[Md-sligo] Fw: Local Study on Sleep and Blindness

[d]

This is for people with no light perception.  Call the number at the bottom of the email.  This company was at the national convention.

Debbie

----- Original Message ----- 
From: National Federation of the Blind of Maryland 
To: 'd' 
Sent: Friday, October 01, 2010 7:29 AM
Subject: FW: Local Study on Sleep and Blindness


Hello Debbie,

Perhaps this would be something of interest to your chapter members?

Melissa

 

From: Sara Dale [mailto:Sara.Dale at vandapharma.com] 
Sent: Thursday, September 30, 2010 2:03 PM
To: president at nfbmd.org
Subject: Local Study on Sleep and Blindness

 

Dear Ms. Riccobono,

 

I am from Vanda Pharmaceuticals, a Biotech Company in Rockville, MD.  I see that we have reach out to you in the past and I am emailing today because we are trying to reach out to blind individuals and would like to know if you would be willing to help us.   We have worked closely with the NFB national offices and have placed announcements in their publications. We are now reaching out to local chapters as we have clinical trial sites located across the country.  I believe that some members of the Maryland Chapter of the NFB may be interested in learning about our effort to better understand sleep problems in people who are totally blind. 

 

We are currently launching clinical trials to test a new experimental treatment for blind individuals who suffer from a sleep disorder known as Non-24 Hour Sleep Wake Disorder. In the US, this disorder affects approximately 65,000 totally blind individuals who have this disorder because they lack the light sensitivity necessary to reset their "body clock".  Would you be willing to send an announcement about our clinical trials?  Do you have an email list through which we could send information?

 

We gladly welcome the opportunity to talk to you about our plans and to learn more about you and your organization. We also would appreciate if you could pass this information along to other individuals in your organization and your community who may be interested by this research.

 

 

Below is an announcement about upcoming sleep studies that some totally blind individuals may be interested in.  I have also attached a PDF of this announcement. 

 

Clinical Research Study Recruitment

Blind individuals with no light perception needed.

 

A local doctor is conducting research to evaluate a new investigational treatment for insomnia and daytime sleepiness in totally blind individuals.

Individuals may qualify who:

. are between 18 and 75 years of age

. are blind with no light perception

. have trouble sleeping at night or experience daytime sleepiness

 

Qualified participants will receive study medication and study-related medical evaluation at no cost.

For more information: Call 1-888-389-7033 M-F 9:00 AM to 5:00 PM ET

 

 

Thank you for your time!

 

Sara

 

Sara Dale

Clinical Research Associate

9605 Medical Center Dr

Suite 300

Rockville, MD 20850

Tel: 240.599.4523

Mobile: 301.768.6036

Fax: 301.294.1900

Email: sara.dale at vandapharma.com

 



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