From dandrews920 at comcast.net Thu Sep 11 22:11:52 2025 From: dandrews920 at comcast.net (David Andrews) Date: Thu, 11 Sep 2025 17:11:52 -0500 Subject: [NCABS] Research Participation Request: Development of a Genetic Counseling Tactile Aid Message-ID: Research Participation Request: Development of a Genetic Counseling Tactile Aid The below research participant solicitation is being provided for informational purposes only. The National Federation of the Blind has no involvement in this research, but we believe that it may contribute to our research mission. Research Title: Development of a Genetic Counseling Tactile Aid Being conducted by: University of North Carolina, Greensboro Purpose of the Study This study aims to develop and evaluate a universally designed genetic counseling tactile aid by: (a) identifying genetic counseling topics that people who are blind and visually impaired believe would be most helpful to be represented in a tactile aid, (b) examining personal characteristics, such as experience using tactile aids and age of onset of vision loss, that may impact the desire, need or effectiveness of a tactile aid, (c) creating a 3D-printed tactile aid based on the findings of the preceding aims, and (d) evaluating the tactile aid through a focus group with individuals who are blind and visually impaired. I am hoping to recruit participants through the National Federation of the Blind for the survey. I hope to learn from participants their features of blindness, experience with tactile aids, and what genetic counseling concepts participants believe would be most helpful represented in a tactile aid. Role of the Participants and Anticipated Length of the Study Participants will complete an online survey that takes approximately 10-15 minutes to complete. Survey participants can volunteer to sign up for a follow-up focus group. Focus group participants must be 18+ years of age, fluent in English, identify as blind and visually impaired, and have transportation to Industries of the Blind Greensboro. Focus group participants will attend a single, one-hour focus group. Proposed Participant Compensation Yes, Survey participants are eligible to enter a drawing for one of twenty-five $10 Amazon gift cards Link or Instructions for Participants to Enter the Study Do you ever wish your healthcare provider could explain visual concepts to you better? Are you blind or visually impaired? We would love to hear from you! Jillian Hughes, a student researcher at UNC Greensboro, is conducting a research survey to help improve healthcare accessibility. Our goal is to create a tactile aid to support genetics education in healthcare. We are conducting a survey to gain input on the creation of a tactile aid. Participants will be asked to complete a survey that takes approximately 10-15 minutes. All participants will have the opportunity to enter a drawing to win one of twenty-five $10 Amazon gift cards Requirements for participation: -Identify as blind or visually impaired -18 years of age or older -Fluent in English Survey link: https://uncg.qualtrics.com/jfe/form/SV_6rIkcpNueKkzaaa Contact the following individual with any questions Jillian Hughes 5083868055 jehughes3 at uncg.edu