[nagdu] Introduction and Questions

Tami Kinney tamara.8024 at comcast.net
Tue Jan 31 04:05:19 UTC 2012


Dogless Douglas,

Well, that's saying it! /lol/ The this or that partial vs. total 
politics are, well. They just are. The VR agencies and some guide dog 
programs and other resource sources really don't help that any because 
they go through fads themselves and of course hold resources over the 
heads of those they proclaim to be worthy or needy enough... Or not.

Then there's our general culture, which is in flux in attitudes toward 
disability and blindness... And we all get those pressures whether we 
want to or not because people let us know all about it! /lol/ It seems 
to vary by region or something, too. Interesting phenomenon, yet annoying.

So then we all as whatever blind or VI or not really blind just legally 
blind or blind but won't admit we're blind or whatever ... Well, we each 
have to find our own comfort level within our own context. But then we 
end up mingling with others with some sort of something or other to do 
with their eyes...

Add in a scrum over resources, based on level of vision or nonvision, 
and war will happen. We're human first.

Some of us carry sticks, others travel with dogs. But what about those 
with dogs that aren't from an approved source???? Do we hit them with 
our sticks or sic our dogs on them? /lol/

Honestly, I'm new enough to the scene that the natural human instincts 
that lead to those kind of politics baffle, amuse and annoy me. They 
annoy me more when I notice how much I've been infected and now have my 
own firmly set views about who is cool and who is*not* cool. When a geek 
like me starts deciding who's cool... That can never be good. /grin/

The serious side, for an owner trainer, is that when people start 
talking certification, there's always the concern they might start a 
stampede to make that happen to wipe out frauds! Or something like that. 
My dog is very mellow and sweet. Me... I grow serious fangs while all my 
hair stands on end at the thought! And I am one mean... Well, you know 
what I mean. /lol/

As a partial, I get feeling real sorry for myself or whatever because of 
how totals get all the good stuff which I don't deserve or am determined 
not to need because of my really great vision... Until I compare notes 
with a total who has gotten the same thing in reverse from the same 
agency or organization. Oh. Never mind. It's the sighted folks deciding 
who is worthy or what based on their perceptions of our vision and 
everything. Thanks, folks! /lol/

The resource-based determination of worthiness/need vs. 
unworthiness/unneediness is very serious, too. I decided to check out 
what's going on with our now famously dysfunctional agency by taking the 
drastic step of calling the VRC for my area to see how she would do.  No 
change. She hit the agency script point for point. Which is now just 
past the first VRC no call no show for a meeting that she insisted on. I 
can only assume that if she gets around to getting back to me again, she 
will start with something or other from my old case files or come up 
with something new to convince me I am unworthy of being granted the 
gift of taxpayer resources that are there for blind people who need 
them... I used to think that was a partial, but guess what? They tel 
totals the same thing. /lol/ So now I can only wonder who counts as 
blind people at all around here.

