[Diabetes-Talk] Introduction, Accessible Non Stic Glucometers

Les Fitzpatrick lfitz50 at gmail.com
Sun Jan 10 17:34:27 UTC 2021 

I'm an android user as well and I totally agree about the accessibility issue. The way things have been going lately I may be using an insulin pump as well.

Les fitzpatrickPiano Technician
Ham call K5FPT

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Doula Jarboe via Diabetes-Talk
Sent: Sunday, January 10, 2021 9:30 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: doula.jarboe at gmail.com
Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic Glucometers

     And that doesn't say anything for someone like myself who is an Android user.  I'm not currently a pump user, and don't know if I ever will be.  But if the day ever comes, I don't want to be left out, just because I don't use an Apple product.  I appreciate your advocacy for that accessibility though.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Sunday, January 10, 2021 1:13 AM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Patricia Maddix <pmaddix at comcast.net>
Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic Glucometers

Oh I agree totally and share all your frustration. I have several friends using the almost completely automated tandem system that is out now and are doing so very well with it it makes me very envious they are cited of course.  I read about pumps and algorithms that are not too far off that will make all the decisions and you may not even have to enter carbs for meals.
I have recently been in contact with the organization/company nonprofit group called Tide pool who have an app that a lot of the loopers Who are sided are already using to make a completely closed loop insulin pump. Any day they will be submitting their iPhone app for FDA approval so that people will be able to pick one brand of continuous glucose monitor system and another brand of pump to  Mix and match devices as well as choose the algorithm that they want to customize an automated insulin pump system that works the best for them. In my contacts with them they state that they have built in accessibility to the app from the ground up in the development of this product. As near as I can tell you will be able to control your devices from the app on the phone and so if the app is completely accessible we would be way ahead in the game. This still does not address the problem of INXS ability of the actual pumps themselves as that falls to the manufactures.
Patricia

