[il-talk] Hubby starts Hospice at home.

[Patti S Chang]

Linda, you may want to give Francisco a call. He worked in hospis for several years working with cancer patients. His phone is 773 391 1248. Please let us know what we can do to help. 




Patti S. Gregory-Chang Esq.
Treasurer
National Federation of the Blind of Illinois
pattischang at gmail.com
National Federation of the Blind of Illinois 
“NFBI” on twitter
Facebook

-----Original Message-----
From: IL-Talk [mailto:il-talk-bounces at nfbnet.org] On Behalf Of denise Avant via IL-Talk
Sent: Monday, November 27, 2017 8:44 AM
To: 'NFB of Illinois Mailing List'
Cc: denise Avant
Subject: Re: [il-talk] Hubby starts Hospice at home.

Dear Linda,
I am so sorry to hear about Tom. You are right. We are here for you. I know you have the strength to handle these difficult times. But you should know that all of us will be thinking about and praying for you, Tom, and your families. 




Denise R. Avant, President
National Federation of the Blind of Illinois Live the life you want.
For more information about NFBI,
Go to www.nfbofillinois.org.

-----Original Message-----
From: IL-Talk [mailto:il-talk-bounces at nfbnet.org] On Behalf Of Lin H. via IL-Talk
Sent: Monday, November 27, 2017 5:50 AM
To: NFB of Illinois Mailing List <il-talk at nfbnet.org>
Cc: Lin H. <iwannacu2 at sbcglobal.net>
Subject: [il-talk] Hubby starts Hospice at home.

Hello my Federation Family.
It is with great sadness that I have to tell you all that the doctors can’t do anything more for Tom.    I may have had said before that he can’t have a biopsy, Keemo or anything invasive to treat him.    They think, but are not completely sure that those Nodules in his lung  may be Cancer.    So, we signed on with Hospice in our home.    He DID NOT watt to go to a Nursing Home.    He wants to be at home with me.
The Hospice nurse is coming today to start the ball rolling.    They said he could have from 6 months to 2 years.    
It just broke his spirit.
He’s scared and worried about the thought of dying, and how I’ll manage when he’s gone.
I am trying to tell him tnotto worry and take it one day at a time.    Please pray that at this difficult time for Tom  and myself will go as smoothly as possible.    
I know you guys are here for me, if I need anything, and that’s comforting to know.    Right now, I am concentrating on Tom and making him comfortable.    
We don’t have to stay with Hospice if we don’t like it.  there’s no binding  contract or anything.
Has anyone experienced Hospice for their loved one?    I don’t understand why they don’t want him to take any of his many many pills anymore except the comforting ones.  Like for pain or allergies etc.    If he stops all his meds, won’t that speed up the process of him going sooner?    I have to confirm that with the nurse today.
I hope I can endure and have the strength to handle  our future.    
I am still in shock and numb with this news.
Thank you all for listening.  I appreciate you all, and am glad I found the NFBI.
Sincerely, 
Linda     
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