Tami

On 01/30/2012 07:34 PM, Doug Parisian wrote:
> Well, seems like some of this is going a little beyond the pale. We
> would all do well to remember that training takes place in most
> circumstances with the dog and the owner; it ain't just one-sided. I
> guess I've had bad encounters with both school and owner-trained dogs,
> and the responsibility in the end lies with the individual in either
> case, no excuses, poor blind boy just don't cut it.
>
> At TSE, there were a couple of fairly high partials, their vision often
> seriously affected by changes in lighting, and/or other internal
> mechanisms involving vision which I don't pretend to understand. I
> recall one fellow who waltzed into my room while I was struggling to
> read a Microsoft product key with my opticon, remember what I'd read,
> find my place on the keyboard, type in the remembered numbers, and so
> forth. I was failing miserably. My buddy read the numbers for me. Later
> that same day, same guy and I nearly collided during one of those
> dogless periods. His vision had gone to not much more than light
> perception.
>
> Frankly, all I expect from a service animal, dog, pig, horse, etc is
> that they don't harm or interfere with me and mine. In the case of the
> dog, whether or not they work safely is no business of mine, taking into
> account the previous sentence.
>
> Many low vision folks have been cowed by many of the bellowing blind so
> they deny themselves the use of a tool or service which can reduce
> stress, make them as productive as they want to be, and even causing
> back issues as is the case with one of my partially sighted friends who
> could truly benefit from speech output. Unfortunately, this baby Tarzan
> hoots and hollers about how he lives like a sighted person. His back is
> paying the price from his weird contortions to read when he'd have been
> better off using more speech.
>
> Douglas, currently dogless!
> ----- Original Message ----- From: "Tami Kinney" <tamara.8024 at comcast.net>
> To: "NAGDU Mailing List, the National Association of Guide Dog Users"
> <nagdu at nfbnet.org>
> Sent: Monday, January 30, 2012 4:44 PM
> Subject: Re: [nagdu] Introduction and Questions
>
>
>> Robert,
>>
>> Well, I have RP and have been legally blind since 1999. Had it not
>> been for my spouse, whom I finally had to just divorce for several
>> reasons, I would have applied for a guide then, once I learned cane
>> travel, which I ended up having to learn on my own. However, by the
>> numbers I did qualify. I needed a cane, thus I needed a dog.
>>
>> The one program that I did follow through with, just to see what
>> happened, decided somehow that I have really great vision and can read
>> street signs. Therefore, I do not need a guide dog, according to them.
>>
>> Um... First of all, that was certainly not true by 2006. Also, the
>> ability to read street signs -- even if I had, in fact, possessed that
>> ability -- seems to me pretty, um, something. Think about it.
>>
>> Still, I had decided by that point that I wasn't that interested in
>> putting up with that sort of attitude, and some things in my life had
>> changed. So I got a poodle puppy and trained her myself. She is now
>> 5.5 and an excellent working guide. I do not think of her as
>> self-trained but as owner-trained.
>>
>> I think it is fair to say that for me and my guide, the percentage of
>> program trained dogs over owner-trained dogs that cause problems for
>> us is, well, one hundred percent. I have met and worked around other
>> owner-trained dogs, but there has been zero problem because of either
>> dog. Every guide dog that has caused difficulty with my owner-trained
>> guide is program-trained by a certified trainer.
>>
>> When my dog was very young, she did have difficulty adjusting to being
>> around other dogs, so she did cause problems. We worked on that and
>> now she does not. The problems she had when she was young began at her
>> first exposure to other working guides. A program-trained dog growled
>> and lunged at her outside an elevator, then again in the elevator. A
>> short while later, that same dog repeated the behavior because we were
>> unable to avoid passing the pair. Another program-trained dog at that
>> same short event brought his handler close enough that the man would
>> have tripped over her if she hadn't jumped out of the way. He nearly
>> tripped over me another time walking by where I was sitting.
>>
>> So, she was pretty uptight around other guides for quite a while, and
>> it took a lot of work with her to keep her from being ruined, since I
>> won't have a working guide that is that reactive to other guides. So
>> those first program-trained guides we met nearly cost me all the
>> training I'd put into my dog. They caused me and my owner-trained pup
>> way more difficulty than any pet dog has. We made it through, and
>> Mitzi is fine around other guide and service dogs now, but it took a
>> lot of work for both of us to get there. For a long time, I thought we
>> wouldn't.
>>
