[Diabetes-Talk] Medtronic 770G

Bernadette Jacobs bernienfb75 at gmail.com
Tue Oct 13 17:50:27 UTC 2020 

yeah, and "Almighty Medtronics" is one of the worst offenders. Heaven forbid they should actually be responsible for designing something a blind person can actualy use independently, whenin fact, they've always implit blind diabetics need caregivers? Can't give this poor blind imbeciles too much control over their diabetes now. Can we 

Don't worry honey. I'm still in your corner in all "tmess I know you're to which you're referring . 

Bern.???, 

Sent from my iPhone

> On Oct 13, 2020, at 12:47 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> First, thanks Bern. I really appreciate the compliment.
> It's true that on any list, we each have our parts of the playground where we hang out and many of you have given me a great deal of help and support over the years. Thank you for that.
> Now, on to Medtronic. At one of the conferences I attended, I heard the discussion about controlling the pump with phones and such. Remember, it was Medtronic who even discontinued their remote control because one of their pumps was hacked. Remember how upset they got when the guy, James, I have forgotten his last name, got into one of their pumps a long time ago and got it talking. 
> They refused to use his work to benefit anyone and just locked things down so nobody else could do anything like that. 
> As for the innovations, if I wanted to choose small, medium and large meals, I'd just get inhaled insulin. That's how it works. Who defines that anyway? 
> There is already a device in trials that just figures everything out, everything! No guess work even on meals. I think there are two more devices in trials out of Boston somewhere. And I don't put much stock into anyone's promises for the future. Remember in the late eighties when the cure for diabetes was less than 15 years away? Anybody remember the Medtronic implanted pump of the early nineties? Now that was a strange device. 
> But anyone who has gone through the fights with Dexcom not keeping up with Apple updates, umm, imagine if that were our only way to control a pump. It would be really bad if a phone update totally screwed up the Dexcom app, but it would be disaster if a phone update screwed up our ability to work a pump. 
> Now honestly, the FDA was using similar weird arguments about adding speech to a device. "We would worry that it would say the wrong thing or not match the display." Yes, that is what they actually said. My answer, so test it. Any screen-reader company would be able to help out with this. That's how we had so many third party speech boxes in the nineties, because somehow it was more okay if the speech wasn't in the device? I think it was just money because it meant that some other company did it. <grin.> 
> But again, this is why we need a more general approach so that all manufacturers will benefit from change and get on board. When people who are blind or visually impaired are consulted during some of this magnificent research, and are recruited to participate in focus groups, then I'll think about standing on my tip toes. When a working accessible pump is in my hands, then I'll jump up and down. <grin.>
> Veronica
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, October 13, 2020 7:50 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] Medtronic 770G
> 
> Bern and all,
> 
> Thanks. I think this list has been a great resource for many people. We have a collective knowledge and experience that's important. I appreciate everyone here.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bernadette Jacobs via Diabetes-Talk
> Sent: Tuesday, October 13, 2020 7:05 AM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Bernadette Jacobs <bernienfb75 at gmail.com>
> Subject: Re: [Diabetes-Talk] Medtronic 770G
> 
> bridget and Veronica, 
> 
> Once again, I'd like to thank you for seting the record straight. It's so comforting to have you both as Both of you approach these things witha sober head on your shoulders and you both know what to inquire and just how to get it!!! i publically want to commend you both because I have learned most of what I know about even my own condition from you all these years. I've been waiting to hug you both. Maybe some day??? Thank you from the bottom of my heart!!!
> 
> Bern. 
> 
> Sent from my iPhone
> 
>> On Oct 13, 2020, at 12:32 AM, Patricia Maddix via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Just wanted to add a bit to this discussion on the Medtronic 770 pump 
>> with the 780 pump hopefully coming in April. The rep in my local area 
>> regularly takes part in the research and development department and as 
>> she and I have been in contact for several years she encouraged them 
>> to make the new app that is coming out voiceover compatible because of 
>> previous discussions we had had in the past.  She said that theShe 
>> said that the app coming out November 1 is VoiceOver compatible. I 
>> then suggested to her That she suggest to them that they make the 
>> actual pump it’s self function like voiceover or talk back and she 
>> indicated she would also discuss that with them. We discussed the fact 
>> that the app itself does not allow you to actually do things on the 
>> pump and she filled me in on some interesting details. She said that 
>> was their original plan when they were developing the770 pump and the 
>> accompanying app. They really wanted to make it possible for people to 
>> control the pump using the app but apparently the FTA has some huge 
>> concerns about cyber safety. As if anyone is going to hack into your 
>> pump and give you a bolus but there you have it. The FTA is apparently 
>> requiring some very stringent safety features to be included to 
>> protect the consumer from this kind of problem and Medtronic has not 
>> been able to meet all those criteria yet.  At least we don’t have to 
>> convince research and development that controlling the pump from the 
>> app should be included, they just need to find a way to make it happen 
>> that will satisfy FdA
>> 
>> She shared with me all kinds of interesting things that they are working on for the future. One of them is a sensor and infusion site said it is an all in one item and inserted as one unit to be left  in for one week.  The new pump will adjust basal rates as needed as often as every five minutes to keep blood sugars in range. In the near future they are adding developments that will no longer require people to put exact carbohydrates that they plan to eat into the pump but merrily select small medium or large meal and the pump is supposed to be able to compute the correct basal rate.  The new pump will also allow people to mute the alarms on the app and the pump for periods of time when they are in a situation where they do not want to be disturbed such as a meeting or a funeral, etc and they have apparently reduced the frequency of alarms and simplified the effort required to manage the pump.
>> We are so close with all these pumps but just not quite there yet. Unfortunately my current out of warranty pump has started to act up as the battery will die unexpectedly even when it shows 3/4 full.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Oct 12, 2020, at 2:26 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> Yep, this is what I found out from Medtronic itself.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Veronica Elsea via Diabetes-Talk
>>> Sent: Monday, October 12, 2020 3:24 PM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>>> Subject: [Diabetes-Talk] Medtronic 770G
>>> 
>>> Hi everyone.
>>> I just came back from my endo appointment and the subject of this 
>>> Medtronic pump came up. She said, there is absolutely no pump control 
>>> available from the iPhone app. And even if there were, if we can't 
>>> unlock the pump from the phone, we're screwed. So it's not time to 
>>> jump up and down. Yes, it will be nice to be able to read status 
>>> items on the phone. But if we can't do anything, no go!
>>> Just what I was told this morning.
>>> Veronica
>>> 
>>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>>> available on iTunes, along with other music from her and from the Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>               Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> 
>>> 
>>> 
>>> 
>>> _______________________________________________
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>> 
>> 
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> 
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