[nagdu] FW: [Nfbf-l] Guide dog leads vision-challenged professor to new insight

[Sherrill O'Brien]

Good morning all,

This article was just  sent, but is apparently from last October. At first I
thought it was an oh brother! here we go again! sort of article, but it
turns out to present blindness in a very honest and positive way. It does
mention the dog taking her places if she just says the word, but in the end,
this woman no longer hides her blindness. This is long, but worth reading.

Sherrill


-----Original Message-----
From: Nfbf-l [mailto:nfbf-l-bounces at nfbnet.org]On Behalf Of Alan Dicey
Sent: Friday, February 07, 2014 9:13 PM
To: Undisclosed-Recipient:;
Subject: [Nfbf-l] Guide dog leads vision-challenged professor to new
insight


They sat together in the crisp wind, listening to the sea gulls fussing
overhead.
Wylie loved chasing birds, but now he just leaned against her, letting her
hold him.
"I'm so sorry to disrupt your life like this," she whispered. After six
years, this would be their last night together.

It would take six months, a long journey and a new dog for her to see what
she never saw with Wylie.

Deni Elliott, 59, is an author, ethicist and chairwoman of the journalism
department at the University of South Florida Saint Petersburg.
She has published eight books and more than 190 academic articles and speaks
at conferences all over the country.

For half her life, she has been losing her sight.
You wouldn't know it to look at her. Her gray-green eyes are clear and wide.
She is good at visually tracking voices, seems to see whoever is speaking.
She never says she's blind. When people ask about her vision, she says
simply, "I don't see well."
Push her and she uses a metaphor. "Imagine you have a 1,000-piece jigsaw
puzzle. Well, I only have 100 pieces left and they're all over the place,"
she said. In the right light, a few more pieces fall into place - enough for
her to read the enlarged letters on her computer, or type in fonts the size
of headlines. Sometimes, everything suddenly goes black.

Last year, even the final puzzle pieces began to disappear.

Wylie, her 80-pound German shepherd guide dog, seemed to notice the change.
Deni's relationship with the dog, always uneasy, grew more complicated.
When Deni got Wylie, he was 8 weeks old with too-big ears. At the trainer's
house, he ran straight to her, plopped on her feet and cocked his head.
He stayed by her side constantly after that, going to the Saturday Morning
Market, the Quaker Meeting House, baseball games. He commuted from Tampa to
California, squeezing under her plane seat - flying 125,000 miles in a year.

Wylie was Delta's first Diamond Dog.
He saw her through her divorce and breast cancer. He understood full
sentences. He chased cats.
And he pulled so hard he hurt her shoulder.
Deni and Wylie were in a constant tug of war, both of them vying to be in
charge. She struggled to get him to yield to her, to stop yanking so hard.
But the more sight she lost, the more her guide dog seemed to treat her like
a blind person.
Deni told her students Wylie was her "big, goofy frat boy. He has a very
Kantian way of doing things. You know, Kant - the German philosopher," she
said, seizing every teachable moment. "Well, Wylie has that good sense of
principle, but he does his job out of duty, not love."

Finally, she said, "the frustration had become more than either of us could
handle." She decided she had to give up Wylie, find him someone who would
better suit his temperament.
And get herself a new dog.
"It's the right thing to do," she said, ever the ethicist. "It's for the
greater good."

So last January, after that tearful night on the beach in Hilton Head, South
Carolina, Deni and a friend delivered Wylie to a Non Profit in nearby
Columbia where he would learn to work with veterans suffering from
post-traumatic stress disorder.

The veterans program wanted Wylie right away. But Deni couldn't get her new
guide dog until March. For six long weeks, she wouldn't have a dog by her
side.
A white cane would help her find obstacles. But it couldn't steer her around
skateboarders or sniff out the bathroom.
When you have a dog, people focus on the animal, Deni said; they don't
really see you.
With a cane, everyone knows you're blind.

When it was time to say goodbye to Wylie, Deni led him to an office at the
nonprofit and whispered into his neck, "You're going to stay here for a
while. Have fun, okay?"
Wylie wagged his tail.
"Okay, then, be a good boy," Deni said, hoisting his harness over her left
shoulder. He wouldn't need that anymore.
Then she unfolded a white cane and tapped her way toward the door, alone.

