[nabs-l] Ocular Migraines

[Carly Mihalakis]

Good morning, Kaiti,

         Reading your message about the happening of mysterious 
headaches, made me remember those people we have lost due to 2ndary 
cancer diagnosis, however, it sounds not like you have to worry about that.
My suggestion would be to talk about experience with headaches with 
glockoma doc, see what he suggests. Does anything lessen the pain or 
accuteness of those headaches? Did you happen to have bi/unilateral blastoma?
Car 11:27 AM 10/2/2016, Kaiti Shelton via NABS-L wrote:
>Hi all,
>
>Sorry for this being slightly off-topic, but I wasn't sure of any
>other way to ask for information on it.
>
>I've had some pretty bad headaches since my early teen years, but
>every time I brought it up to my pediatrician (who is really good and
>who otherwise I really like), she made it sound like they weren't
>frequent or severe enough to cause major concern.  There was talk of
>sending me to a neurologist at one point, but she never went through
>with it and wanted me to rule out the possibility that the headaches
>were sinus-related first, which I have done.  While I do get sinus
>headaches, especially in the Spring, I can usually tell the difference
>between them and my other headaches by how they feel.  Further, these
>other headaches are usually there for several hours and aren't
>responsive to ibuprofen or Tylenol, and typically knock me out or
>leave me feeling lethargic afterwards.
>
>Within the past year I started having instances where the vision in
>the eye that has some sight would cut out for a second or two, then
>come back.  This usually happened before or after a migraine headache,
>but sometimes it happens for no good reason at all.  I do know that
>the shunt used to keep my Glaucoma in check is starting to wear down
>and will need to be replaced in the next several years, but when I
>told my retina specialist about these issues he was pretty confident
>that the visual disturbances I was having are caused by ocular
>migraines either in my eye or near the optic nerve.  I also see a
>Glaucoma specialist, and he noted around the same time I talked to my
>retina doc that everything looked as stable as it can be aside from
>the shunt he put in, but I read that ocular migraines are also
>experienced by 2/3s of Glaucoma patients who have taken some damage to
>their optic nerves as I have.
>
>I'm wondering if anyone else has ocular migraines and might have more
>information than I do.  I've been reading up on them, but obviously
>I'm a bit hesitant to take everything I read on Web MD or from the
>Mayo Clinic archives as something that's happening to me.  Again, I
>know this isn't academic-related and am sorry for veering off-course,
>but any information would be great.
>
>Thanks,
>
>--
>Kaiti Shelton
>
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