[NCABS] Research Participation Request: Development of a Genetic Counseling Tactile Aid

[David Andrews]

Research Participation Request: Development of a Genetic Counseling Tactile Aid



The below research participant solicitation is being provided for 
informational purposes only. The National Federation of the Blind has 
no involvement in this research, but we believe that it may 
contribute to our research mission.




Research Title: Development of a Genetic Counseling Tactile Aid

Being conducted by: University of North Carolina, Greensboro


Purpose of the Study

This study aims to develop and evaluate a universally designed 
genetic counseling tactile aid by:

(a) identifying genetic counseling topics that people who are blind 
and visually impaired believe would be most helpful to be represented 
in a tactile aid,

(b) examining personal characteristics, such as experience using 
tactile aids and age of onset of vision loss, that may impact the 
desire, need or effectiveness of a tactile aid,

(c) creating a 3D-printed tactile aid based on the findings of the 
preceding aims, and

(d) evaluating the tactile aid through a focus group with individuals 
who are blind and visually impaired.

I am hoping to recruit participants through the National Federation 
of the Blind for the survey. I hope to learn from participants their 
features of blindness, experience with tactile aids, and what genetic 
counseling concepts participants believe would be most helpful 
represented in a tactile aid.


Role of the Participants and Anticipated Length of the Study

Participants will complete an online survey that takes approximately 
10-15 minutes to complete. Survey participants can volunteer to sign 
up for a follow-up focus group. Focus group participants must be 18+ 
years of age, fluent in English, identify as blind and visually 
impaired, and have transportation to Industries of the Blind 
Greensboro. Focus group participants will attend a single, one-hour 
focus group.





Proposed Participant Compensation

Yes, Survey participants are eligible to enter a drawing for one of 
twenty-five $10 Amazon gift cards





Link or Instructions for Participants to Enter the Study

Do you ever wish your healthcare provider could explain visual 
concepts to you better?

Are you blind or visually impaired? We would love to hear from you!

Jillian Hughes, a student researcher at UNC Greensboro, is conducting 
a research survey to help improve healthcare accessibility. Our goal 
is to create a tactile aid to support genetics education in 
healthcare. We are conducting a survey to gain input on the creation 
of a tactile aid.

Participants will be asked to complete a survey that takes 
approximately 10-15 minutes. All participants will have the 
opportunity to enter a drawing to win one of twenty-five $10 Amazon 
gift cards

Requirements for participation:

-Identify as blind or visually impaired

-18 years of age or older

-Fluent in English

Survey link: 
<https://uncg.qualtrics.com/jfe/form/SV_6rIkcpNueKkzaaa>https://uncg.qualtrics.com/jfe/form/SV_6rIkcpNueKkzaaa 






Contact the following individual with any questions

Jillian Hughes

5083868055

<mailto:jehughes3 at uncg.edu>jehughes3 at uncg.edu