Deni grew up near Washington, D.C., with an older sister, both parents and
always at least one dog. She didn't know how bad her eyesight was until her
third-grade teacher saw her squinting at the board. Glasses showed her a
world where trees had leaves instead of big green capes.
As she got older, her sight started deteriorating. Through college at the
University of Maryland, grad school at Wayne State in Detroit, and a Ph.D.
program at Harvard, Deni kept seeing eye doctors, adjusting her glasses,
chasing what was left of the light.
She kept thinking someone would find a cure while she could still see. So
she never fast-forwarded to what it would feel like to watch her friends'
faces fade, how much it would hurt to walk into a wall.

At Utah State, in her first tenured position, Deni finally got a diagnosis:
bilateral progressive optic neuropathy. A form of multiple sclerosis, which
would get worse. Soon she had to give up driving.

She qualified for a guide dog in 2000, when her vision dropped to less than
10 percent. By then, she was teaching at the University of Montana.

She never considered getting her partner from a guide dog school, where she
would have gotten a 2-year-old canine bred and trained for service work. "I
couldn't imagine putting my life in the paws of a dog I didn't know since
puppyhood," she said.
So she found someone who would train Oriel, her new golden retriever, to be
her partner. Oriel, she told everyone, was the perfect dog. "Like driving a
minivan. Steady and reliable."

After seven years of criss-crossing the country with Deni, Oriel got tired.
That's when Deni's trainer found Wylie, who came from a long line of service
dogs. The trainer drilled Wylie for almost a year before Deni started
working with him.
Wylie was her Porsche. Too sleek and fast, she said, too much for her. "I
always felt like I was holding him back."
Their relationship, she said, was "one of the biggest failures in my life."
Once she realized she couldn't make it work, she decided to let a
professional pick her next partner.

After months of research, she enrolled at Guiding Eyes for the Blind in
Yorktown Heights, Nork York. The school, which opened in 1954, breeds and
trains dogs - and has made more than 7,400 matches. Thanks to donations, the
dogs and training are free.

Deni qualified for a class for experienced handlers, so she would stay in
the dorm for only 10 days. The next opening was during her spring break.
As the date loomed, Deni wondered whether she could go through with the
trip. She hadn't been a student for years. And she had never been around a
bunch of blind people.
She wrote in her journal, "I'm afraid I'll be frustrated with a dog trained
to work with a REALLY blind person."

FEBRUARY
Without a dog she was alone, off-balance, insecure. No paws on her bed or
panting in her face. No one to walk her to school or curl beneath her desk.
The house was too quiet. At night, she started locking her windows.
"I'm tense all the time; I walk with my head down, thinking I'm going to
trip," she said. "A cane is an obstacle locator. A dog is an obstacle
avoider."
With a dog, her world was as wide as his field of vision, hearing and smell.
Now it stretched only as far as the cane could reach. "And it's so lonely -
there's this dog-sized hole in my life. No one comes up to say, 'Hello,
Sweetheart!' to the cane."

She could feel people staring, pitying the blind lady. She heard them
talking about her. "That poor woman." "Oh my god, I'd kill myself if I ever
. . ."

All those years, thinking that if she ignored her disability, nobody would
see it. Now everyone knew.

MARCH
Deni arrived at Guiding Eyes on a gray, snowy afternoon. An instructor
showed her to her dorm room, gave Deni the key and described the layout in
clockwise order:
Here's your closet, bathroom. Nightstand, bed, window. This is how you
adjust the blinds. Outer door, refrigerator. Desk, dresser. Another closet
with dog food.
Deni nodded, grateful and surprised. No one had ever oriented her to a new
space like that. When she stayed in hotels, she had to feel around for walls
and furniture, trying not to trip.

The next morning, she met the other students. Among them were Sonia, a baker
and mother of three; Erik, an occupational therapist; and Kara, a young
mother and artist who made her living painting murals.

