[Diabetes-Talk] negaderm patches

Wed Sep 8 23:22:04 UTC 2021

Every blind diabetic I know who uses pumps nonvisually has a different experience. Some are more comfortable doing certain things without sighted assistance than others.

For me, with the Medtronic 530G, which is no longer under warranty, I can deliver boluses on my own, change reservoirs and tubing without assistance along with battery changes.

The 530G does not have a CGM, but my understanding is that Medtronic CGMs are not as reliable or good as Dexcom or Libre.

I do need help adjusting basal rates. I can fill a cartridge on my own in a pinch, but I'm more comfortable having someone do this, as I find the Medtronic reservoirs tricky to fill without getting air bubbles in.

I can, however, switch temporary basals on my own.

Again, the 530G does not have the lock feature. As far as I know, all subsequent pumps Medtronic now makes have this lock function, and I've yet to meet a blind person who can unlock it without sighted assistance, or obviously if you're low vision.

The 530G is no longer available since it's not under warranty, unless something has changed with this. The only other pump on the market that blind people are using nonvisually without a lot of sighted assistance is the Omnipod, which Veronica can speak more on.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Wednesday, September 8, 2021 5:08 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Patricia Maddix <pmaddix at comcast.net>
Subject: Re: [Diabetes-Talk] negaderm patches

Jamie,
What brand of insulin pump are you currently using? Is it linked to a CGM? Do you need any sighted assistance to fill with insulin, adjust basal rates, etc.?
Patricia

Sent from my iPhone

> On Sep 8, 2021, at 12:26 PM, Jamie Gurganus via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> I've also been a totally blind pump user for almost 23 years now and 
> never gave myself the wrong dose.  I've used four different makes and 
> models of pumps now, and all have a way to make sure you are giving 
> yourself the correct dose.  Of course, one does need to pay attention 
> to the dosage confirmation before pressing the "Go" button!
> 
>                Jamie
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Wednesday, September 8, 2021 2:15 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
> Subject: Re: [Diabetes-Talk] negaderm patches
> 
> Gary,
> 
> As a totally blind person who used an insulin pump for nearly 20 
> years, I never gave myself a wrong insulin dose despite current pumps 
> having no nonvisual interface. Every pump on the market has fail-safes 
> built in for any user, which often works well for nonvisual use. As we 
> all know, the problem right now with pumps is that in order to access 
> any function, you have to unlock the screen now, and there's really no 
> way to do this nonvisually since it's not always the same part of the 
> screen you tap to unlock. But in terms of misdosing, personally, was not an issue.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> gary via Diabetes-Talk
> Sent: Wednesday, September 8, 2021 1:39 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: gmelconian619 at gmail.com
> Subject: Re: [Diabetes-Talk] negaderm patches
> 
> Thanks very much.do you think this pump sstem will have an accessible 
> app that would work with I OS or android to make life a bit simplier 
> for blind users like you and i. that is my fear and worry about 
> insulin pumps as I will make the mistake and administer more insulin 
> then I need then have lows and it wont be fun
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
> %40gma
> il.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jamielgurga
> nus%40
> gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
> omcast.net

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com