[nagdu] tired,depressed and discouraged

[Tamara Smith-Kinney]

Yikes!  Been there with the crazy over fibro...  Even after it was finally
invented and I was properly diagnosed.  If you say you have a symptom and a
doctor decides you're not having it because it just isn't convenient for him
to acknowledge of to find out what's really going on...  Guess what! You're
a nut case!  I even went to several counselors over the years who frowned
and assured me that I was perfectly sane as far as they could see and they
couldn't see the point of my taking on a course of counseling.  Unless I
wanted their help working through the fact that the doctors were doing
nothing for my pain except to say it didn't exist so obviously I needed
counseling.  Sigh.

I was lucky!  That game didn't lead to permanent injury for me as is has
with you -- and others.

You, too, get up and get going and do what you need to do to move on with
what is.  I love your attitude and humor, too. 

Tami Smith-Kinney

-----Original Message-----
From: nagdu-bounces at nfbnet.org [mailto:nagdu-bounces at nfbnet.org] On Behalf
Of Mardi Hadfield
Sent: Thursday, June 24, 2010 3:07 PM
To: nagdu at nfbnet.org
Subject: Re: [nagdu] tired,depressed and discouraged

Gail and Tami,I have had similar experiences when it comes to doctors and
agencies that are supposed to be in place to help the disabled to become
more independent.I got several misdiagnosis and never did find out what my
sight problems were until it was to late to correct it.I kept having
seizures and the doctors never could catch it on the EEG machine and I was
pretty much told that I was a nut case.I was told that I could not possibly
have double vision as the new glasses would have taken care of this.I got my
SSDI as a"nut case". There were many tests that proved that I had a closed
head injury with a blood clot in the brain from a car accident.But the
doctors were to Lazy or Stupid to look at them to see if this could possibly
be causing the seizures and vision problems.It took the docs 5 years before
they did indeed see the seizures on the EEG. They then finally decided that
I did have "real" seizures,and was treated with the appropriate medications.
It took years to finally get it under control because of this.It also took
several more years to get the right diagnosis on my vision problems.By then
I was already legally blind.I don't know why Doctors have to make life so
difficult for people who are low income.If I had been "rich",I feel that I
would been better medically cared for and mabe I would not be legally blind
now. But that is the way things seem to go when you don't have a lot of
money.I am also not one to wallow in my problems, so I am just getting on
with my life the best I can.I am lucky to have found such wonderful dogs to
train and a great trainer to help with that.I have to say that this list has
also helped me a lot. I do think that there are a lot of other people out
there in the same boat so to speak, and I hope that they will get the help
they need. Life is much better for me now. Gail, I hope things will get
better for you in the future. Tami, you have a great attitude, and have done
good things for yourself and I love hearing all the Mitzi stories.I can
identify with a lot of them. Have a great day, Mardi and Shaman and
Nala,retired.

-- 
http://wolfsinger-lakota.blogspot.com/
http://wolfsinger2-thegoldendragon.blogspot.com
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