For the first exercise, the "Juno walk," instructors pretended to be dogs.
Students had to walk them through the streets, practicing commands and
proving their prowess.
"Here, take this harness," an instructor told Deni. "You're going to heel
me."
Deni grabbed the handle. "Okay. Heel, Juno," she said, trying not to laugh.
She had never walked a human. She felt weird telling this woman, "Good
girl."
Along sidewalks, down and up curbs, across busy intersections they walked.
Deni mastered the commands, but tugged too much, as if the instructor might
try to tow her the way Wylie did. Every few minutes she tilted her head,
trying to catch the light.
"Just relax and follow your dog," said the instructor, Kate Schroer-Shepord.
"You might do better if you close your eyes."

On the third day, Deni and the other students filed into a big room ringed
with folding chairs. Deni sat in the center and collapsed her cane.
"This is an unbelievably exciting day," an instructor said. "They're getting
your dogs ready as we speak."

Guiding Eyes breeds about 400 puppies a year, mostly Labradors, the
instructor explained. They stay with their moms until they are 6 weeks old,
but are immediately socialized with other dogs, cats and people.
Then puppy raisers take them home - and into the world, walking them through
gravel and grass, under bridges, up stairs and into elevators, on buses and
subways, into hardware stores and restaurants.
When the dogs are about 2 years old, they get matched with their new
partners. "I just want four legs and a tail," Deni said when someone asked
what kind of dog she wanted. She was hoping for a female, a yellow Lab with
a quick gait and sense of humor. But she kept telling herself to trust the
experts.

Of 160 partnerships a year, an average of five don't last. Sometimes the
person and dog's speeds don't match; sometimes it's their personalities.
Deni's instructor, Graham Buck, had been at Guiding Eyes for 24 years and
matched more than 400 people with canine partners. He got to know Deni on
their chilly walks. Graham believed Deni needed a dog who was confident
enough to help her relax, but not one who thought he knew everything. One
with a shepherd's energy but without a shepherd's possessiveness.

"Okay, now we're going to tell you your dog's name, breed, color and gender,
and then we will bring them to your rooms," an instructor said. "We need you
all to set good patterns, so stay seated. If you get on the floor, the dog
will climb all over you."

Instructors went around the circle, describing each dog. "Deni," Graham
said. "You are getting a yellow female Labrador named Alberta."
"Thank you!" Deni cried, grinning. "Alberta . . ."

In her room, she paced between the door and window, waiting. She was so
anxious she couldn't sit down.

"Deni, are you ready?" Graham called. "Here comes Miss Alberta. She's 22
months old and her hair is the same color as yours."

Deni dropped to her knees to feel the dog. Alberta was much smaller than
Wylie, in height and girth; her nose was wet. "Hi, honey! Look at you!"
She knew her teacher was watching, but she couldn't help herself. She sat on
the floor, pulled her new partner into her lap, and buried her face in
Alberta's soft fur.

That night, for the first time in weeks, she slept deeply.

Deni worked well with Alberta. But by the second day, Graham could tell she
didn't totally trust her new partner. Deni was still struggling to see
through the splotches, trying to steer.
"Alberta's got this," Graham said. "You don't have to see."

Deni may have been unsure of the dog, but she had complete faith in Graham.
So under a stoplight on a bright, snowy morning, with cars and buses
whizzing by, she shut her eyes, relaxed her hold on the harness and let the
dog drive.

She felt the rhythm of Alberta's walk and fell into the flow. "It was like
dancing," she said later. "Like trotting on a horse. No, smoother. Once we
really hit our stride it felt like I was floating."

No one had ever told her she didn't have to see. Finally, she stopped
pretending she could.

Now that someone else was training the dog, Deni could focus on herself. "In
academia, she's always in control, she's the one everyone looks up to,"
Graham said. "But with Alberta, she's able to let go of that."

And for the first time, she had instructors who could train her. Initially,
Graham said, Deni was "very guarded, almost premeditated with her movements
and words. But as the other students started to share their stories, things
they had stumbled over - and achieved - Deni started to open up," Graham
said. "I think she began to accept herself."

Deni had expected to stay holed up in her room at the school. She didn't
think she belonged with all these really blind people. Besides, she had
articles to write, papers to grade. But she found herself drawn to her
classmates. She grew closest to Kara, the artist. Like Deni, Kara had been
losing her sight slowly, moving to larger canvases and brighter colors to
compensate. What will you do when you can't see at all? Deni asked her.
Kara smiled. "Sculpture."

