[humanser] marfans in San antonio?

[Merry Schoch]

Hi Quinto,

My name is Merry and I, too, have Marfan Syndrome.  Like you, my problems 
have been with my eyes.  I have had the retina tear and detach 6 times, 3 
cornea transplants, and other surgeries with the eyes due to complications 
of Marfan Syndrome.  My daughter and grandchild have both had surgery on 
their eyes; however, they have had great success.  I attribute this to 
advances in medicine as well as them both having the surgeries when very 
young.  My grandchild will have another surgery in the near future and I 
pray for great success.  I am blessed to say that I have had no ill effects 
on my heart and do not take beta blockers.

Good luck with your internship.  I am starting the MSW at the University of 
South Florida (Tampa campus) on Monday.  I am very excited and am looking 
forward to the challenge.

I receive a newsletter from the National Marfan Foundation, you may find a 
chapter or listserv from them  Here's their website:
http://www.marfan.org/marfan/
Hope it helps,
Merry Schoch


----- Original Message ----- 
From: "Quinto Sanchez" <sanchezq at prodigy.net>
To: "Human Services Mailing List" <humanser at nfbnet.org>
Sent: Friday, August 21, 2009 11:17 PM
Subject: [humanser] marfans in San antonio?


> Hello everyone this is my first time posting as I am a new member. I write 
> from San Antonio TX. is anyone from SA? A little about myself: is that I 
> am 30 yrs. old Aortic root replacement and Aortic  valve inserted; have 
> lost my vision due to Retinal detachment. I am a Licensed professional 
> counselor intern. I haven't associated much with the Marfan community but 
> rather, I tend to have associated more with the blind community only 
> because blindness has given me more immediate troubles than what Marfan 
> has. Ofcourse, Marfan is the underlying reason for my blindness but, 
> thanks to God I have adapted really well to having Marfans and I have been 
> pretty stable other than the year of 1998. However, I would like to begin 
> associating more with the Marfan community. I have learned a lot from 
> reading you alls posts. I learned I have what you all call "brain fog". A 
> Neurologist named them seizures and put me on tegretol a Seizure med but, 
> no one ever associated my dream like state with B
> Blockers or Marfan.
>
> kindly,
> Quinto
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