>> She has saved my life many times. Not anyone else did that by giving
>> her to me already trained. Just her, following the training I gave her
>> and her own brains and good judgment.
>>
>> As a partial, I hear all the time when it comes to resources of all
>> types that my really great vision means I don't need whatever it is
>> and that by just asking I am somehow taking it from "blind people who
>> need it."
>>
>> This has cost me well into the 6 figures by now.
>>
>> I don't have really great vision, not by any vision exam I have had
>> really since before I crossed that magical numerical line that
>> qualified me as legally blind.
>>
>> It sounds to me, though, like you think I shouldn't get a guide dog
>> because I don't really need one. Or adaptive technology to return to
>> my vocation, I suppose.
>>
>> Is there anything else I don't deserve in your opinion? /evil grin/
>>
>> I understand that it can be difficult to rectify differences. However,
>> it was the guide dog program that told you you just wanted the dog for
>> a pet. It was not a partial or an owner-trainer.
>>
>> Tami
>>
>> On 01/30/2012 01:46 PM, Harris.Robert at epamail.epa.gov wrote:
>>> Hi Marion:
>>>
>>> My wife has RP so I know all that. I can only say how I felt when a
>>> school in 1980 or 1981 had the balls to tell me I wanted the dog as a
>>> pet made me feel. I also think (I'm an old fox with a lot of years and
>>> experience now) that I saw a dog guide user with a day time drivers
>>> license. I'm not buying any of that but I'm just me:0). When Pilot
>>> took me on at 19 they basically saved my life. I'm a fast traveler and
>>> was a top notch cane user who taught others that were blind, but, I went
>>> to many many different places and knew in my heart that I needed four
>>> legged help.
>>>
>>> I can tell you many instances where "self trained dogs caused me a lot
>>> of problems, but, I think it is possible to train your own dog, if your
>>> a certified trainer.
>>>
>>>
>>>
>>>
>>>
>>>
>>> From: "Marion Gwizdala"<blind411 at verizon.net>
>>> To: "NAGDU Mailing List, the National Association of Guide
>>> Dog Users"<nagdu at nfbnet.org>
>>> Date: 01/30/2012 03:16 PM
>>> Subject: Re: [nagdu] Introduction and Questions
>>> Sent by: nagdu-bounces at nfbnet.org
>>>
>>>
>>>
>>> Robert,
>>> Individuals with retinitis pigmentosa may have fairly good acuity
>>> but
>>> their fields of vision may be seriously compromised. narrow fields of
>>> vision
>>> can distort depth perception so that individuals may not realize they
>>> are
>>> standing at the top of a flight of stairs or at the threshhold of a
>>> loading
>>> dock. Furthermore, since the periphery of the retina contains a high
>>> concentration of rods cells that are responsible for sight in dimly lit
>>> areas and the ability to see moving objects, those affected by this
>>> condition benefit from using a dog to travel safely under those
>>> conditions.
>>>
>>> Fraternally yours,
>>> Marion Gwizdala
>>>
>>>
>>>
>>> ----- Original Message -----
>>> From:<Harris.Robert at epamail.epa.gov>
>>> To: "NAGDU Mailing List, the National Association of Guide Dog Users"
>>> <nagdu at nfbnet.org>
>>> Sent: Monday, January 30, 2012 2:30 PM
>>> Subject: Re: [nagdu] Introduction and Questions
>>>
>>>
>>>> I'm not sure why somebody with very high vision would need a dog guide
>>>> and have said so in school. Somebody and bodies were in training with
>>>> me and could see faces, identify cars and see the surrounding area
>>>> pretty clearly for well over 50 yards? I'm an honest person and didn't
>>>> hesitate to ask why the hell they were getting a dog. Answers off
>>> list
>>>> only but I was not happy& hope they didn't get a dog guide.
>>>>
>>>> There are waiting lists for people who are very low partials&/or
>>>> totally blind to get a dog guide so its not just a cut and dry "get a
>>>> dog". there is a evaluation& process for reasons mentioned above.
>>>>
>>>> Hope I don't come across as brash but I have very strong feelings
>>> about
>>>> this topic.
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> From: "Larry D. Keeler"<lkeeler at comcast.net>
>>>> To: "NAGDU Mailing List, the National Association of Guide
>>>> Dog Users"<nagdu at nfbnet.org>
>>>> Date: 01/30/2012 12:58 PM
>>>> Subject: Re: [nagdu] Introduction and Questions
>>>> Sent by: nagdu-bounces at nfbnet.org
>>>>
>>>>
>>>>
>>>> Good choice! For me it was a case of the more the merrier!.
>>>> ----- Original Message -----
>>>> From: "Melissa Pasron"<fuzzylucky2021 at sbcglobal.net>
>>>> To: "NAGDU Mailing List,the National Association of Guide Dog Users"
>>>> <nagdu at nfbnet.org>
>>>> Sent: Monday, January 30, 2012 10:47 AM
>>>> Subject: Re: [nagdu] Introduction and Questions
>>>>
>>>>
>>>>> Thank you for giving me a different perspective. I am really trying
>>> to
>>>>
>>>>> weigh the options before I make a decision. My current deciding
>>> factor
>>>> is
>>>>> that I currently have a pet dog and I don't know if I'll be ready to
>>>> do
>>>>> all the grooming and caring for two dogs. Not to mention if a guide