Sent from my iPhone

> On Jan 9, 2021, at 6:52 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Sorry, by then we'll be asking for technology that is out of date, once again. On my worst days, I could convince myself that they'll find that cure for diabetes before we get accessible equipment. Sighted people already have stuff that is pretty close to behaving like closed loop system. I believe that within three years, many people will have systems that automatically calculate and adjust insulin levels based on continuous readings, requiring nothing from the person wearing the gear. The only reason we won't have it is because all of these organizations did nothing for so many years. This is not bragging time. It's shameful.
> Sorry, but I call 'em as I see 'em.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Saturday, January 09, 2021 6:29 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic 
> Glucometers
> 
> Today we had the Washington affiliate president at our local chapter meeting and she explained before bills that are going to be proposed and the legislature this year. The one you are talking about deals just with home medical equipment. Apparently they have decided to separate all medical equipment from the original bill that included washers dryers ovens etc. which is really great in my opinion. She did explain however the timeline that would be involved if this bill passed.. The first 12 months after the bill is past the FTA puts together precise protocols and guidelines for the equipment, then there is a 24 month period where businesses/people can respond. After that there would be 36 months to give all of the companies that make the equipment time to update all of their equipment to Meet the new laws. So in my calculation that is six years after the law is passed. But we have to start somewhere.
> Patricia
> 
> Sent from my iPhone
> 
>> On Jan 9, 2021, at 5:50 PM, Sandi Ryan via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Sorry. No one spelled it in our meeting. But this gives me hope.
>> 
>> Sandi
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Doula Jarboe via Diabetes-Talk
>> Sent: Saturday, January 9, 2021 6:43 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: doula.jarboe at gmail.com
>> Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic 
>> Glucome Hi Sandy and All,
>> 
>>    I was in a meeting with President Riccabono this morning.  And I 
>> believe it's actually the Humand not Human.  Either way, I think this 
>> might be a better way to go for all this medical equipment that isn't 
>> all that accessible.  I'm sure as we get closer to Washington 
>> seminar, we'll get more information, and a better picture of the whole idea.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Sandi Ryan via Diabetes-Talk
>> Sent: Saturday, January 9, 2021 2:58 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: sjryan2 at gmail.com
>> Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic 
>> Glucometers
>> 
>> Thanks, Walter. I find it suspicious that the only people with Type 2 
>> who can get a CGM are those who must test their blood four times per 
>> day, but Medicare pays for only up to three strips per day. It would 
>> be a lot less costly for everyone if they allowed us to have CGM's 
>> when our sugar levels tend to stay low so we can figure out how to 
>> keep them that way. All waiting does is keeps doctors and insurance 
>> companies in business treating all the people who couldn't have the 
>> devices to assist with prevention! Please read below for extremely 
>> brief info about the NFB's Washington Seminar priority on accessible home medical devices.
>> 
>> At our NFB chapter meeting today, I learned that the NFB is taking 
>> what they're calling, I think, the Human Act to Washington Seminar as 
>> one of the issues. They have backed off their plan of last year to 
>> lump home appliances and gym equipment in with medical devices, and 
>> we're seeking support for accessible home medical devices only. This 
>> is all the information I have so far. Apparently the fact sheets for 
>> the four priorities are not yet available, but this sounds much better than last year.
>> 
>> Sandi
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Walter Mitchell via Diabetes-Talk
>> Sent: Saturday, January 9, 2021 7:08 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: walterl.mitch2 at gmail.com
>> Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic 
>> Glucometers
>> 
>> Good Morning Sandy and All,
>> 
>> I have been a vicctom of what Sandy has just explained. I am not on 
>> insulin and I test 3 times a day. I would like to have the device as 
>> a preventative measure. I don't understand why my disease must become 
>> worse when there are tools to monitor and possibly prevent the disease from progressing.
>> 
>> I found a program for the Free Style Libre for $180 per month, of 
>> which includes the reoccurring supplies.
>> 
>> Contact information:
>> Visit FreeStyleLibre.us or contact our Customer Care team for product 
>> support at 1-855-632-8658. The team is available 7 days a week 8AM to 
>> 8PM Eastern Time, excluding holidays.
>> 
>> I hope that this helps someone.
>> 
>> "Blind love is the answer, today, and for our future!
>> 
>> Walter Mitchell
>> (513) 582-8606
>> Walterl.mitch2 at gmail.com
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Sandi Ryan via Diabetes-Talk
>> Sent: Wednesday, January 6, 2021 6:48 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: sjryan2 at gmail.com
>> Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic 
>> Glucometers
>> 
>> Hi Peter,
>> 
>> The Continuous Glucose Monitors are pretty accessible. The problem is 
>> that, as a "borderline," you wouldn't qualify for one under insurance or Medicare.
>> It could be very helpful for people like you and me to have one of 
>> these devices. My doctor has told me I need test only once a day, 
>> which gives me only knowledge of my blood sugar at one point in the 
>> day. The CGM's check your blood sugar, I think, every 5 minutes so 
>> you can, for instance, see when it's high or low, and determine how 
>> many hours each day your sugar is high or low. But as blind diabetics 
>> who don't have high enough A1C's, we aren't eligible for these 
>> devices. And between the purchase of the unit and the ongoing costs 
>> of sensors and transmitters, they're quite expensive to buy on one's own.
>> 
>> To the rest of you, this issue has frustrated me for several years, 
>> and I just wanted to explain. On the one hand, I'm fortunate that my 
>> glucose levels are not as high as many people's. On the other hand, 
>> until they are that high, I'm being watched and receiving no real 
>> treatment or tools to help it stay that way.
>> 
>> Sandi
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Peter Donahue via Diabetes-Talk
>> Sent: Wednesday, January 6, 2021 9:29 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: pmdonahue2 at gmail.com
>> Subject: [Diabetes-Talk] Introduction, Accessible Non Stic 
>> Glucometers
>> 
>> Good morning everyone,
>> 
>>   First let me introduce myself. My wife Mary and I are members at 
>> large from Texas. We've been NFB members for many years but took a 
>> break from 2014 until last year when we rejoined. Mary is still 
>> employed as a Braille Proofreader and I build websites. In addition 
>> we're also entrepreneurs.
>> 
>>   My doctor is keeping a close watch on my A1C as I'm a borderline 
>> diabetic. I know many blind diabetics who use conventional blood 
>> glucometers for monitoring their sugar. In recent years glucometers 
>> have come on the market that don't require one to prick their finger 
>> to obtain a blood sample. Should one be necessary I'm curious to know 
>> if any of these new generation blood glucometers are usable by blind 
>> diabetics and how they work? Your information will be very much 
>> appreciated. All the best for a happy new year.
>> 
>> Peter Donahue
>> 
>> 
>> 
>> 
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