[Missouri-parents-network] Missouri-parents-network Digest, Vol 5, Issue 6

Fri Apr 10 16:45:26 UTC 2009

Thank you soo much Debbie for that about Roman.  He is a very informative child.  Please all say a prayer for Roman.  He is having his left eye removed on the 21st of this month.  he is very nervous about it.  Again thank you all so much for making us feel so welcome.

Rosina

--- On Wed, 4/8/09, missouri-parents-network-request at nfbnet.org <missouri-parents-network-request at nfbnet.org> wrote:

From: missouri-parents-network-request at nfbnet.org <missouri-parents-network-request at nfbnet.org>
Subject: Missouri-parents-network Digest, Vol 5, Issue 6
To: missouri-parents-network at nfbnet.org
Date: Wednesday, April 8, 2009, 12:00 PM

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Today's Topics:

   1. Please Save The Date! (Debbie Wunder)

----------------------------------------------------------------------

Message: 1
Date: Wed, 8 Apr 2009 09:13:24 -0500
From: "Debbie Wunder" <debbiewunder at mchsi.com>
Subject: [Missouri-parents-network] Please Save The Date!
To: "Missouri Parents Network Mailing List"
	<missouri-parents-network at nfbnet.org>
Message-ID: <3F804465F924404993A2B189A9E471A6 at DEBBIECOMPUTER>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
	reply-type=original

Hello al! I just wanted to say what a wonderful time I had with all your 
children at the NFB 09 convention. They are all so wonderful!

We had a fantastic  time with the animals from the Saint Louis Zoo. Roman 
was very very good at knowing  agreat deal about the animals. I must admit 
that I reallyenjoyed his knowledge, much more than I liked  touching the 
wiggly snake. But the owl was wonderful!

Please save the date for our NFB family fun day, Saturday June 6. We had 
hoped this would be in Jefferson City, but we were unable to get a park 
early in June. We have learned that we will reserve a date and park much 
earlier for nextyear.

More information about the First Annual NFB Family Fun Picnic will soon 
follow.

----- Original Message ----- 
From: "Doreen Frappier" <dcfrappier at yahoo.com>
To: "Missouri Parents Network Mailing List" 
<missouri-parents-network at nfbnet.org>
Sent: Saturday, April 04, 2009 3:21 PM
Subject: Re: [Missouri-parents-network] Intro

Yes, I am on the BTF. I am on the Children's Vision Summit Committee. So 
far, I know that it will probably be in October in the mid MO area. The 
theme will revolve around Louis Braille.

Doreen

--- On Fri, 4/3/09, Lisa Brandt <craiglisa2002 at yahoo.com> wrote:

> From: Lisa Brandt <craiglisa2002 at yahoo.com>
> Subject: Re: [Missouri-parents-network] Intro
> To: colemangirly at yahoo.com, "Missouri Parents Network Mailing
List" 
> <missouri-parents-network at nfbnet.org>
> Date: Friday, April 3, 2009, 7:37 PM
> Hey there, Rosina! So glad
> you're on our parent list! It was really great to
> get acquainted with you and your beautiful family at
> convention--
> So far, we've heard from Doreen, Rosina, and
> Lisa. Has anyone else joined? If so, please let
> us know you're here, and give us an introduction.
> I'm excited about our new network, and think we could
> get some great feedback for everyday issues:
> IEP's, medical issues, ACT testing, accommodations,
> etc...It would also be uplifting to hear about your
> child's accomplishments. Learning to make lasagna,
> to an objective met, to an A in science, or getting
> down a great pattern for wiping the counters...it's all
> meaningful, and important!
> Doreen, did I hear correctly that you are now a task
> force member? Congratulations! You will serve
> the position well on behalf of all parents. Maybe you
> could keep us posted about the Children's Vision
> Summit?
> Have a great weekend!
> Lisa
>
>
>
> --- On Fri, 4/3/09, Rosina Solano
> <colemangirly at yahoo.com> wrote:
>
>
> From: Rosina Solano <colemangirly at yahoo.com>
> Subject: [Missouri-parents-network] Intro
> To: missouri-parents-network at nfbnet.org
> Date: Friday, April 3, 2009, 12:42 PM
>
>
>
>
>
>
>
>
> Hello all! I am glad that I finally found this
> list
>
> Okay, let me introduce ourselves;
>
> I am the parent of three RAMBUNCTIOUS kids.
>
> Roman is 11 and has congenital glaucoma. He has
> 20/400 in his right eye and none in left. They are
> considering removing the left as to the continued bleeding
> and light sensitivity and pain. He is in 5th grad and
> a most normal boy. He loves being outside and doing
> things. He used to do gymnastics, and he swims all the
> time. he has also started piano lessons. He
> loves science fictiona and dragons in particular. he
> wants to be a marine biologist.
>
> Ethan is 8 and has congenital glaucoma. he has
> 20/40 in right eye and barely light perception in
> left. He is in 2nd grade and really dosen't see
> the point of reading (yet). he loves arts and crafts
> and riding on his bike (training wheels just removed).
>
>
> Kaile is 2 and is definately at the
> "terrible" stage. She idolizes her brothers
> and always tries to steal their canes.
>
> We live in South central missouri and love to do
> things together. If anyone is in the area we are
> interested in getting together to meet.
>
> Oh yeah, I am a soapmaking mom that is probably
> crazy like my kids. Wonder where they got it
> from?
>
> Thank you for this list;
> Rosina
>
>
>
>
> -----Inline Attachment Follows-----
>
>
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>
>
> -----Inline Attachment Follows-----
>
> _______________________________________________
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> Missouri-parents-network at www.nfbnet.org
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> account info for Missouri-parents-network:
>
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