[Diabetes-Talk] Freestyle Libre 2 Update

Tue Oct 26 22:35:14 UTC 2021

I agree with Veronica. Sometimes, we just need a community we trust and
connect with to vent too. Venting here or anywhere else does not equate to
not being proactive and contacting companies and providers. But in addition,
we also need to blow off steam and express how overwhelming all this can be
at times with people who get it. Venting is healthy and can be productive.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, October 26, 2021 4:08 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Freestyle Libre 2 Update

I think ranting here makes a great deal of sense. Suppose someone else was
having trouble and afraid to complain. That's what these lists are for.
Maybe someone here had the experience already and found a solution? Vent
away, Tony. If you can figure out which meds may be disagreeing with these
sensors, that might really help someone. But I hate that feeling of
disappointment when we think we're going to improve something and we don't.
That's got to have been a frustrating experience. Hang in there and keep us
posted.
Veronica

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Robert
Shelton via Diabetes-Talk
Sent: Tuesday, October 26, 2021 1:45 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Robert Shelton <rshelton1 at gmail.com>
Subject: Re: [Diabetes-Talk] Freestyle Libre 2 Update

It didn't strike me that you were venting. You've got a difficult choice and
you made a rational decision.

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
kg 6sxy (kg6sxy) via Diabetes-Talk
Sent: Tuesday, October 26, 2021 2:36 PM
To: Gary-melconian
Cc: kg 6sxy (kg6sxy); Diabetes Talk for the Blind
Subject: Re: [Diabetes-Talk] Freestyle Libre 2 Update

You're right, there was no point in venting to anyone after spending most of
the day on the phone with several Abbott representatives.  

> On Oct 26, 2021, at 2:47 PM, Gary-melconian <gmelconian619 at gmail.com>
wrote:
> 
> How many of these Liberty sensors did you have issues with. Maybe
reporting it to them. Would be a better thing. Then ranting about it here on
a list sir. If they know about it maybe it can look into it. See what's
wrong. I highly doubt that these libre 2 sensors would be off compared to
libre 114 day sensors. But I don't know I have not had any experience with
the libre 2 sensors yet I have had the 14-day libre One sensors for the time
being but I am d for a new leader prescription and we'll see how that goes.
I will let you know how my readings go compared to my meter I do check every
time when I do insert a sensor with the meter and that is how I know that
the meter and the sensor are within 10 to 15% of one another. On average all
the time my library once sensors are close to the meter. So we will see what
the libre too how that does. And go from there.
> 
> On October 26, 2021 9:58:14 AM "kg 6sxy \(kg6sxy\) via Diabetes-Talk"
<diabetes-talk at nfbnet.org> wrote:
> 
>> Finger sticks are not a practical solution for me.  With my 
>> neuropathy,
each finger I have to use reacts badly for days and it takes me a ton of
strips to get just one good reading and I'm sure the insurance company
wouldn't approve 100 strips per day. lol
>> 
>> I know going back to the original Libre sensors is the right decision 
>> for
now because my finger stick readings have always been very close to the
readings of the Libre sensor and my finger stick readings are really close
to what they've always been.  My insurance currently covers 100% of the cost
of both versions of the Libre sensors.  I'll find out at the end of the week
when my next refill for the original sensors arrives.
>> 
>> Take care,
>> Tony
>> 
>>> On Oct 26, 2021, at 12:23 PM, d m gina via Diabetes-Talk
<diabetes-talk at nfbnet.org> wrote:
>>> 
>>> Well I would go back to the finger stick, would save you money.
>>> I am sorry this is happening to you.
>>> Dar
>>> Original message:
>>> 
>>>> I've given the Libre 2 sensors about as much time as I care to at 
>>>> this
point.  These new sensors are more sensitive to a lot of things meaning I
can't trust the numbers from these sensors at all.  Comparing readings from
the Libre 2 sensors against a finger stick reading taken about 30 seconds
before, the Libre 2 sensor is always reporting values that are as much as
180 mg/dl higher than a finger stick reading and the alarms are constantly
going off about critically high readings every 15 minutes around the clock.
Spent a lot of time on the phone with several Abbott reps who tried to
convince me that I don't know how to apply a sensor properly even though
I've had no trouble using the Libre sensors for a couple of years now with
readings that were less than 10 mg/dl apart from finger stick readings.  As
far as I'm concerned these newer sensors are completely useless to me which
could just be due to the list of medications that I am on since the earlier
sensor is not affected as much
>>>> by other medications from my experience. Add to everything else the
days it takes for finger stick sites to recover enough for me to read
braille due to neuropathy and I am not a happy camper.  Test my blood
glucose and remain cut off from the outside world when my tinnitus flares up
or play Russian roulette and don't test when I can't hear VoiceOver?
Neither option is good.
>>>> 
>>> 
>>>> Take care,
>>>> Tony
>>>> 
>>> 
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