabetes-Talk] V-go insulin system

Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 

Those are my questions, Patricia, and I do look forward to your answers.

Jeanette 

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Monday, November 09, 2020 2:25 PM
To: Diabetes Talk for the Blind
Cc: Patricia Maddix
Subject: Re: [Diabetes-Talk] V-go insulin system

Bridget,
The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
Patricia

Sent from my iPhone

> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Jamie,
> 
> Thanks for the intel. This is very helpful. Like you, I have rather 
> low insulin needs. So, this system would not work for me either. When 
> I moved to Iowa, I made the decision to go off the InPen. I have no 
> support here to assist with pump needs when I need it. It made sense 
> for me to transition off. However, I want to be back on a pump. I'm 
> using Levemir for my long acting, and Humalog in the InPen. First, 
> InPen is a novelty. I've not found it to be any different than a 
> traditional insulin pen. I do like that I can confirm delivered doses 
> via its app, but other than that, it does nothing else useful in my 
> opinion. It does not even provide info about how much insulin is left 
> in the pen, which would be helpful. I confirmed with InPen that it 
> does not provide this info. It's supposed to pair with Dexcom, but it 
> does not provide real time info. I have to manually plug doeses, 
> carbs, etc. for it to calculate. And I hate logging on 2 separate 
> apps, so I stopped logging on InPen, and just stick to logging info on 
> Dexcom. My BGs have not been too bad since transitioning, but I 
> definitely have better, tighter control with a pump. I really hope 
> accessibility is being considered with these apps; I would switch back 
> to a pump in a heart beat if I had more independent control with a 
> pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Jamie Gurganus via Diabetes-Talk
> Sent: Monday, November 9, 2020 11:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: jamielgurganus at gmail.com
> Subject: [Diabetes-Talk] V-go insulin system
> 
> Hi all!  I just came from seeing my Diabetic Educator.  I asked her 
> about the V-go system, and she showed it to me.  Here is the scoop on 
> why it might not work for many of us pump users.
> 
> 
> 
> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> for someone like me who only uses 13 units each day, it would be an 
> insulin overload all day for me.
> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> the basal rate per hour is .8.  The only time my rate is that high is 
> for a few hours in the middle of the night.
> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> just one unit is not possible.
> 
> 
> 
> Anyway, it is pretty neat for someone who might need a lot more 
> insulin than I do.
> 
> 
> 
> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it 
> will quit on me by then.  So, my educator hopes that either Tandem or 
> Omnipod come out with something accessible for us blind users by then.  
> She said that they are both working on accessible phone apps that will 
> have the ability to run the pump from the phone.  She also mentioned 
> that there is a person from Boston named DeMayo who is working on a 
> pump.  She does not think it will ever get on the market though.  It 
> is a dual cartridge system that has both insulin and glucagon in it.  
> I sure don't want to have to pay for glucagon.  I refuse to fill a 
> glucagon prescription, since it is anywhere from $300-600 to fill.  In 
> my 50 years of being a diabetic, I have never had to use my glucagon kit.
> 
> 
> 
> Hope everyone is staying safe and well!  
> 
> 
> 
> 
> Jamie
> 
> 
> 
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