>>>> dog is
>>>>> right for me at the current moment. I think I'll just sit on the
>>> issue
>>>> for
>>>>> a while and think about it. I don't want to go rushing into a
>>> decision
>>>>
>>>>> without giving it a lot of thought.
>>>>>
>>>>> Sent from my iPhone
>>>>>
>>>>> On Jan 30, 2012, at 9:37 AM, "Pickrell, Rebecca M (TASC)"
>>>>> <REBECCA.PICKRELL at tasc.com> wrote:
>>>>>
>>>>>> In making your decision, think about what you most want to do when
>>>> you
>>>>>> return home from being out someplace. Do you want to spend time
>>>> grooming
>>>>>> and caring for a dog, and doing it every single day, or would you
>>>> rather
>>>>>> do something else.
>>>>>>
>>>>>> I worked two dogs. Then I had my daughter and found that all I
>>> wanted
>>>> to
>>>>>> do was hang out with her, especially after being at work all day.
>>>> Taking
>>>>>> care of the dog became more of a chore then something I enjoyed.
>>> And,
>>>> at
>>>>>> times it became very difficult to balance, baby wanted to eat or be
>>>> held,
>>>>>> dog needed to be brushed, you can't do both at the same time. And,
>>>> while
>>>>>> an obvious answer may be "get help with the baby" I enjoyed and
>>> still
>>>>
>>>>>> enjoy taking care of her.
>>>>>> Think about how you'll feel when the dog wakes you up to go potty,
>>>> will
>>>>>> you be okay with it or will it mentally wear you out as "one more
>>>> thing I
>>>>>> have to do".
>>>>>>
>>>>>> What are your hobbies and are they comptible with a guide dog? You
>>>> can
>>>>>> always leave a cane, and a cane is easy to replace. Not true with a
>>>> dog.
>>>>>>
>>>>>> I have had a couple access issues. I can tell you that when that
>>>> happens,
>>>>>> the very first thought that goes through your head is "This really
>>>> f***s
>>>>>> up my plans".
>>>>>> I'll add that I like dogs. They are neat animals, and I think have
>>>> much
>>>>>> to teach us. At times I miss having one. On a day when the sun is
>>>>>> shinging, and it's 65 degrees, I'd love to take a guide dog and walk
>>>> on a
>>>>>> bike path, as the feeling of you being in synch with a dog is
>>>> amazing.
>>>>>>
>>>>>> Right now, I can't deal with the 24/7 nature of a guide dog. I
>>> can't
>>>> do
>>>>>> it with a pet dog either.
>>>>>>
>>>>>> You can bring a guide dog anywhere, but you also need to plan on
>>> that
>>>>
>>>>>> with food, water, rest, appropriate supervision, things like that.
>>>> It's
>>>>>> difficult to "just stay a bit longer" when you didn't plan on it and
>>>>>> don't have food for your dog.
>>>>>>
>>>>>> So, the answer is that it really depends. I offer my perspective
>>>> because
>>>>>> this list is made up of people who are currently using dogs and who
>>>> like
>>>>>> doing it. It would be useful for you and others to have a different
>>>>>> perspective.
>>>>>>
>>>>>> -----Original Message-----
>>>>>> From: nagdu-bounces at nfbnet.org [mailto:nagdu-bounces at nfbnet.org] On
>>>>>> Behalf Of melissa padron
>>>>>> Sent: Friday, January 27, 2012 10:35 PM
>>>>>> To: nagdu at nfbnet.org
>>>>>> Subject: [nagdu] Introduction and Questions
>>>>>>
>>>>>> Hello,
>>>>>>
>>>>>>
>>>>>> I am new to this list so I though I would just start off with an
>>>>>> introduction and then some questions.
>>>>>>
>>>>>> Well, first of all, my name is Melissa and although I am not a guide
>>>> dog
>>>>>> user I am a cane user. I'm in college pursuing a degree in
>>> psychology
>>>> and
>>>>>> I will be moving back to my hometown once I graduate. I'm considered
>>>>>> legally blind, so I do have vision.
>>>>>>
>>>>>> Because of the condition I have, I was not taught to use a cane
>>> until
>>>> my
>>>>>> senior year of high school. I actually had to fight in order to get
>>>> cane
>>>>>> lessons, but since then, I just about take my cane everywhere with
>>>> me. It
>>>>>> helps a lot more than using my vision and stressing my eyes....
>>>>>>
>>>>>> Now, some questions:
>>>>>>
>>>>>> I am not considering getting a guide dog now but I do want to keep
>>> it
>>>> as
>>>>>> an option if I decide that it would help me in my travels. So my
>>>> question
>>>>>> is, what was ultimately you deciding factor in getting a guide dog?
>>>>>> What are some advantages and disadvantages in using a guide dog?
>>>>>> For those of you who have vision, did you encounter problems with
>>> the
>>>>
>>>>>> guide dog schools saying that a guide dog would not benefit you
>>>> because
>>>>>> you have "too much" vision?
>>>>>> Ultimately, this is my greatest fear. I'm scared of encountering
>>>>>> criticism by guide dog schools and "blindness professionals" about
>>>>>> whether a guide dog would benefit me or not. A lot of people with my
>>>>>> condition function well without a cane or a dog so would this be
>>> used
>>>>
>>>>>> against me if I were to apply?
>>>>>>
>>>>>> I am looking forward to hearing your responses and advice.
>>>>>>
>>>>>> Melissa
>>>>>> _______________________________________________
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>>>
>>>
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