[Diabetes-Talk] Introduction, Accessible Non Stic Glucometers

sjryan2 at gmail.com sjryan2 at gmail.com
Mon Jan 11 02:59:52 UTC 2021 

You're 100% right, Veronica. Having worked on this issue before, you and I both know that we could be much further along if it hadn't been for things repeatedly shutting down. Even if they'd made this decision last year we'd be that much further ahead. 

Sandi


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Saturday, January 9, 2021 8:51 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic Glucometers

Sorry, by then we'll be asking for technology that is out of date, once again. On my worst days, I could convince myself that they'll find that cure for diabetes before we get accessible equipment. Sighted people already have stuff that is pretty close to behaving like closed loop system. I believe that within three years, many people will have systems that automatically calculate and adjust insulin levels based on continuous readings, requiring nothing from the person wearing the gear. The only reason we won't have it is because all of these organizations did nothing for so many years. This is not bragging time. It's shameful.
Sorry, but I call 'em as I see 'em.
Veronica


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Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Saturday, January 09, 2021 6:29 PM
To: Diabetes Talk for the Blind
Cc: Patricia Maddix
Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic Glucometers

Today we had the Washington affiliate president at our local chapter meeting and she explained before bills that are going to be proposed and the legislature this year. The one you are talking about deals just with home medical equipment. Apparently they have decided to separate all medical equipment from the original bill that included washers dryers ovens etc. which is really great in my opinion. She did explain however the timeline that would be involved if this bill passed.. The first 12 months after the bill is past the FTA puts together precise protocols and guidelines for the equipment, then there is a 24 month period where businesses/people can respond. After that there would be 36 months to give all of the companies that make the equipment time to update all of their equipment to Meet the new laws. So in my calculation that is six years after the law is passed. But we have to start somewhere.
Patricia

Sent from my iPhone

> On Jan 9, 2021, at 5:50 PM, Sandi Ryan via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Sorry. No one spelled it in our meeting. But this gives me hope.
> 
> Sandi
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Doula Jarboe via Diabetes-Talk
> Sent: Saturday, January 9, 2021 6:43 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: doula.jarboe at gmail.com
> Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic Glucome 
> Hi Sandy and All,
> 
>     I was in a meeting with President Riccabono this morning.  And I 
> believe it's actually the Humand not Human.  Either way, I think this 
> might be a better way to go for all this medical equipment that isn't 
> all that accessible.  I'm sure as we get closer to Washington seminar, 
> we'll get more information, and a better picture of the whole idea.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Sandi Ryan via Diabetes-Talk
> Sent: Saturday, January 9, 2021 2:58 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: sjryan2 at gmail.com
> Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic 
> Glucometers
> 
> Thanks, Walter. I find it suspicious that the only people with Type 2 
> who can get a CGM are those who must test their blood four times per 
> day, but Medicare pays for only up to three strips per day. It would 
> be a lot less costly for everyone if they allowed us to have CGM's 
> when our sugar levels tend to stay low so we can figure out how to 
> keep them that way. All waiting does is keeps doctors and insurance 
> companies in business treating all the people who couldn't have the 
> devices to assist with prevention! Please read below for extremely 
> brief info about the NFB's Washington Seminar priority on accessible home medical devices.
> 
> At our NFB chapter meeting today, I learned that the NFB is taking 
> what they're calling, I think, the Human Act to Washington Seminar as 
> one of the issues. They have backed off their plan of last year to 
> lump home appliances and gym equipment in with medical devices, and 
> we're seeking support for accessible home medical devices only. This 
> is all the information I have so far. Apparently the fact sheets for 
> the four priorities are not yet available, but this sounds much better than last year.
> 
> Sandi
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Walter Mitchell via Diabetes-Talk
> Sent: Saturday, January 9, 2021 7:08 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: walterl.mitch2 at gmail.com
> Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic 
> Glucometers
> 
> Good Morning Sandy and All,
> 
> I have been a vicctom of what Sandy has just explained. I am not on 
> insulin and I test 3 times a day. I would like to have the device as a 
> preventative measure. I don't understand why my disease must become 
> worse when there are tools to monitor and possibly prevent the disease from progressing.
> 
> I found a program for the Free Style Libre for $180 per month, of 
> which includes the reoccurring supplies.
> 
> Contact information:
> Visit FreeStyleLibre.us or contact our Customer Care team for product 
> support at 1-855-632-8658. The team is available 7 days a week 8AM to 
> 8PM Eastern Time, excluding holidays.
> 
> I hope that this helps someone.
> 
> "Blind love is the answer, today, and for our future!
> 
> Walter Mitchell
> (513) 582-8606
> Walterl.mitch2 at gmail.com
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Sandi Ryan via Diabetes-Talk
> Sent: Wednesday, January 6, 2021 6:48 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: sjryan2 at gmail.com
> Subject: Re: [Diabetes-Talk] Introduction, Accessible Non Stic 
> Glucometers
> 
> Hi Peter,
> 
> The Continuous Glucose Monitors are pretty accessible. The problem is 
> that, as a "borderline," you wouldn't qualify for one under insurance or Medicare.
> It could be very helpful for people like you and me to have one of 
> these devices. My doctor has told me I need test only once a day, 
> which gives me only knowledge of my blood sugar at one point in the 
> day. The CGM's check your blood sugar, I think, every 5 minutes so you 
> can, for instance, see when it's high or low, and determine how many 
> hours each day your sugar is high or low. But as blind diabetics who 
> don't have high enough A1C's, we aren't eligible for these devices. 
> And between the purchase of the unit and the ongoing costs of sensors 
> and transmitters, they're quite expensive to buy on one's own.
> 
> To the rest of you, this issue has frustrated me for several years, 
> and I just wanted to explain. On the one hand, I'm fortunate that my 
> glucose levels are not as high as many people's. On the other hand, 
> until they are that high, I'm being watched and receiving no real 
> treatment or tools to help it stay that way.
> 
> Sandi
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Peter Donahue via Diabetes-Talk
> Sent: Wednesday, January 6, 2021 9:29 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: pmdonahue2 at gmail.com
> Subject: [Diabetes-Talk] Introduction, Accessible Non Stic Glucometers
> 
> Good morning everyone,
> 
>    First let me introduce myself. My wife Mary and I are members at 
> large from Texas. We've been NFB members for many years but took a 
> break from 2014 until last year when we rejoined. Mary is still 
> employed as a Braille Proofreader and I build websites. In addition 
> we're also entrepreneurs.
> 
>    My doctor is keeping a close watch on my A1C as I'm a borderline 
> diabetic. I know many blind diabetics who use conventional blood 
> glucometers for monitoring their sugar. In recent years glucometers 
> have come on the market that don't require one to prick their finger 
> to obtain a blood sample. Should one be necessary I'm curious to know 
> if any of these new generation blood glucometers are usable by blind 
> diabetics and how they work? Your information will be very much 
> appreciated. All the best for a happy new year.
> 
> Peter Donahue
> 
> 
> 
> 
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