[nagdu] Voc Rehab/independent living counselors

RJ Sandefur joltingjacksandefur at gmail.com
Wed Nov 16 17:26:53 UTC 2011


I am in IL myself. They have limited funding for IL clients. If your in VR, 
well that's a different story. RJ
----- Original Message ----- 
From: "Tami Kinney" <tamara.8024 at comcast.net>
To: "NAGDU Mailing List,the National Association of Guide Dog Users" 
<nagdu at nfbnet.org>
Sent: Wednesday, November 16, 2011 11:33 AM
Subject: Re: [nagdu] Voc Rehab/independent living counselors


> Mardi,
>
> Good grief! I am so sorry.
>
> If you would rather discuss without having to read, my phone #is 
> 503-747-4325. Or I can call you because I have unlimited long distance. 
> Also, if we talk, I can find out more about what your needs are for your 
> system and work on figuring out a free solution for you. They didn't used 
> to exist, but at least there are options now!
>
> Hugs! What is happening to you is so wrong! And I know too many people, 
> including myself, who have been there done that. Wrong, wrong, wrong.!
>
> Healing and strength from Mitzi and me!
>
> Tami
>
> On 11/15/2011 08:25 PM, Mardi Hadfield wrote:
>> Hi every one, I have been trying to get a screen reader for my computer 
>> for
>> over a year. My Voc Rehab / independent living counselor has dragged this
>> out and I am so frustrated.I had a free reader for a while but when I
>> updated it, It became not compatible with my program. I am still trying 
>> to
>> catch up on my nagdu digests and still have 9 more to read to catch up
>> completely.I have magnified the text as much as I can,plus I am using 2
>> lenses and a magnifying glass to read my emails and the nagdu digests.
>> Believe me, this is slow going........I have been to 2 eye specialists 
>> and
>> they have not sent me the reports I asked for. My counselor got the one
>> from the doctor that he sent me to. I don't know what that report says
>> because he refused to give me a copy.That particular doctor was very 
>> snotty
>> to me. She told me that I do not have beginning cataract's.The last 
>> doctor
>> I saw said I did have beginning cataracts. I don't know what to think. 
>> Why
>> would 1 doctor say yes to this and another say no? Not that it makes a
>> difference in my sight at this point. I have cortical vision impairment 
>> and
>> Macular degeneration.(dry form)This doctor even questioned the double
>> vision.I feel that I am going backwards here. I could not get a diagnosis
>> on the double vision for 20 years ,so I just lived with it best I could. 
>> A
>> Neurologist finally made the diagnosis of cortical vision impairment. By
>> then it was not "fixable".A year later I was diagnosed with Dry form
>> Macular degeneration and was told I was legally blind and was warned not 
>> to
>> drive.I think the problem lies in the fact that the cortical vision
>> impairment is a brain problem, stemming from a motor vehicle accident.
>> These eye docs don't get the fact that it does affect my vision as does 
>> the
>> MD.The fact is,that I can't see well enough to read my computer. I feel
>> that the MD alone should qualify me for the screen reader. My vision has
>> changed since the summer and is worse now. I am told that there is no
>> treatment for the dry form MD. My vision sucks and I am so frustrated as
>> what to do to get the screen reader that I need. Being Legally blind
>> qualifies me for a guide dog but I can't get a screen reader? Does any 
>> one
>> have any ideas on how to pursue this? I am going to have to wait til
>> tomorrow to finish reading the rest of my emails as my eyes are burning 
>> and
>> watering now and it is impossible to read any more tonight. Well I hope
>> that some one has a suggestion for me. Thanks for listening to my rant.
>> Mardi and Shaman.
>>
>
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