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face=Arial>----Original Message-----<BR>From: Sleep and Mood Disorders Lab
<sleeplab@ohsu.edu><BR>To: BVI-Parents@yahoogroups.com<BR>Sent: Mon, Oct
12, 2009 7:58 pm<BR>Subject: [BVI-Parents] Blind Child/Young Adolescent
Study<BR><BR></DIV>
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<DIV>Hello,<BR><BR>My name is Amber Laurie, and I am a Research Assistant in
the Sleep and Mood Disorders Laboratory of Oregon Health and Science
University in Portland, Oregon. I am writing you to ask for your help in
reaching family members and educators of blind children and young adults who
may be interested in participating in a study currently taking place under the
direction of Dr. Alfred Lewy. We are looking for blind children (ages 5-8) and
blind young adults (ages 17-20) who have little or no light perception. The
purpose of this study is to identify abnormal body rhythms and sleeping
patterns of blind children and young adults and to determine if these rhythms
affect sleep quality and social/academic functioning. <BR><BR>The body clocks
of sighted people are reset every day by the daily rising and setting of the
sun, a process that is not possible for the blind, as they cannot receive
light through their eyes. This causes many completely blind children and
adults to suffer from sleep problems. Blind children and teenagers tend to
have body rhythms which free-run, meaning that their natural body rhythms
drift later each day, causing sleep and activity problems. This is similar to
the jet lag that people sometimes experience when they travel. (For more
information on this phenomenon, type "circadian rhythms in the blind" into
your internet browser.) We think that understanding and treating this problem
is important for the social and academic functioning of blind children in the
US, with the results of our study potentially extending worldwide and
benefiting sighted children and young adults as well. <BR><BR>We will measure
body rhythms by using sleep diaries and wristwatch-style activity monitors,
and by sometimes measuring melatonin levels in saliva. Sleep quality and
daytime functioning will be determined by questionnaires completed by
participants, teachers, and parents. The studies may also involve daytime
saliva collection sessions, collected at the participants' home. All costs of
participation will be covered by the investigators.<BR><BR>There are a number
of ways you could help us get the word out about this study. First, you could
distribute the included flyers to families with blind children and young
adults. It would also be helpful for us to know about publications that are of
interest to families with blind children, so that we may distribute
advertisements to those publications.<BR><BR>If you know of any potential
candidates who may qualify and/or who are interested in learning more about
the study, or if you know of any publications that are distributed to families
with blind children and young adults, please have the candidate and/or their
parent(s) contact me at <A title=mailto:sleeplab@ohsu.edu
href="mailto:sleeplab%40ohsu.edu">sleeplab@ohsu.<WBR>edu</A> or
503-494-1402.<BR><BR>Thank you very much for your help, and I hope to hear
from you soon. <BR><BR>Sincerely, <BR><BR>Amber Laurie<BR><BR></DIV></DIV>
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