[Diabetes-Talk] Alarming at public events

Les Fitzpatrick lfitz50 at gmail.com
Mon Apr 8 19:53:37 UTC 2024 

You could turn it on do not disturb and I'm pretty sure that would do it.

Les fitzpatrickPiano Technician
Ham call K5FPT

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Monday, April 8, 2024 11:23 AM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Patricia Maddix <pmaddix at comcast.net>
Subject: Re: [Diabetes-Talk] Alarming at public events

I hope somebody can help me out here. I’m going to be having a medical procedure and will be wearing my tandem insulin pump, dexcom G7 sensor and have my iPhone there so all will be in Bluetooth range during the procedure, my husband will then also be able to follow my blood glucose from his phone in the waiting room as my diabetes is very volatile and the doctor and staff involved is pretty clueless on pumps and sensors and type 1 diabetes. however I wouldn’t want my phone to ring so I called Dexcom and ask them if I flip the mute button on the side of my iPhone to mute the Phone ringing if that would stop my Dexcom notifications. They said it would turn those things off as well. I know how to adjust my Dexcom settings for vibrate, etc. but does anyone know how to make it so the phone calls would not ring but all of my Dexcom alerts and alarms would come through? I don’t get a lot of phone calls generally and especially not early in the morning, so no doubt it would not ring but it certainly would be bothersome in the procedure room if it did happen to Ring.
Patricia.

Sent from my iPhone

> On Apr 8, 2024, at 10:25 AM, Jamie Gurganus via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Bernadette,
> 
> I totally agree with you on all of this.  I'm all for proper cell 
> phone etiquette especially for those using Voice Over.
> 
>            Jamie
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Bernadette Jacobs via Diabetes-Talk
> Sent: Monday, April 8, 2024 10:27 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bernadette Jacobs <bernienfb75 at gmail.com>
> Subject: Re: [Diabetes-Talk] Alarming at public events
> 
> I have to say, I agree with this first thing here. I, myself have been 
> on the Dexcom now for nearly five years. I did attend last year's DAN seminar.
> And, quite frankly, It was not the "low" or "high" blood sugar alarms 
> that I found to be disruptive. I, too would rather be disrupted by 
> those alarms in particular. What I found to be disruptive were the 
> multitude of phones that were simply ringing and, in fact, as I 
> recall, we even had a couple of folks answer their phones/devices right there in the meeting.
> 
> Not sure whether or not folks are aware that the "settings" within the 
> Dexcom app itself can be adjusted and vibrate as the need arises. As a 
> matter of fact, I share my Dexcom with both  my husband and my 
> daughter, which has saved my neck a time or two. My daughter uses 
> voiceover on her phone and has also learned how to adjust the 
> "settings" within the Dexcom app. There is, in fact, a way to silence 
> the phone so that only the phone will vibrate. But one can leave on 
> the "critical alerts." You can even turn off the "critical Alerts. In 
> case most are not aware, if you have the "critical alerts" running, 
> the phone does vibrate. So, that if you don't hear it, you should feel 
> the vibration. I silence my phone all the time but I never turn off my 
> "critical alerts." I never leave my house without my earbuds either. I 
> use them as a courtesy in meetings and such. I also refrain from the 
> use of "speaker Phone?" I hear that all the time and not just in meetings and seminars. That really gets under my skin.
> 
> Just some thoughts. 
> 
> Have a great day!
> 
> Bern
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Schlenker, Emily Devaris via Diabetes-Talk
> Sent: Sunday, April 7, 2024 4:06 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Schlenker, Emily Devaris <eschlenker at ku.edu>
> Subject: Re: [Diabetes-Talk] Alarming at public events
> 
> Hello, I have a couple of thoughts from the perspective of someone who 
> is blind and is also studying in a health profession.
> Number One, I am guessing that there are people in all stages of their 
> diabetic journey, and for a lot of them who are just getting started, 
> there are a lot of new things to which they must get accustomed. 
> Monitoring one's blood sugar accurately and consistently is probably 
> intimidating and may come along with other difficulties related to an 
> adjustment to blindness/assistive technology or learning to deal with 
> a labile disease. I present this as my first concern, because I don't 
> think the majority of people want to be disruptive or want to feel 
> exposed while they are struggling with the above.
> 
> Number two, I can tell you that I would rather be disrupted than have 
> a peaceful meeting only to discover that someone is in dire straits 
> from a very low blood glucose.
> All of that is to say that I am not sure that there is one solution 
> for this problem.
> To be fair, I do not have direct experience regarding how much 
> seminars are disrupted, either.
> I think that as long as the diabetes action network gains new members, 
> this will persist.
> These are my immediate thoughts, and it sounds like the practical side 
> of this has been well addressed by others giving headphone 
> recommendations, so I will sign off and return to studying.
> Kind Regards,
> Emily Schlenker
> P2 Student KU School of Pharmacy
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Gary Wunder via Diabetes-Talk
> Sent: Sunday, April 7, 2024 12:26 PM
> To: Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Gary Wunder <gwunder at earthlink.net>
> Subject: [Diabetes-Talk] Alarming at public events
> 
> One of the things discussed at last year's meeting of the diabetes 
> action network at our national convention was the difficulty with 
> alarming from CGM devices that takes place during public meetings. 
> While we certainly want to be notified when our blood sugar runs low 
> or high, how do we manage the frequency of noise that is generated in 
> public events, especially those with a large number of blind 
> diabetics? This may be an agenda item we can discuss at our Knowledge 
> Is Sweet seminar, but only if we have good ideas. I know, for example, 
> that if I wear an Apple Watch, the watch will vibrate rather than my 
> phone. I also know that I can go into the Libra application and 
> temporarily disable alarms if I am confident that my blood sugar will not go low or high.
> 
> 
> 
> Please share any thoughts you have about how you would go about 
> handling this situation. Your contribution may well make a big 
> difference at the seminar. Thank you.
> 
> 
> 
> Gary Wunder
> 
> gwunder at earthlink.net <mailto:gwunder at earthlink.net>
> 
> 
> 
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