They were eating salads one night, their dogs splayed at their feet, when
someone asked, "Has anyone found the oil and vinegar?" Everyone started
feeling around, fingering salt shakers and water glasses, until someone
touched the right bottles.
"No one said, 'It's over there.' Or, 'Right beside you.' All of us searched
together and it was okay to not know, to ask for help," Deni said.
"My ability to fake sight wasn't needed."

In Saint Petersburg, a Guiding Eyes trainer followed Deni and Alberta
through their routine. He taught Alberta to ignore lizards and watch for
low-hanging palm fronds. He helped her learn to ride the escalator at
Penney's.
After the trainer left, Deni taught her new partner to find her keys and
carry her dog bowl to the sink. She took Alberta to the Mahaffey Theater and
Disney World. "She's just so sleek and fast," Deni said.

She called Alberta her Mercedes. She nicknamed her Albee, after her favorite
playwright.
And at the end of April, when Albee turned 2, Deni threw her a birthday
party, with a meatloaf cake and a cardboard tiara. "Good girl," she kept
saying. "I'm so glad you came into my life."

Albee gave Deni confidence, a new way to navigate the world. "She knows when
I get disoriented, knows to stop and let me get my bearings before she takes
me exactly where I want to go." When Deni said, "office," or "home," "bank,"
or "meeting," Albee could take her to all those places, avoiding every palm
frond along the way.


AUGUST
Acceptance came slowly, like the darkness. By summer, Deni started doing
things she swore she never would.
Some changes were obvious: She bought sunglasses. Not the old people's
cataract wraparounds, or the thick Stevie Wonder ones. Deni chose stylish,
sassy shades with scarlet frames. She even wore them inside. "They really do
help cut the glare."
Other signs were more subtle. Instead of trying to guess who was talking at
staff meetings, Deni asked her colleagues - whom she had worked with for
years - to introduce themselves so she would know who was sitting where.
"With this new dog, Deni seems a lot calmer, even happier," said Robert
Dardenne, a friend and fellow professor. "I think she's more prone to
adapting herself to do things than to getting things to accommodate her. But
she recently asked for a new computer that would help, and I think that's
great."

"My attitude has always been to not think about my vision. It's not your
problem," Deni said. "But I had to learn that sometimes it really does
matter. And it's okay. I feel less embarrassed, now, about asking for help."

Being at the guide dog school helped her surrender to the darkness. "Not
just give up control, but really get comfortable with my own vulnerability",
she said. "I feel more honest now."
She still thought about Wylie every day. For six months, he had been in a
program where prison inmates retrained him to work with veterans. But no
veterans wanted him; at 7, they thought he was too old.
Finally, in late August, Deni got a call from a man named Fred Grooms, a
retired veteran who volunteers with the service dog program in South
Carolina. He had been taking Wylie home on weekends to play with his teenage
daughter, who has migraines and mobility issues. Grooms was calling to say
he had adopted Wylie. That weekend, he had taken him to a lake with a bunch
of kids where the dog spent all day diving off a dock.

Deni sobbed, imagining her big frat boy of a dog surrounded by squealing
kids. It helped, knowing he finally had a family.

Albee needed more of that kind of fun, Deni decided. So she enrolled in a
Rally class - a competition where people lead their dogs through a course,
stopping to perform commands. After a couple of sessions, Deni had to admit
she couldn't read the command signs. But instead of dropping out, she wrote
to the American Kennel Club and got permission to use a sighted guide.
Now, a volunteer reads the signs to Deni, who gives Albee the commands. On
their last run, they earned a perfect score.

"I'm not going to say that losing my sight has been a blessing," Deni said.
"But I am learning to adapt, and to ask more of the sighted world."

When classes started this semester, Deni stood before her students, wearing
dark glasses. "This is Albee, my guide dog," she said. Then, for the first
time, she introduced herself like this:

"And I am your professor, Deni Elliott. If you want my attention, don't
raise your hand. Make some noise. I might look at you, but I won't see you.
I'm blind."

Times news researcher Caryn Baird contributed to this report. Lane DeGregory
can be reached at degregory at tampabay.com or (727) 893-8825.

Guide dog leads vision-challenged professor to new insight 10/09/13 [Last
modified: Wednesday, October 9, 2013 6:49pm]

C 2013 Tampa Bay Times
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